Recovery from Rectum Removal and Anus Sew - Coping with Pain and Healing

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drfields24
Jul 17, 2018 9:21 pm

Hi everyone, hope everyone is doing well.

Well, I had my surgery on the 28th of June. I spent 16 days in the hospital due to complications, but now I've been home for four days and I'm doing okay. It's very, very painful. I thought I almost couldn't bear it, but I did. I don't regret having the surgery. Now that the pain is more tolerable, I'll be glad when it completely heals. I can't sit for too long. I have an inflatable waffle bed on top of my mattress, which makes a world of difference and allows me to lie on my back with no discomfort.

renemoon51
Jul 17, 2018 11:17 pm

Forgive my curiosity, but why do some have to have their rectum removed? I have a permanent ileostomy and have lived with it now for 7 years, and I got here the easier way, diverticulitis, second attack, and I woke up with a new outlook on life. I thought it was horrid and could not imagine any kind of normal. I learned rapidly to appreciate my second life. The worst thing through that was the surgeon's attitude. I never went back to him or any other surgeon. I know I will need to consult one sometimes, it's just difficult to find one.

iMacG5

When I found this web site, I didn't think its name had anything to do with actually meeting an ostomate but I later learned there were some folks who did meet and develop relationships. How good is that? That wasn't my intention. I definitely didn't want anyone to meet me. I felt broken and wasn't prepared to express those feelings. I thought it was a place where ostomates wrote about themselves, posed questions, shared thoughts, told jokes and, sometimes, just vented. I thought of it as a community of folks with similar interests and various degrees of experience. Mostly I found some of the most caring, selfless, wise and understanding people I ever imagined. I was so impressed with some of the writings; not because of their literary value but the way in which they addressed such a very complex environment. I read hundreds of exchanges and admired the way folks cared for each other. I became hopeful with my own situation and looked forward to the next day's offerings. Certainly some contributors stood out with their experience or particular skills in addressing some things but it seemed like a total effort with synergistic results. I felt blessed to have found this site. I still do.
Mike

lewboy60
Jul 18, 2018 2:16 am

In my case, a biopsy of an ulcer on my anus caused by radiotherapy from a previous cancer, fusing a hemorrhoid (18 years ago), returned a positive for cancer. My op was just over 5 months ago with removal of my rectum and fitted out with my new stoma orifice.... I now have a Ken butt (Ken and Barbie Doll butts). It was pretty painful and slow healing, complicated by keyhole surgery proposed to construct my stoma turning into a slice and dice from the belly button to pubis, and an infection and return to the hospital, loss of appetite, and not helped by side effects of painkillers causing constipation. I took up smoking the weed to get back my appetite, ease my pain, and get off the Endone. Cushions everywhere, car, desk chair...even took them to any appointments I had just in case there wasn't suitable seating. Still coming to terms with my new orifice but thankful I had a great surgeon who created a pert protruding stoma I call my Botox Baby because it looks like Botox Lips...Still haven't dared to look at my Ken butt in the mirror yet. In parting, I would just like to share some levity with you guys...Cheers All ........

Johnny's teacher asked the class how their weekends were.

"Horrible," said Johnny. "A car hit my cat in the arse!"

"Rectum," said the teacher. "Say rectum."

"Rectum? Damn near killed 'em!"

Marye
Jul 18, 2018 2:38 am

I have adenocarcinoma - rectal cancer that involves the sphincter muscle. I have gone through chemo and radiation. No fun. Now surgery on the 27th of July. The surgeon will remove the rectum and anus, and a reconstructive surgeon will, well, reconstruct. No sitting for 2 weeks. I am overcome with fear and resistance at times. I have tried so many things..... Thanks to everyone who shares. Really helping.

drfields24
Jul 18, 2018 3:59 am

Hi.

I wish you the very best with your surgery. Keep us posted.

 

My Ostomy Journey: April | Hollister

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drfields24
Jul 18, 2018 4:06 am

In my case, I had a hysterectomy in 2015 to remove a large tumor. In turn, it caused nerve damage to my rectum. As you know, nerves are irreparable. After I got my colostomy bag in 2016, I had very bad drainage with no control. So, the only way to fix it was to remove the rectum and sew up the anus. I know everyone's story is different. I'm glad I had it done; no more drainage.

Soc40
Jul 18, 2018 9:26 am

I had rectum remover with permanent colostomy as a result of a cancerous tumor.

Radio and chemo, I agree, no fun, but the wound has healed. It's getting easier to sit and I have almost forgotten it's gone!

It's a case of holding your nose, jumping, and swimming for dear life! You'll be surprised how you'll be strong enough to get through it. Good luck from Dublin, Ireland.

Past Member
Jul 20, 2018 12:11 am

In reference to sewing your butt closed. As I was told, my ostomy was permanent. If you're going to have a reversal, then obviously they won't stitch it up. I had my permanent ostomy in Nov. 2017.