Have colostomy. Two-piece bag! Have excessive gas! Watch what I eat and Beano doesn't work! Have to burp the bag constantly.
Hermit
Apr 22, 2018 3:13 pm
A_Stoma_By_Any_Other_Name
Apr 22, 2018 4:21 pm
Have you discussed getting treatment for SIBO (small intestinal bacterial overgrowth) with your physician? It's usually what causes that and it can be rather painful too.
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Posted by: ejbetty
Geekyjen,
Thanks for the reply. I will be seeing my doctor on Friday and mention Entyvio. I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared. The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade. Turns out I have been diagnosed with LUPUS. It is attacking my nervous system. I had ulcerative colitis in 1996 and they had to remove my colon. Had a J pouch for 10 years, until it started failing. I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently. I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared. I have had two hospital stays now because of the blisters and the paralyzing incident. I will be dealing with this forever now. I have just been working on acceptance.
I love this website because of wonderful people like you!
Betty
mild_mannered_super_hero
Apr 22, 2018 5:17 pm
Wal-Mart sells a chewable gas control tablet... They work pretty well for me and are not expensive. If you cut out breads and grains from your diet, the gas will not be a problem. Are you a candidate for irrigation?
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EAM
Apr 29, 2018 1:58 pm
Hi, what brand bag are you using? I switched to the Coloplast Sensura Mio. In part because it has a good filter that doesn't plug up as often as some other brands, at least that has been my experience.
Good luck!