Struggling with Recovery and Sleep After Takedown Surgery

I have uc and had my takedown surgery last December, things went pretty good , I was 78kg before the surgery which is a good weight for me but I can’t get near that now. I’m still up 5 times per night and leakage every night. Which lately seems to have gotten worse and I’m feeling really run down and currently not eating now. Well once a day.  I don’t know if it’s a mental thing but I’ve no energy and no desire to eat.   I think it’s the up all night which is discouraging me from eating. I take Imodium but has no effect.   Any else struggle at night? Or any similar experience?  

Hello Recover18. Sorry to hear of your problems. In the early days, I used to suffer problems at night time but these gradually settled and I mostly sleep through nowadays with perhaps getting up once or twice. There were several things I did which helped in this regard. First, I got a bed that raises at both ends and forms a hammock-shape. This helps me to keep still and the device therefore stays on much better. Second, I wear a belt on the device which helps keep it in place. Third, I use a medical adhesive spray, rather than relying on the adhesive wafers. this has a much stronger bonding than the manufacturer's devices. Fourth, I am very careful when getting out of bed because that is the time when the device is most likely to break free.

I don't put on a lot of weight ( or lose it other than during operations) so I approach that sort of problem on a long-term basis and eat just a little more regularly each day if I want to gain weight. Sometimes I have food supplements in liquid form because I find that they are more easily digested than actual food.

I hope this is helpful to you  

Wow, it sounds like a year is quite a long time for recovery. Have you spoken to your doctor, has he/she ran any test? I am not a canidate for a reversal so I am no expert but I sure hope things get better for you.

Don't settle for what your going through, talk to your doctor.