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Nov 29, 2018

Struggling with Recovery and Sleep After Takedown Surgery

This topic is about the challenges someone is facing after having takedown surgery for ulcerative colitis. They are struggling with nighttime bowel movements and leakage, which have been getting worse. This has led to fatigue, loss of appetite, and difficulty regaining weight. They are looking for advice from others who might have experienced similar issues. Here are some helpful suggestions:

1. Sleeping position and equipment:
- Consider using an electric or adjustable bed that can raise the head and feet. This creates a gentle "hammock" effect, helping to keep the body still and reduce movement of the appliance during sleep.

2. Appliance security:
- Try wearing an ostomy belt at night to keep the pouching system securely in place.
- Use a medical adhesive spray for a stronger bond, instead of just relying on the standard wafer adhesive.
- Move slowly and carefully when getting out of bed, as sudden movements can often cause the appliance to loosen.

3. Nutrition and weight gain:
- Opt for small, more frequent meals rather than large ones to help gradually restore weight.
- Consider high-calorie liquid nutritional supplements, which are easier to digest than solid foods.

4. Medical follow-up:
- Since a year of persistent nighttime leakage and weight loss is longer than typical recovery, it's important to consult your surgeon or gastroenterologist. Request further evaluation or testing instead of accepting the current situation.
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