Let's Share Our Stories and Support Each Other Here

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4194
megalyman
Jun 15, 2015 3:33 am

We all know we have a bag attached to our side.  Some are new and some have been around for a while (old).  We all have to live with it to the end.  Why not open up a bit and discuss personal issues on this forum?  I have never gone to the events, survey, or other sections of the site.  Talk about everything here.  Fun things and sad things.  Personally, I would like to meet other ostos and hear their story.  I'm not looking for a hook up.  In fact I don't think I would go over 10-20  miles to meet someone.  If any one of you is going through my area I would be glad to put you up and feed you for a few days.  (After that you have to put out some bucks.)  Feel free to ask me anything you want.  If I don't have an answer or opinion I will tell you.

Thanks and good night,

 

I would be glad to give my personal e-mail but they say they would delete it.

Don

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megalyman
Jun 16, 2015 7:18 pm

And, by the way, old refers to me.  I am 60 and had my ileostomy in 2007.

megalyman
Jun 16, 2015 11:44 pm

As I have said, I am not a licensed therapist or medical proffesional.  That being said, first I want to extend my sincere hope things work out for the best for both of you.  I think you should act normally and not assume anything about the future.  I had an uncle who died of brain cancer.  He and his family went through some extremely tough times.  If your situation is anything like my uncle's, your husband is going to remember or forget things no matter what you do.  I think the best is to leave everything as normal as it was in the past unless the situation makes a change inevitable.  For example, at some time he may have to go into an assisted living situation or hospice.  Of course this would be a difficult dicission for you to make but we have to face reality.  If you get to the point where you or someone close can't take care of your husband someone else may need to do it.  By the way, was he ever in the military?  If he was, that may be another resource to help.  Let me know if there is anything I can help with.

 

Don

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ConnMan

I began my Urostomy life February 27th, 2023...a month and a half ago. I stumbled upon this site from another on Youtube and website called VeganOstomy and between that site and this one, most of my fear and worry of not having any answers other than calling the Dr's office recording menu and hoping to hear back in the next day or two for an answer to leaks, skin irritations etc, or just feeling alone and the "no one understands" thoughts I had to look forward to in my mind were all put to rest by these two websites and the community here at MaO!! I have been here for a few weeks now, and the help and support offered by the members here is just amazing!! The information and support is absolutely priceless for anyone recently out of their surgery and have tons of questions or had it for years...sit down...have a good read and you will see for yourself!!

Past Member
Jun 17, 2015 1:10 am

 


 


 


Hi Don,


 


 


 


Well, I was a licensed therapist and must say, that is some very good advice.


 


 


 


 


Loretta


 


 


 


 


 


 


 


 

megalyman
Jun 17, 2015 1:38 am

I do have a lot of time to fiddle around so I do a fair amount of reading and studying.  It's unfortunate that you have to cut out some of the foods you like.  Have you tried to reintroduce some of the things you like one at a time?  If you do, just use a small portion at first and slowly work up.  Only one thing at a time.  If it does not agree with you take a few weeks off for your system to clear and try something else.  Hopefully you will be able to add back a couple of things you like.

 

Don

 

Getting Support in the Ostomy Community with LeeAnne Hayden | Hollister

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