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Where Everybody Understands You
41,458 members
Jun 15, 2015

Let's Share Our Stories and Support Each Other Here

This topic is all about creating a warm and welcoming space for people with ostomies to connect, share their stories, and support each other. Whether you're new to having an ostomy or have been living with one for a while, this is a place where you can engage in conversations that range from light-hearted to more serious topics. Here's what you can expect and some helpful advice shared within the community:

- The person who started this conversation is a 60-year-old who has been living with an ileostomy since 2007. They are eager to meet other ostomates, whether locally or by hosting travelers, and are open to answering questions and sharing experiences.

- They clarify that when they mention "old," they are referring to their own age of 60.

- While they are not a licensed therapist or medical professional, they offer personal support and advice based on their experiences.

- For someone caring for a spouse with a brain tumor, they suggest:
1. Keeping life as normal as possible until changes are necessary.
2. Considering options like assisted living or hospice care when needed.
3. Looking into veterans’ benefits if applicable, as they can provide additional support.

- When it comes to diet, they recommend reintroducing favorite foods slowly and one at a time. This means trying small amounts and waiting a few weeks before trying another, to see which foods can be safely included in an ostomy diet.

- A licensed therapist in the forum supports the advice on maintaining normalcy for a spouse with a serious illness and planning for future care needs, reinforcing the value of the shared guidance.

This community is all about mutual support and understanding, offering a space where you can feel connected and heard.
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