I am a double ostomate. Urostomy never a problem. I had the colostomy because radiation produced arectal-vaginal fistula. It started with clear fluid leaking from my vagina —I was concerned but my radiation oncologist did not offer any suggestions until fecal matter started pouring out. Man, I was totally freaked out. The only recommendation was permanent colostomy. I was told the colostomy would completely shut down any vagina discharge. Well it didn’t. I never have fecal matter but I have constant leakage of foul odor gunk—all day every day. No one is addressing this. Has any woman had this happen or was a surgical error made?
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Mysterious Mose
I take part in these forums almost every day. They and the people that contribute to them have made all the difference in my having the courage to live a normal life with an ileostomy. The people here are marvelous and come from all walks of life and from all over the world. Hearing what others have lived through has really helped me put my own experience in perspective. I highly recommend all ostomates and caretakers of ostomates to come join us.


