Colostomy

Hello  I started the irrigation process early this morning.  I had everything that I needed with me and for one strange reason or another it did not respond.  I placed teh cone in my stoma and low and behold nothing.  Wh...

I was "diagnosed" with Fibromyalgia several months ago. I just now began taking the medication, because frankly, I don't have the "tender points" and my muscles don't give me problems; my large joints do. So I am not sure if ...

Hi there. It's been just over 12 months since  my colostomy operation due to diverticulitis and peritonitis and now I  am waiting to have a reversal.  I have developed a  hernia behind my stoma (it looks like a perky boob wi...

Looking for feedback from those who have ileostomies and especially anyone who had a colostomy that was changed to an ileostomy. A little over 6 years ago I got a permanent colostomy. But now my gastro doctor said because of a bad stricture and...

Hi guys I'm home lying in bed from a procedure to see if my rectum is in good shape for reversal.  I was wondering if anybody has had the same situation as me. And if so how was the healing process? I had cervical cancer 8 years ago. A y...

I am a neebie and was wondering if anyone has a colostomy due to a rectovaginal fistula. I have had the colostomy since June 2007 and have tried on 4 different attempts to have the fistula corrected. In January I am due to have another repair at...

I have a friend who will  soon be flying from TN to N.C. and she was given two cards, one that is blue that said Urgent use of bathroom....guess that is for emergencies and a white one that she is to show to the scanners and they ...

Just left my surgeon's office. He said my emergency colostomy was due to diverticulitis, not Ulcerative Colitis or Cancer, and it should be safe to reconnect me. I have already had an EKG by my primary care physician and it was clear. However, D...

I had an emergency colostomy June 5th and Praise God that I am alive! I am new to this group in hopes that I can meet some people and learn some tricks of the trade! My question or problem is this: I am getting a really good seal and using Con...

When I was 20 I inherited a rare neuromuscular disorder. The nerves overstimulate otherwise healthy bowels and cause 12-25 BMs everyday, including 2-3 overnight. I am continent but get very little warning, so I always have to be near a bathroom....

I am fairly new to this site and have posted comments to other's threads and now am posting my own story. My son who is 38 years old and developmentally handicapped is having his reversal done on Monday, March 26th. He is pretty nervous about t...

I had an attempted colostomy reversal, they found yet another leak and now I have an ileostomy.  I am having trouble getting my bag on before any output and it's made the skin below my stoma very red and raw.  Anyone have tip...

Hi all, had my colostomy on the 1st Dec 2010 and am just getting used to it now. It hasn't settled down to any routine yet and I would be interested to hear about any tips for diet and products and about irrigation also have big problem with pan...

Had reversal 6 mos ago- still sucks...but have supplies to give. 60 Covatec closed end bags, flanges, adhesive, travel bag, etc... not a paying member, cannot advertise in class i fie d s. contact for details..... Roseinky

Hi.  I have a question for you single ostomates out there who have tried the dating thing.  I haven't gotten up the courage to do that since my colostomy and I'm not sure I ever will.  Could sure use some input on the subject. &nb...

Hi , my name is pippa and I am looking for advise and other people's opinion on colostomy reversal & hernia repair it will be getting done all at the same time, which I think is good. I had a colostomy last July through emergency surgery ...

I have a colostomy and have had it now for about 2 months.  My surgeon said it can be reversed and I have a follow up with her in January to hopefully begin the process of testing for the reversal.  She said at my last visit though tha...

Hello, Are there any things I need to be advocating for with my surgeon that will make life better with a bag? Don't really know what is possible so Im asking what you have already found out. If you are wearing one, you know what you wish ...

Everything I read says be careful not to get your pouch wet, but no one has given me any explanation of how to accomplish this when showering. I'm a new ostomate and my "schedule" is not predictable enough to risk showering with my pou...

Hi Everyone. I had my colostomy reversal on Jan. 30th and am still in the hospital. All indications so far are that it will be successful. The pain isn't as bad as the initial surgery in October so I am hoping my recovery will be better as well....

Do you ever forget you have a colo sotmy?  Mine seems to hurt all the time.  I sseems to burn and bleed a lot.  Is that normal?  I have had it for about a year and a half and I still have trouble with.&nbs...

Ok! abit of postivity here.. ive booked a trip to italy for a week.. but its the first time ive been on the hols since surgery.. what happends when they do a search on me and they feel the bag?? just dont want them thinking i have a bomb on me e...

I was very unwell yesterday. At midday I started having terrible contractions and my stoma stopped working. Then the pain increased so that it was a constant pain for 1 hour. Then I threw up and the pain  lessened only to increase agin...

Hi!  I am considering having a colostomy and would like to know the good, the bad and the ugly.  I have a spinal cord injury at the C6-7 level so have no control over my bowel.  It has been 16 years now and I have b...

Hi all was wondering if you can help me, i have a colostomy now for 3 months and will have it for a further 3 months and then will have it reversed.  I have been off work for these first 3 months but will be returning next week and a...

I have a colostomy and have been doing the irrigation thing.  It's working pretty well, but I have a questions for anyone out there who does the same thing.  How does one travel and stay overnite places when one irrigates?  It's n...

A FORMER NEIGHBOR CALLED THE FIRE DEPT. ON ME BECAUSE SHE SMELLED INCENSE COMING FROM MY APARTMENT WHEN THE FIRE DEPT GUYS FOUND OUT THEY HAD BEEN CALLED FOR SOMETHING SOOO STUPID THEY GAVE HER A TICKET AND KNOCKED ON MY DOOR TO LET ME KNOW AND...

I underwent an emergent colostomy in April. Depression, anxiety, fear...everyday I wake up and my first thought is "was that a nightmare?"  Of course the answer is always the same "no." Every pain frightens me....I am also dealing with a sl...

I am a college student and I would like to know more information about this subject in order to complete my assignment. I have been tasked to ask the community any ostomy related question in order to record my answers and pass down to my profess

Hello everyone. I'm trying to cut an extremly long 7 year story short so if you need to ask any questions feel free. Anyway, I have had progressively worse IBS C/D for around abouts 8 years now and I have spent almost the entire of those 8 yea...

Does anyone know where to get free bags from? I live in Florida with no insurance. Now waiting for ssi decision.  Any suggestions? < >

Dear Folks, Back in December 2011 I had my diseased colon removed suffering for years with ulcerative colitis. For the next year I had the ostomy bag which was a battle to avoid irritations andd mild infections. Then in November of 2012 I had a...

hi there, Anyone out there who has went through the reversal of their colostomy.  I have heard good and bad regarding this.  I think I would like to hear some more of the good before I commit myself to have this procedure. ...

Help I eat a good diet well balanced diet fruit and vegetables, chicken ,fish. All foods which are healthy. I also drink lots of water and decaffinated Tea. But still I suffer from constipation. I have been taking 2 MOVICOL a day for about year....

Hello, I have posted before but have not had any replies.  I had my ostomy in 2007 so you would think I had it just about down now.  However, I have had problems since the onset.  First of all, I have Irritable Bowe...

Is this much trouble comon place? In Feb 2010, they discovered a non-cancerous tumor between my colon and my bladder. I also had diverticulitis. They removed a the tumor and 8 inches of my colon in May 2010. Four days later my colon came back a...

hey there everybody, Im looking to hear from anybody who had the surgery to remove the anus, and also had a colostomy done at the same time... my wife Jenny was told today that she needs to have this done due to a anal stricture and diversion co...

2 months since colostomy after 5 months of being unable to eliminate due to what was ultimately determined to be a problem with the sigmoid colon. Was needing colon cleanser 2x a day just to eliminate, which created a drastic weight loss.  ...

Hi everyone, I am a US expat who has lived for the past 14 years in adeveloping "2nd /3rd" world country in Latin America (Costa Rica).  I had an emergency colostomy (Hartmann's?) in August 2016 (performed at a public hospital here in Cost...

Hi, just to keep you all up to date I had my operation on the 14th October was in hospital for 5 days I have done very well all seems to be settling down obviously tender and sore. I have been told not to lift anything for a while and certainl...

I have a question:  Has anyone had surgery on a hernia as the result of a colontomy?  I had a colostomy four years ago and since then I have developed a very large hernia.  I am considering having surgery, but I am ...

I had my colostomy august 2013, I was a jeans man, tall slim built. Has anyone else encountered a problem with wearing jeans? The colostomy was a life changing event in a lot of ways this is only one of my issues. I currently only wear elastic w...

Hey everyone,  I'm posting because my nephew has been diagnosed with a severe case of Crohn's. He's only 14 but looks like he's 11. Underweight, smaller than his little brother, can't play football or wrestle anymore. Terrible. However, th...

I've recently gotten a colostomy reversal and I'm completely regretting it. I'm 18 years old, and I went into the hospital last year for a 'simple' delormes procedure to fix an anal prolapse and hernia. During the operation the surgeon sewed a s...

Hi Guys ........ It looks like I will need to make a decision before long as to whether to have an ileostomy or a colostomy which I will have to have for the rest of my life .....(currently have an ileo...)  I am fortunate enough NOT ...

Is there such a thing as an ostomy diet? I am barely getting any output from my colostomy in at least a month, and I have absolutely no appetite. Last year I was in hospital with what they thought was a partial small bowel obstruction. My "...

Well here is the story I am 71 going to be 72 next month. I had a infection and came out with a ileostomy on one side and a mucas fistula on the other. I had that for 3 months and was the 3 months from ____. The doctor got the stoma pointing sid...

Hello, I was wondering if anyone has any experience with colostomy guards or any protective equipment , i have found some adds are quite overstated. thanks, Bill

Hi all, I am a newbie, but i have been reading all the posts that i can, as i need to hear about otheres problems so mine may not seem so bad.  I had emergency surgery in 2009 for a blockage in the intestines, which turned out to be a ...

This is the first time I have posted on this site.  I've been reading it for a while and all of you have helped me feel less like a freak and given me hope.  I started with this whole thing last May with pain which I chose to...

     Since my surgery, I have not been able to wear Spanx due to the tightness around the bag area.  I got the idea to order the Power Mama Maternity Spanx with the soft sheer tummy panel that grows with you as you...

Has anyone had a colostomy for Slow Transit Constipation and Pelvic Floor Dysfunction? I'm worried that I will have the surgery and it will not relieve the problem.      

Hi I am very new to the ostomy world and am finding it all very amusing. I had an emergency colostomy done on the 11th November 6 days after seeing a specialist up at the emergency room at hospital. I knew I was in deep trouble with constipati...

I had emergency surgery a week ago. Had a portion of colon removed due to rupture from diverticulitis. Released from the hosp on Friday with only a small amount of liquid output from stoma. Since I've been home, I have been eating more solid foo...

     hi all i have got my colostomy op on monday the 12th looking for hints and tips to helpwith life  before and after the op help on what pain management and moment foodfor my op i have not got any bowel pre...

3 weeks since surgery. I have hard time dealing with. When does it get better

Hi all...first I want to mention what a great site this is!!  I'm just new and poking around, but everybody is so supportive and lovely...I wish I found you all earlier I have a brand new colostomy and some questions with respect to...

If you are using the disposable pouch liners that are flushable instead of a drainable pouch, you can also use the small bags that people use when walking their dogs and instead of them costing 20 cents a piece they cost 1.5 cents a piece and wo...

Its been 2 months of the colostomy, am i doing fine in taking care of it, is it healthy? Baby has devloped a white patch on the corner which sometime disappears. I see some changes in it. It isnt velvetty smooth land wet like it used to.  ...

Just asking, is there anyone out there who is permanent colostomy, irrigates and uses plugs, i've been for a few years now and would like a chat to compare experiences.

Hi, I am scheduled for colostomy reversal surgery and incisional hernia repair in 2 weeks.  Has anyone here had these procedures or know of anyone who has with a positive outcome? Everything I've read on line so far is making me want to ba...

Hello, my name is Dee.  This is my first time writing in a Forum but I am so in need of someone to talk to and to possibly give me some advice.  In 2002 I became very ill which I was told at the time it was nothing although I...

  I have three outlets in my stoma. One is an iliostomy that is VERY liqued unless I take immodium or something to slow down my gut.  The second is what they call a mucous colostomy that for the most part just has clear mucou...

Hi, there, I have responded to two mates with questions on this subject so far.  All I can say is I had mine done July 1, 2009.  I had the take down on the colostomy, 2 hernias and what my surgeon said was a 'tummy tuck'.&nbs...

Night collection system for colostomy.  I was unable to sleep more than about 45 minutes without having to get up and empty my colostomy appliance.  I have been trying to find a commercial product like the night drainage syst...

My sister will have colorectal surgery for stage 2 cancer in November(3rd). I'm trying to learn all I can to help her adjust to this. I found a great thread here while searching for tips and such, it was very helpful! One big thing I learned is ...

Hi all, Has anyone had to take ill health retirement from work due to their condition. What was your experience. I am increasingly finding it difficult to cope with the  problems in having a colostomy. 

Opinions pros and cons of having a colostomy.

Hello  I have heard great responses from several folks here that irrigagte.  I finally received my supplies today.  I received the stoma caps and wafers, in addition to the irrigation it which includes the sleeves, and the other i...

Please help direct on where or how i can get support of these supplies, they are very expensive in my country and i cant afford them, i need and help even people offering supplies they dont need and more or near expiry, my sister is the patient ...

I've heard a colostomy output is a less watery, but that's about it. Anyone knowledgeable on this?

Hi Guys and Gals .... A friend of mine is the Editor of Tidings, the Colostomy Association's magazine... The magazine represents the interests of those living with a colostomy, those working in the field of stoma care and industries involved i...

I found this article today on Boston Herald. Interesting! Elvis Presley, the King of bacon, banana and peanut butter sandwiches, didn’t die of a heart condition. He succumbed, on the toilet, to chronic constipation. That’s the word from Pr...

Hey, I just realized that Lily Allen is singing about Colostomy Bags in her 'Window shopper' song. Here are the lyrics   ... and the video: The bottom feels so much better than the top! So much better! Nan you're a window shopper Ta...

Could I please have benefit of experience on stool softeners?  I am taking a new Rx med that is really causing me problems.  I am drinking lots of water but I still need help!  Naturally, I would like something that...

I have a question to ask but its not for me its for my friend. I have urostomy and ileostomy , my friend has urostomy and colostomy . He has phoned me for advice  because since yesterday his colostomy bag is empty  yet he is...

I had an 'emergency' colostomy in May 2010, I was told I had diverticulitis, turns out I had a ruptured appendix causing periotinitis.  I wore my colostomy (or it wore me) for 11 months. I had the reversal in April 2011, they also repa...

Anyone here have an Illeal conduit? Colostomy?The love of my life broke his neck in 1992. So, 22yrs+ post injury. C5/6 incomplete. He used a condom catheter until 2006. Indwelling catheter placed during emergency surgery to remove kidney stone s...

does anyone know how I can order Iry Pump and Iryfix (by Braun) online from other countries? i believe these products are not available in the US (which is a shame).   I am a new ostomate and started irrigating about 3 months ago and it i...

Hello everyone it's me again. I just wanted to share with you all something I tried. Going into my 3rd my bag really 😷 stinks so as I'm going to change it the next day because the adhesive itches so bad I out of the clear blue took the febree...

Hi all,  I was wondering if anyone here is able to sleep on their front with a colostomy? I have been finding my self roll over n middle of night, is it safe, will i damage the stoma?   Thank you

My wife has had a reversal but has been finding that even after 4 years she still has to constantly visit the loo , making her very sore , we are unable to go for a walk any distance unless there are public toilets nearby , we cannot go to the t...

Thank you to everyone who has already to responded to posts. They have already been a huge help in understanding the differences and what I'm experiencing is normal. My situation was suppose to be a simple non-cancerous mass removal and recon...

is colostomy the same as  ostomy?

My surgeon tells me you can't get a reversal after four years. Anyone know how long  you can wait, i didn't know there was a limit.  Mine was done it Dec 2005, he said i'm at a high risk and i have three large hernias too fro...

Had my colostomy reconnected 6 weeks ago after having a bag for 5 months. Everything is close to back to normal. I am so grateful for all of the concerns and prayers.

Hi Everyone, I am one of the silent followers on the site and it is so great to read everyone's blogs even if we don't ever answer.  One thing that has been concerning me for a while is that lots of folks talk about eating or not eatin...

My reversal and hernia surgery is tomorrow, Feb 3rd!  I've been on the clear liquid diet since yesterday at 4:00 so I'm feeling quite hungry about now.  It's funny how food looks and smells so great when you can't have it.&nb...

I'm over 2 years down the line from my stoma, and still hate "Colin" with a vengence, still smelly, painful and a nuisance, but a few months ago after getting  a bad cold, I sneezed and had terrible pain, but that's sort of n...

hello, i was after some advice. im a new patient who had surgery about 3 weeks ago. all was going ok until about a week ago. my skin under the flange/bag is eroded, red raw and blistered. im using mercurachrome to try and hasten the healing proc...

     Hi all,        This is my first post and a bit nervous.      I have a colostomy and urostomy cause of cancer. I'm sure there are others like me and was w...

Hello, I am new here and was wondering about flying. I am a paraplegic and have a colostomy. I have traveled before and every time I have this huge fear of my bag filling up and popping open in flight. I have checked with the airlines and they ...

May sound stupid, but I also had to have my rectum removed/ sewn up.  NOTHING there.  Is this normal?  Further limits the amorous activities of a gay male.

June 6th was a terrible day - I was in a depression that was just horrible.  I came here and asked about having a new colostomy and asked how you all coped.  Your responses helped me tremendously.  Our cases are different but my t...

I have quite a collection of hollister supplies that are new and unused.  If interested please send a cell # so I can send photo of products available. Stacy (ycats)

HELLO Friends, I have had my COLOSTOMY since 2012.  Thank goodness I make sure my SUPPLIES never get too low. My PROBLEM is with the ONLY supply company my insurance uses.  This company is EDGEPARK!  I would ALWAYS place my order...

I'm having problems with the miralax,I think it is dehydrating me too much. Having a kidney transplant I need to stay hydrated,and it has always been hard for me to do because i just don't like water or anything else in large amounts. My colosto...

Hi, Finishing FOLOX  ( fingers crossed) early August. Hoping to head off on a trip in early September. Any tips re plane travel, changing bags ( still notoriously unpredictable because of chemo) in planes and coping with heat?  Than...

I also live alone but I keep busy by playing bridge with some wonderful friends. I have had a colostomy for a year and a half. I am now going in to have a morphine pump implanted in my back for three herniated disc. I keep busy and live in a co...

Hi Everyone, me and my husband are going on holiday on saturday, our last flight was very embarassing, my hubby had a full english breakfast before the flight and all the way home the smell was really bad, a lot of the passengers was complaining...

Hi,   does anyone out ther have any experience of urine problems after a colostomy.  I had a bladder fistula removed at the same time and just wondered if anybody also had problems in this.?  The main problem is tha...

I had a colonostmy done in last Sept. but in the last week I have been having bowel movements though the rectum. Being new to this I am wondering if this sometimes happens. Thanks, Hawk

Anyone have to do that? I just started last week and so far, I hate it. It's not difficult to do, I just am grossed out by it and feel dirty during and after doing it.    Any thoughts? Does it get better? Anyone feel that way too? &...

Help please awaiting removal of the rectal stump as bleeding continued since permanent colostomy surgery due to severe crohns. Just anxious as been waiting on Urgent list since December 2015 meant to have it yesterday was all gowned up ready the...

hi guys i am new to this as just recently got out of the hospital after over a months stay.  I had a hysterectomy and the surgeon punctured my jejunum.  I had my sigmoid colon removed as it was destroyed while sitting in half a gallon...

Hi There I am a 36 year old female married to a 39 year old man who has a colostomy after being diagnosed with colon cancer 5 years ago. Our lives are pretty normal and we go about things the best we can but once in a while the situation gets to...

Hi all,  I have posted before and I have to have the rest of my large bowel removed due to a severe stricture along with severe motility issues which have caused me to be on TPN and do not allow my colon to work.  I know I ha...

Hi, friends.  I have been enjoying the updated topics and reading through your posts and stories.  Though... I'm still looking for another family (families???) who have a boy born needing a permanent colostomy; or an adult ma...

I need some advice on what to expect and encouragement.  I have crohns disease which was very active in the decending colon and rectum. I had a permanent colostomy formed and my decending colon and rectum removed with the hope that it ...

I had my reversal 2 weeks ago and am wondering how long I should wait to have sex any information appreciated. Thanx

I just had to share this.  I just started colostomy irrigation.  I was always getting fecal impactions that were very painful.  By irrigating I don't get the impactions.  I used to take MiraLax, which woul...

Have not been on this site for awhile. Had a successful reversal surgery over a year ago. All went well and am back to normal. Thanks to all for the prayers and support. Robert from OC CA.

  Long story short:  On April 20,  2013 my colon perforated due to diverticulitis.  I arrived by ambulance to the hospital already in full blown septic shock.  I was in the operating room for 5 h...

Almost 4 years to the day when my colon perforated from diverticulitis, walked into a E.R. and had emergency surgery within 5 hours. It was a Sunday around midnight when they began. Honestly I did not think I was going to make it. Thereafter, I ...

I've had an ileostomy for about 3 yrs. Unfortunately it has changed my life soo much that I hardly even go out unless it's for appts. When I had my first surgery done I ended up with a fistula which the doctor fixed. I have a hernia and another ...

Hi All, Im due to have my colostomy reversed in August & I'm getting nervous.  Has anyone had theirs reversed & if so how was your  recuperation?  Any complications?   Signed Gsunshyne      ...

I'll give much more detail about my situation soon, but I have a nagging and very important question to help me sort through things here. I had a botched resection/rectopexy that has left me with a very poorly-functional colorectal area. I've b...

Hello All, Sorry for the long story, couldn’t keep it any short. My 5 month old daughter (twin) was initially (August 2016) undergone colostomy surgery due to colon perforation. Her bowel movements were all well until she developed a sever...

 I would like to know if anyone have problems with ballooning of the colostomy bag and if so could you please email me and tell me about your problems and if you have a cure for it? Thanks Myron

Hi. Two weeks ago I had my colostomy reversal surgery and wonder if others out there would be willing to share their experiences with me on pain, any issues after surgery (what I should look out for) and any long-term issues as a ...

I have a temperory colostomy following removal of an early rectal cancer. T1-T2 i had a few surgery related challenges  but I am now home and getting better.  Coping with colostomy but look forward  to reversal one day . i a...

Hi all  Just a question about a colostomy reversal if anyone has had this done and any problems with the after effects any info would be greatly appreciated 

I had a colostomy for 13 months due to undiagnosed diverticulitis, which perforated my bowel. I had an emergency Hartmann's procedure. My surgeon informed me from the get to that I would be a good candidate for reversal, as he had left 10cm of...

Hi friends, I need some help.  I have had a colostomy since Nov. 09' and a few weeks ago I started having a "KNOT IN MY STOMACH" feeling especially when I stand up, it's better when I am sitting.  Just wondering if ...

Hi,  I am new to the site and had a few questions.   I had to have a colostomy just over a year ago due to a doctor screwing up my back.  I have cauda equine syndrome ( No bladder function and my nerves to my rectum...

Hi is there any one out there who has both a colostomy and a urostomy? I am a 40 yr old female and have a permanent colostomy and am maybe needing surgery to have a urostomy also...Any thoughts would be appreciated............

Hi There I am a 36 year old female married to a 39 year old man who has a colostomy after being diagnosed with colon cancer 5 years ago. Since he has had the colostomy he has ended up in the hospital with an abdominal blockage every year, 7-10 t...

I am just reaching the point where I am able to go out socially for brief periods of time and would like within another month or six weeks to be able to get through a six-hour plane trip. I'd like to hear what people carry in their "emergen...

I named my colostomy Lulu which arrived this past April. I use the pre cut one piece colostomy bags without any difficulty until lately. Now, I have a stinging or burning sensation when I touch or manipulate the appliance. Anyone have a similar ...

Hi I am 42 years old I have a supra pubic catheter and have been told by my colorectal surgeon that I need a end colostomy for nerve damage to bladder and bowel. At the moment I have to manually evacuate my bowel which is horrendous a have three...

Hello all,         & nbsp;    I have a permanent colostomy since 1983 due to rectal cancer (just starting to get used to it!!!) Seriously it does not give me much trouble, skin problems some...

Please can someone give me some advise on an embarrassing problem. I'm a paralytic and keep having accidents concerning my bowel movements.  I feel for my husband who has to strip the bed an help clean me and feel this would essen the ...

hi everyone I'm due to have my colostomy op on the 12th I would like to try to find out  what to expect before and after my op any tips or hints to make coping with life and it better

Is there a store where I can buy supplies ( walk -in )? Not online ?

     hi im nadine i had my colostomy done just over 12 months ago reason for it my coil/iud i had fitted perforated it so got rushed in and woke up in icu with this on me id just had a baby girl few months b4 and my li...

Thanks Wildlife, the things you said to avoid eating are all my favorite things, LOL .I am willing to put those foods aside that's for sure. As far as milking the stoma, when it had my surgery in 07 the surgeon thought I would prefer a flat stom...

Hello, I just wondered if any other members have had a colostomy after giving birth due to bad tearing, etc?  My midwife completely missed I had a 4th degree tear and have now ended up with a colostomy prior to repair surgery and hopefully ...

Does anyone have experience with the best bag to use if you are sensitive to chemicals?

Hello forum readers.  I had a colostomy last August due to complications from colorectal cancer.  My tumor was at the junction of the colon & rectum, so some of each was removed.  It's a long sordid story, but end result is th...

Can someone please tell me how much mucus build up there is from a colostomy, end colostomy? i have an illieostomy and cant manage with the amount and size with my current issues.   I am after how frequent you have to go and pass a mucus ...

i recently wrote to see if anyone had experience with colostomy reversal. Thank you to those that replied. It was both informative and scary. I didnt mention that I had bouts of diverticulitis for several years that was always treated with ...

I have had a colostomy for about a yr. It has been backed up for about 3 day , yesterday it passed painfully LG. Marble like substance. This morning I have a sm.amount of blood from my rectum along with a small amount of tissue like suvstance.no...

Tommy the Colostomy turned 2 on April 1st. Yes, April Fool's Day and we took some portraits to celebrate  This collection is called "Broken Angels Still Fly" by Sean Black 2018      

I am a 47 year old Male that almost died from a colon rupture on 12/22/2017. I had diverticulitis that caused my condition in which I had no symptoms. I was left with a colostomy bag for 4 months and just went through a colostomy reversal on 4/...

Hey, it's Maryland Gal.  I had my surgery July 13th. Surgery went well. Took 6 hours because I had so many adhesions.  My surgeon was able to bring the small bowel through the same hole. I had many other complications that ke...

This video will help explain colostomy and ileostomy surgery.  Joy Hooper, RN, CWOCN & Italo Santana explain the surgery in English and Spanish. If you have any questions concerning the information in this video, please contact me ...

I went running and my colostomy almost disapeared, it shrunk down to almost nothing. I feel discomfort but no pain. Is this dangerous?? Do I need to see a doctor?

I've recently had a colostomy, and I'm having trouble with the bag leaking all the time. I have cerebral palsy and don't think that the doctors and nurses are really taking into account that my lifestyle is ver different because of this. Is ther...

Apologies if I do this incorrectly-- I am not an expert at posting. I am the daughter of a woman who will be 100 (one hundred) years old next week, and has had a colostomy for 9 years.  She has never had formed stools since the colosto...

Good morning all.  Need some feedback please.  I will be commencing my one year anniversary the end of the month with my colostomy. Ended up  in the hospital due to an allergic reaction last week.  Proble...

I have a friend who had a very serious case of colorectal cancer.  Much of his tissue was removed leaving him with a colostomy.  Are there any clinical trials that use stem cells to grow new organs in that area?  Wh...

I am 12 months post colostomy and soon seeking a reversal. Has anyone had trouble with insurance covering reversal. Thanks !

Does anyone have a SCI and a colostomy? I have had a C5-6 SCI for 26 yrs and and after 10 yrs of slow eliminating foods from my diet because of intestinal pain. The pain got so bad Id go without eating hardly anything for days. I had been diagno...

To answer the question about swingers &  the bi-curious I am a bi-curious male it is very hard to find bi-curious males who have a colostomy  so i just wear a longer  "T" shirt & a small colostomy ...

About few months ago I had a prolapsed and herniated intestine which ended up with emergency surgery and 18" less of intestine. I'm having the same symptoms again, except this time I also had the urge to "push". Later that day I e...

Hello all, Had a question bothering my family and I thought I will bring up here to see if I get some feedback. My mom did her colostomy 2 yrs back and she is doing ok. Coping with her new lifestyle. She is a strong lady & a fighter & ...

I was on here in June saying I was considering a colostomy. My husband wasn't up for the idea, well we've come a long way since then, now he's on board. I'm scheduled for the laproscopic colostomy surgery Tues. Sept 9th. After peviously not talk...

Hi everybody  Have been prescribed some pills by the rheumatology, which can cause constipation as well as IBD and IBS. Don’t know how on earth were prescribed something that can cause IBD and IBS while I already had the ileostomy be...

i'm a newby so please make allowances. Last August I had my reversal. Went home after a few days. The aperture (I call it my shrapnel wound) was left open so that it healed from the inside. After about four weeks I went back to the surgeon and ...

Just wanted to know if it is normal for me to be having abdominal pain and discomfort 1 week and 2 days after my reversal surgery?   Also I have been having a burning and stinging sensation down low on my left side but way down below my inc...

After finally finding a flange that worked (convex) - I was still having leakage problems.  My nurse started using paste (I call it caulk) - she placed it around the stoma, flattening it out before she applied the flange.  That leaked ...

Hello, I am looking for information from anyone who has had a ileostomy and then had a colostomy.  How do you feel about the difference beteen the two?  If you had the ileostomy and now have a colostomy are you happy with the chan...

Just looking if anyone has had this problem.   Within last month started taking fibre as was having leaky,watery bowel movement. Now stools better with fiber.  But after every meal i have normal bbowel movements.  Any help vhange ...

Maybe facing resiting of colostomy stoma and just not sure how bad this is going to be.  Have had other problems through the many years I've had colostomy, and not looking forward to the idea of this.  Retracted and mishapened stoma al...

  Thanks. Fran

Hi , i am 18 years old and i had an emergency colostomy done after a gun shot wound to the belly im march. i am having the reversal done on 8/11/10 and totally dont know what to expect . i was in coma while the colostomy healed so i really wish ...

I had a sigmoid colostomy on July 31st and am currently home after skilled nursing care and am having home health care (under managed Medicare). During the first three weeks, I had a small amount of mucous discharge from the "inactive"...

hi my name is jenni and i am 30 years old. i have had my colostomy since last august. It was  last resort after having surgery to try to correct a prolapsed rectum. My surgeon said that the sphincter muscles had gone competely. Anyway ...

Hi all, I need some advice I had a colostomy reversal & hernia repair 9 weeks ago and all seems to be settling down one or two small issues but generally all seems to be ok. My question is do I or should I use anything to hopefully stop a re...

Hi all I am new to this board and colostomy etc.  I had an operation to remove my endometriosis which went wrong and they perforated my bowel and now I have a temporary colostomy until May.  It has just gone 8 weeks since I ...

If so, I'd sure like to hear from you!

Had my colostomy reversed as well as a colostomy hernia repaired a few months ago after having it for around six months. Re connect surgery was successful and I am feeling pretty normal. A very bad case of diverticulitis brought it all on. I ign...

Well I want to start by thanking this community for all of the information I have read during the past three months.   I had emergency surgery on June 10 for ruptured colon.   Ended up with temp colostomy and hernia.  I just had m...

Hi there!! If you read my profile you'll know I'm dealing with a lot. Would love to talk with people who have similar issues. :) :) 

Had a colostomy 5 months ago due to grade 3 sigmoidocele causing complete elimination obstruction. Sigmoid was removed, but the rest of the colon remains. Resection was not done at the time due to severe malnutrition.   I have had ZERO...

Does anyone know is it ok to cut spout off ostomy bag n use clip til normal bags come?

Can anyone see my question?

If your colostomy is emptying the same time everyday, why irrigate? Steve

Has anyone had a parastomal hernia repaired and were they able to continue irregating their colostomy after the repair.  I have several surgeons giving me different outcomes.

Hi I would like to ask for assistance if any of you have extra bags you can help an old lady, I am writing in behalf of her since I wanted to help her.Please.   God bless us all.

Looking for anyone who has gone through ilieus post reconnection. And their stories. I am on day 8 post op and have had no gas passed or bowel movements yet. This is the most painful thing I have ever encountered. My belly is like a barrel and f...

So after 6 days in recovery my wife came home. The stome needed care-packing gauze daily, removal of bandage and gauze. the first day I changed the gauze I did not fully cover the stoma fully, inside it had dried out most likely causing the weap...

Dear friends: I had surgery for colorectal cancer on Aug 22 and have been recovering nicely since then. Since the tumor in my descending colon was too close to my rectum, the surgeon decided to remove my rectum and replace it with a colostomy....

Interesting! There is a lot of publicity nowadays ... Girls Aloud star Nadine Coyle has said she wants to help "smash the taboo" that surrounds people who have to wear colostomy bags. The singer, who is launching a solo career later...

hi everybody!! i am just wondering if any one has had a colostomy reversal and is willing to share any information that may help! Thankyou

Hello I’m Richard. I am a relatively new member, but also new to using this message board. I really need some help please. I’ve had my colostomy a long time and am used to living with it now. However, I suffer from Urge Incontinence, which was ...

We are proud to present Joy Hooper's video on 'What is colostomy?' From Joy: As a Certified Wound, Ostomy & Continence nurse, I feel that I have been given a very unique calling and duty to provide care and education to patients and their ...

Happy New Year to everyone last week I saw this Article and I just wana see how many other people heared of it.?? http://ostomyland.com/mainsite/2011/12/the-end-of -the-colostomy-it-appears-to-be-true/

Hello everyone, I had a question about reversal of a colostomy. I have had my colostomy since I was born and had it reversed just a year into life. Then after another year or so things were not working and I was getting enemas and rashes so the...

Hi Peeps I hope someone can put me straight on this topic. I will at some stage have to have a colostomy for enduring FI following multiple surgeries on rectum for disease and recurrant fistula. I have now been told I have bladder and bowel (no ...

Hi, Finishing FOLOX  ( fingers crossed) early August. Hoping to head off on a trip in early September. Any tips re plane travel, changing bags ( still notoriously unpredictable because of chemo) in planes and coping with heat?  Than...

Hi, Finishing FOLOX  ( fingers crossed) early August. Hoping to head off on a trip in early September. Any tips re plane travel, changing bags ( still notoriously unpredictable because of chemo) in planes and coping with heat?  Than...