Have ileostomy. Failed reconnection. Bag for life. No problem with that. It worked good for first 8 months. After reconnection failed, stoma has very little dicharge. Oncologist says gas in colon pressing on small intestine causing no passing. Says no fix except to remove colon. Has anyone ever heard of this?
Hermit
Aug 31, 2016 4:38 pm
Ewesful
Sep 01, 2016 12:41 am
I have not heard of that but I do have an ileostomy and the gas does build in the bag when I eat some foods.... I think I would ask for this to be carefully explained and a picture/diagram of the process -- I would be afraid something is going to erupt if you leave it ---- I have all the colon gone and a good amount of small intestine.
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Posted by: Primeboy
Hi Mike and all. I am not sure how panoramic my perspective really is as my peripheral vision shrinks with each passing year. I can tell you that when I came to this website six years ago I was truly ;impressed by the positive attitudes of so many members, especially the younger folks who refused to let their ostomies define who they were or what they would become. I also came to appreciate that having an ostomy is not the same thing as having a disease. Pardon ;my pun now, but ostomies and cancer don't belong in the same bag. One is a solution, the other is a problem. Celebrating National Ostomy Day ;is also well outside my comfort zone. That's like celebrating National Wheel Chair Day. Come on!
I think there is a ;need for improved ;public awareness of ostomies, but I am not sure how that's best done. There ;remains ;some social stigma attached to our situation, and it's acutely felt among our young. We need to get out of the dark ages on this issue, but not by going 'in your face' to everyone else. I think Bill and NDY are 'spot-on' when it comes to telegraphing the right message to friends and family. People will know how to react when they ;see ;how we accept the cards we were dealt. I also appreciate the contribution some people here are making to this effort through their publications.
On a personal note, my son has been suffering from ulcerative colitis for years just like I did. I am very concerned because people with UC are at a higher risk for colon cancer. Years ago my GI told me to get annual colonoscopies to be on the safe side. I am glad I did because he eventually found pre-cancerous cells which led to several surgeries and my becoming an ostomate. Since then I have always ;conveyed a positive attitude to ;my son about wearing a bag because it has kept me alive to enjoy many more years with my loved ones. I think he got the message. We both go to the same gastroenterologist in NYC and get scoped on the same day. Father and Son moments!
Someone once wrote that our children are the letters we write to the future.
PB
Past Member
Sep 01, 2016 1:28 am
No expert here, but I had very dark brown thick discharge and very little of it. I called surgeon, and he told me to drink 1 cup of dill pickle juice and to make it salty. Sounded weird, tried it and everything running normal again. I would not suggest this anywhere but at home. I stopped at the grocery store, bought small jar of pickles, had salt packets in lunchroom at work. That lil sucker spewed fast and cleared what was there in about 30 minutes, but had to empty bag 3 times in those 30 minutes. My stoma HATES salt so I had to drink a lot of water to flush. Made a big day of potty breaks due to tons of fluid. I can only add check with your Dr as your situation might not be same as mine.
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