Had a reversal on January 15. I take up to 4 Imodium a day to control diarrhea. My stool is now somewhat formed, but very frequent. Sometimes I have time to make it to the toilet, other times I don't. Just looking for other experiences. How long can I expect this incontinence to last? I know everyone is different. Getting a bit discouraged, but maybe I am too impatient. Thanks for any input.
Prizzy
Feb 07, 2019 1:35 pm
iMacG5
Feb 10, 2019 12:51 am
Hi Prizzy. I'm not equipped to offer any opinion on the physical part of your situation, but it does seem kind of early to expect big improvements. I lived in the bathroom for a couple of years, and it's no fun. Please be as patient as possible and question your surgeon and GI folks for qualified answers.
Wish you the best,
Mike
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Posted by: ejbetty
Geekyjen,
Thanks for the reply. I will be seeing my doctor on Friday and mention Entyvio. I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared. The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade. Turns out I have been diagnosed with LUPUS. It is attacking my nervous system. I had ulcerative colitis in 1996 and they had to remove my colon. Had a J pouch for 10 years, until it started failing. I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently. I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared. I have had two hospital stays now because of the blisters and the paralyzing incident. I will be dealing with this forever now. I have just been working on acceptance.
I love this website because of wonderful people like you!
Betty
Bagface
Feb 14, 2019 11:06 am
Hi Prizzy- Just got home yesterday after reversal surgery. My surgeon told me it could be 3-6 months for things to straighten out. So far I've been eating small frequent meals and keeping the Depends handy!
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Schweetdecember
Feb 15, 2019 4:30 am
My 74-year-old friend is scheduled for her ileostomy reversal next week. How long is the hospital stay and who takes care of the open wound? I have been taking care of her since this started last May. She had a colostomy, then unexpectedly, he gave her an ileostomy to allow healing of the colostomy reversal. It's been tough.
Prizzy
Feb 15, 2019 11:39 am
I had an ileostomy reversal on Jan 15 and left the hospital on Jan 19. My incision was stapled shut and I had no wound care. I went back a week later to get my staples out and it had healed fine. I know it's tough, but hang in there...it does get better.
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