Struggling with Recovery and Sleep After Takedown Surgery

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Recover18
Nov 29, 2018 12:53 pm

I have uc and had my takedown surgery last December, things went pretty good , I was 78kg before the surgery which is a good weight for me but I can’t get near that now. I’m still up 5 times per night and leakage every night. Which lately seems to have gotten worse and I’m feeling really run down and currently not eating now. Well once a day.  I don’t know if it’s a mental thing but I’ve no energy and no desire to eat.   I think it’s the up all night which is discouraging me from eating. I take Imodium but has no effect.   Any else struggle at night? Or any similar experience?  

 

Bill
Nov 30, 2018 6:58 am

Hello Recover18. Sorry to hear of your problems. In the early days, I used to suffer problems at night time but these gradually settled and I mostly sleep through nowadays with perhaps getting up once or twice. There were several things I did which helped in this regard. First, I got a bed that raises at both ends and forms a hammock-shape. This helps me to keep still and the device therefore stays on much better. Second, I wear a belt on the device which helps keep it in place. Third, I use a medical adhesive spray, rather than relying on the adhesive wafers. this has a much stronger bonding than the manufacturer's devices. Fourth, I am very careful when getting out of bed because that is the time when the device is most likely to break free.

I don't put on a lot of weight ( or lose it other than during operations) so I approach that sort of problem on a long-term basis and eat just a little more regularly each day if I want to gain weight. Sometimes I have food supplements in liquid form because I find that they are more easily digested than actual food.

I hope this is helpful to you  

Posted by: iMacG5

Hi Crossley. Ya know, I think it’s all about feelings. I don’t mean the pain feelings which could control everything. I mean the feelings inside our heads, our hearts and even our souls. I mean the feelings of who we are now compared to who we were; how we accept our situation or maybe we don’t. My wife asked how I felt and I said, “like crap”. She asked what hurt and I answered, “Nothing hurts, well, everything hurts, I don’t know, It all sucks.” That was a long time ago. You question if your feelings are normal. How normal is it to relocate your butt hole to your belly where it’s usually in the way of your belt and, you know. But that’s where we are and for lots of us we are so much better off than we were before, physically. Emotionally, psychologically, well, that might be a different story. I believe talk therapy is wonderful if we could find a real empathic or sympathetic listener. So guess what! I found MAO and began “talking” with a keyboard with some of the wisest, kindest most sympathetic and compassionate folks on the planet. Regardless of where we’ve been, lots of folks here have been there and worse places and found their way back healthier and happier. We really do help each other.
Keep “talking”,
Mike

Mrs.A
Dec 16, 2018 1:33 am

Wow, it sounds like a year is quite a long time for recovery. Have you spoken to your doctor, has he/she ran any test? I am not a canidate for a reversal so I am no expert but I sure hope things get better for you.

Don't settle for what your going through, talk to your doctor.