About Colostomy | Ostomy Community

FIBROMYALGIA & A COLOSTOMY...ANYONE ELSE?

posted by Txgirl

I was "diagnosed" with Fibromyalgia several months ago. I just now began taking the medication, because frankly, I don't have the "tender points" and my muscles don't give me problems; my large joints do. So I am not sure if ...

Views: 25994 Replies: 72

Irrigation Colostomy

posted by Bettyjoe

Hello I started the irrigation process early this morning. I had everything that I needed with me and for one strange reason or another it did not respond. I placed teh cone in my stoma and low and behold nothing. Wh...

Views: 3624 Replies: 71

Colostomy Vs Ileostomy

posted by kbd

Looking for feedback from those who have ileostomies and especially anyone who had a colostomy that was changed to an ileostomy. A little over 6 years ago I got a permanent colostomy. But now my gastro doctor said because of a bad stricture and...

Views: 1386 Replies: 41

Rectovaginal Fistula And Colostomy

posted by rn3842

I am a neebie and was wondering if anyone has a colostomy due to a rectovaginal fistula. I have had the colostomy since June 2007 and have tried on 4 different attempts to have the fistula corrected. In January I am due to have another repair at...

Views: 20090 Replies: 33

Colostomy Reversl

posted by Lifechange

Hi there. It's been just over 12 months since my colostomy operation due to diverticulitis and peritonitis and now I am waiting to have a reversal. I have developed a hernia behind my stoma (it looks like a perky boob wi...

Views: 1514 Replies: 33

Colostomy Help

posted by Laweiler1

I had an emergency colostomy June 5th and Praise God that I am alive! I am new to this group in hopes that I can meet some people and learn some tricks of the trade! My question or problem is this: I am getting a really good seal and using Con...

Views: 5594 Replies: 28

Would You Get A Colostomy If You Had A Healthy Colon?

posted by jpeters

When I was 20 I inherited a rare neuromuscular disorder. The nerves overstimulate otherwise healthy bowels and cause 12-25 BMs everyday, including 2-3 overnight. I am continent but get very little warning, so I always have to be near a bathroom....

Views: 9527 Replies: 27

Transverse Colostomy Reversals

posted by Biddydi

I am fairly new to this site and have posted comments to other's threads and now am posting my own story. My son who is 38 years old and developmentally handicapped is having his reversal done on Monday, March 26th. He is pretty nervous about t...

Views: 12457 Replies: 26

Colostomy Reversal Now Ileostomy - Help!

posted by Anonymous

I had an attempted colostomy reversal, they found yet another leak and now I have an ileostomy. I am having trouble getting my bag on before any output and it's made the skin below my stoma very red and raw. Anyone have tip...

Views: 20801 Replies: 25

New Colostomy Need Lots Of Advice

posted by Daydreamer

Hi all, had my colostomy on the 1st Dec 2010 and am just getting used to it now. It hasn't settled down to any routine yet and I would be interested to hear about any tips for diet and products and about irrigation also have big problem with pan...

Views: 14875 Replies: 25

Colostomy Reversal & Hernia Repair

posted by Anonymous

Hi , my name is pippa and I am looking for advise and other people's opinion on colostomy reversal & hernia repair it will be getting done all at the same time, which I think is good. I had a colostomy last July through emergency surgery ...

Views: 39443 Replies: 22

FREE Colostomy Bags, Flanges, Supplies

posted by Roseinky

Had reversal 6 mos ago- still sucks...but have supplies to give. 60 Covatec closed end bags, flanges, adhesive, travel bag, etc... not a paying member, cannot advertise in class i fie d s. contact for details..... Roseinky

Views: 25892 Replies: 22

Colostomy Reversal

posted by Anonymous

I have a colostomy and have had it now for about 2 months. My surgeon said it can be reversed and I have a follow up with her in January to hopefully begin the process of testing for the reversal. She said at my last visit though tha...

Views: 3780 Replies: 22

I Was Told Today That I Need To Have Surgery And A Colostomy Bag. I Am A Ultra-newbie.

posted by thefrog646

Hello, Are there any things I need to be advocating for with my surgeon that will make life better with a bag? Don't really know what is possible so Im asking what you have already found out. If you are wearing one, you know what you wish ...

Views: 1288 Replies: 22

Showering With Colostomy

posted by dlgates

Everything I read says be careful not to get your pouch wet, but no one has given me any explanation of how to accomplish this when showering. I'm a new ostomate and my "schedule" is not predictable enough to risk showering with my pou...

Views: 18122 Replies: 21

Flying Within The USA With A Colostomy

posted by survivor48

I have a friend who will soon be flying from TN to N.C. and she was given two cards, one that is blue that said Urgent use of bathroom....guess that is for emergencies and a white one that she is to show to the scanners and they ...

Views: 1208 Replies: 21

Colostomy Reversal

posted by Patrice

Hi Everyone. I had my colostomy reversal on Jan. 30th and am still in the hospital. All indications so far are that it will be successful. The pain isn't as bad as the initial surgery in October so I am hoping my recovery will be better as well....

Views: 13354 Replies: 20

Colostomy

posted by Anonymous

Do you ever forget you have a colo sotmy? Mine seems to hurt all the time. I sseems to burn and bleed a lot. Is that normal? I have had it for about a year and a half and I still have trouble with.&nbs...

Views: 6480 Replies: 20

Irrigation With A Colostomy

posted by Miss Scarlet

I was very unwell yesterday. At midday I started having terrible contractions and my stoma stopped working. Then the pain increased so that it was a constant pain for 1 hour. Then I threw up and the pain lessened only to increase agin...

Views: 16768 Replies: 18

Considering A Colostomy And Have Questions

posted by sissy

Hi! I am considering having a colostomy and would like to know the good, the bad and the ugly. I have a spinal cord injury at the C6-7 level so have no control over my bowel. It has been 16 years now and I have b...

Views: 9162 Replies: 18

Colostomy And 'Popping'

posted by saffa77

Hi all was wondering if you can help me, i have a colostomy now for 3 months and will have it for a further 3 months and then will have it reversed. I have been off work for these first 3 months but will be returning next week and a...

Views: 14497 Replies: 17

Airport With A Colostomy

posted by liamcupra

Ok! abit of postivity here.. ive booked a trip to italy for a week.. but its the first time ive been on the hols since surgery.. what happends when they do a search on me and they feel the bag?? just dont want them thinking i have a bomb on me e...

Views: 2160 Replies: 17

HAVE YOU EVER USED YOUR COLOSTOMY AS A WEAPON?

posted by REDHOTMAMA

A FORMER NEIGHBOR CALLED THE FIRE DEPT. ON ME BECAUSE SHE SMELLED INCENSE COMING FROM MY APARTMENT WHEN THE FIRE DEPT GUYS FOUND OUT THEY HAD BEEN CALLED FOR SOMETHING SOOO STUPID THEY GAVE HER A TICKET AND KNOCKED ON MY DOOR TO LET ME KNOW AND...

Views: 10946 Replies: 16

New Colostomy - How Did You Cope Initially?

posted by Emra

I underwent an emergent colostomy in April. Depression, anxiety, fear...everyday I wake up and my first thought is "was that a nightmare?" Of course the answer is always the same "no." Every pain frightens me....I am also dealing with a sl...

Views: 2022 Replies: 16

Want A Colostomy, Need Advice

posted by crimsonknight3

Hello everyone. I'm trying to cut an extremly long 7 year story short so if you need to ask any questions feel free. Anyway, I have had progressively worse IBS C/D for around abouts 8 years now and I have spent almost the entire of those 8 yea...

Views: 5409 Replies: 15

Colostomy Bags

posted by lovely2bme60

Does anyone know where to get free bags from? I live in Florida with no insurance. Now waiting for ssi decision. Any suggestions? < >

Views: 3572 Replies: 15

Colostomy Reversal

posted by jakenjypsy44

hi there, Anyone out there who has went through the reversal of their colostomy. I have heard good and bad regarding this. I think I would like to hear some more of the good before I commit myself to have this procedure. ...

Views: 48221 Replies: 14

Constipation And A Colostomy

posted by Miss Scarlet

Help I eat a good diet well balanced diet fruit and vegetables, chicken ,fish. All foods which are healthy. I also drink lots of water and decaffinated Tea. But still I suffer from constipation. I have been taking 2 MOVICOL a day for about year....

Views: 28976 Replies: 14

I Am So Frustrated With My Colostomy Situation!

posted by JoyfulPromise

Hello, I have posted before but have not had any replies. I had my ostomy in 2007 so you would think I had it just about down now. However, I have had problems since the onset. First of all, I have Irritable Bowe...

Views: 11805 Replies: 14

Bad Colostomy Reversal. X 2 And A Cry For Help

posted by Daddys_Dream

Is this much trouble comon place? In Feb 2010, they discovered a non-cancerous tumor between my colon and my bladder. I also had diverticulitis. They removed a the tumor and 8 inches of my colon in May 2010. Four days later my colon came back a...

Views: 11921 Replies: 14

Despondent Over Trying To Cope With Colostomy

posted by VeganMidiMan

2 months since colostomy after 5 months of being unable to eliminate due to what was ultimately determined to be a problem with the sigmoid colon. Was needing colon cleanser 2x a day just to eliminate, which created a drastic weight loss. ...

Views: 1952 Replies: 14

After My Colostomy Reversal And Hernia Repair

posted by Anonymous

Hi, just to keep you all up to date I had my operation on the 14th October was in hospital for 5 days I have done very well all seems to be settling down obviously tender and sore. I have been told not to lift anything for a while and certainl...

Views: 22841 Replies: 13

Colostomy And Anus Removal

posted by dentalguy22

hey there everybody, Im looking to hear from anybody who had the surgery to remove the anus, and also had a colostomy done at the same time... my wife Jenny was told today that she needs to have this done due to a anal stricture and diversion co...

Views: 9525 Replies: 13

Hernia As A Result Of Colostomy Four Years Ago.

posted by loann2011

I have a question: Has anyone had surgery on a hernia as the result of a colontomy? I had a colostomy four years ago and since then I have developed a very large hernia. I am considering having surgery, but I am ...

Views: 6167 Replies: 13

Post Colostomy Clothing

posted by Dynodon

I had my colostomy august 2013, I was a jeans man, tall slim built. Has anyone else encountered a problem with wearing jeans? The colostomy was a life changing event in a lot of ways this is only one of my issues. I currently only wear elastic w...

Views: 4630 Replies: 13

Colostomy Bag Concept From A Surgeon

posted by brox

Hey everyone, I'm posting because my nephew has been diagnosed with a severe case of Crohn's. He's only 14 but looks like he's 11. Underweight, smaller than his little brother, can't play football or wrestle anymore. Terrible. However, th...

Views: 3147 Replies: 13

Really Regret Colostomy Reversal - Need Support/advice

posted by K

I've recently gotten a colostomy reversal and I'm completely regretting it. I'm 18 years old, and I went into the hospital last year for a 'simple' delormes procedure to fix an anal prolapse and hernia. During the operation the surgeon sewed a s...

Views: 1583 Replies: 13

Ileostomy Versus Colostomy????

posted by lottagelady

Hi Guys ........ It looks like I will need to make a decision before long as to whether to have an ileostomy or a colostomy which I will have to have for the rest of my life .....(currently have an ileo...) I am fortunate enough NOT ...

Views: 8087 Replies: 12

Colostomy / Ostomy Diet

posted by mis010fit

Is there such a thing as an ostomy diet? I am barely getting any output from my colostomy in at least a month, and I have absolutely no appetite. Last year I was in hospital with what they thought was a partial small bowel obstruction. My "...

Views: 15947 Replies: 12

New To The World Of A Colostomy

posted by ok girl

Well here is the story I am 71 going to be 72 next month. I had a infection and came out with a ileostomy on one side and a mucas fistula on the other. I had that for 3 months and was the 3 months from ____. The doctor got the stoma pointing sid...

Views: 6447 Replies: 11

Colostomy Guards

posted by billba2020

Hello, I was wondering if anyone has any experience with colostomy guards or any protective equipment , i have found some adds are quite overstated. thanks, Bill

Views: 9854 Replies: 11

Colon Cancer With A Colostomy

posted by hometown

Hi all, I am a newbie, but i have been reading all the posts that i can, as i need to hear about otheres problems so mine may not seem so bad. I had emergency surgery in 2009 for a blockage in the intestines, which turned out to be a ...

Views: 6344 Replies: 11

Colostomy Reversal With Hernia Repair

posted by MJMuraco

This is the first time I have posted on this site. I've been reading it for a while and all of you have helped me feel less like a freak and given me hope. I started with this whole thing last May with pain which I chose to...

Views: 10175 Replies: 11

Spanx With A Colostomy Bag

posted by Grammybec

Since my surgery, I have not been able to wear Spanx due to the tightness around the bag area. I got the idea to order the Power Mama Maternity Spanx with the soft sheer tummy panel that grows with you as you...

Views: 4626 Replies: 11

Colostomy For Slow Transit Constipatin And Pelvic Floor Dysf

posted by breatheinbreatheout

Has anyone had a colostomy for Slow Transit Constipation and Pelvic Floor Dysfunction? I'm worried that I will have the surgery and it will not relieve the problem.

Views: 897 Replies: 11

Colostomy Newbie.... Waiting For The Other Shoe To Drop.

posted by LilacFaerie

Hi I am very new to the ostomy world and am finding it all very amusing. I had an emergency colostomy done on the 11th November 6 days after seeing a specialist up at the emergency room at hospital. I knew I was in deep trouble with constipati...

Views: 9425 Replies: 10

New Colostomy After Emergency Surgery

posted by florajo

I had emergency surgery a week ago. Had a portion of colon removed due to rupture from diverticulitis. Released from the hosp on Friday with only a small amount of liquid output from stoma. Since I've been home, I have been eating more solid foo...

Views: 8483 Replies: 10

Colostomy On Monday 12/08/2013

posted by shrek74

hi all i have got my colostomy op on monday the 12th looking for hints and tips to helpwith life before and after the op help on what pain management and moment foodfor my op i have not got any bowel pre...

Views: 3533 Replies: 10

Colostomy

posted by Breezy59oscer

3 weeks since surgery. I have hard time dealing with. When does it get better

Views: 1082 Replies: 10

Colostomy And Diet

posted by sadiegirl

Hi all...first I want to mention what a great site this is!! I'm just new and poking around, but everybody is so supportive and lovely...I wish I found you all earlier I have a brand new colostomy and some questions with respect to...

Views: 6517 Replies: 9

Is This Colostomy Healthy?? (pics Included)

posted by MrsRahman

Its been 2 months of the colostomy, am i doing fine in taking care of it, is it healthy? Baby has devloped a white patch on the corner which sometime disappears. I see some changes in it. It isnt velvetty smooth land wet like it used to. ...

Views: 1073 Replies: 9

Permanent Colostomy

posted by soulscope

Just asking, is there anyone out there who is permanent colostomy, irrigates and uses plugs, i've been for a few years now and would like a chat to compare experiences.

Views: 676 Replies: 9

Pelvis Pouch Or Colostomy Bag

posted by dee05

Hello, my name is Dee. This is my first time writing in a Forum but I am so in need of someone to talk to and to possibly give me some advice. In 2002 I became very ill which I was told at the time it was nothing although I...

Views: 6409 Replies: 8

Iliostomy Plus Colostomy

posted by sierragoldie

I have three outlets in my stoma. One is an iliostomy that is VERY liqued unless I take immodium or something to slow down my gut. The second is what they call a mucous colostomy that for the most part just has clear mucou...

Views: 6363 Replies: 8

Colostomy Reversal / Takedown

posted by jakenjypsy44

Hi, there, I have responded to two mates with questions on this subject so far. All I can say is I had mine done July 1, 2009. I had the take down on the colostomy, 2 hernias and what my surgeon said was a 'tummy tuck'.&nbs...

Views: 14611 Replies: 8

Colostomy Bag Liners

posted by Quickfix

If you are using the disposable pouch liners that are flushable instead of a drainable pouch, you can also use the small bags that people use when walking their dogs and instead of them costing 20 cents a piece they cost 1.5 cents a piece and wo...

Views: 12649 Replies: 8

Night Drainage For Colostomy

posted by GeneralPattyn

Night collection system for colostomy. I was unable to sleep more than about 45 minutes without having to get up and empty my colostomy appliance. I have been trying to find a commercial product like the night drainage syst...

Views: 8481 Replies: 8

Samples For Colostomy Products

posted by OG

My sister will have colorectal surgery for stage 2 cancer in November(3rd). I'm trying to learn all I can to help her adjust to this. I found a great thread here while searching for tips and such, it was very helpful! One big thing I learned is ...

Views: 3451 Replies: 8

Colostomy And Work

posted by Shoobabaloo

Hi all, Has anyone had to take ill health retirement from work due to their condition. What was your experience. I am increasingly finding it difficult to cope with the problems in having a colostomy.

Views: 1987 Replies: 8

Adjusting To A Colostomy

posted by Auntmelmel

Opinions pros and cons of having a colostomy.

Views: 2967 Replies: 8

Irrigation Colostomy

posted by Bettyjoe

Hello I have heard great responses from several folks here that irrigagte. I finally received my supplies today. I received the stoma caps and wafers, in addition to the irrigation it which includes the sleeves, and the other i...

Views: 846 Replies: 8

Colostomy Reversal And Incisional Hernia Repair

posted by Fraidy Cat

Hi, I am scheduled for colostomy reversal surgery and incisional hernia repair in 2 weeks. Has anyone here had these procedures or know of anyone who has with a positive outcome? Everything I've read on line so far is making me want to ba...

Views: 373 Replies: 8

UK Colostomy Association - Help Required ....

posted by lottagelady

Hi Guys and Gals .... A friend of mine is the Editor of Tidings, the Colostomy Association's magazine... The magazine represents the interests of those living with a colostomy, those working in the field of stoma care and industries involved i...

Views: 5845 Replies: 7

Elvis Presley And Colostomy?

posted by mark

I found this article today on Boston Herald. Interesting! Elvis Presley, the King of bacon, banana and peanut butter sandwiches, didn’t die of a heart condition. He succumbed, on the toilet, to chronic constipation. That’s the word from Pr...

Views: 6326 Replies: 7

Lily Allen On Colostomy (Window Shopper)

posted by mark

Hey, I just realized that Lily Allen is singing about Colostomy Bags in her 'Window shopper' song. Here are the lyrics ... and the video: The bottom feels so much better than the top! So much better! Nan you're a window shopper Ta...

Views: 7180 Replies: 7

Best Stool Softener/Colostomy

posted by CarrieAnn

Could I please have benefit of experience on stool softeners? I am taking a new Rx med that is really causing me problems. I am drinking lots of water but I still need help! Naturally, I would like something that...

Views: 14715 Replies: 7

Empty Colostomy

posted by dulcimerman

I have a question to ask but its not for me its for my friend. I have urostomy and ileostomy , my friend has urostomy and colostomy . He has phoned me for advice because since yesterday his colostomy bag is empty yet he is...

Views: 4860 Replies: 7

Colostomy Reversed 6 Mos Ago...where's Normal??

posted by Roseinky

I had an 'emergency' colostomy in May 2010, I was told I had diverticulitis, turns out I had a ruptured appendix causing periotinitis. I wore my colostomy (or it wore me) for 11 months. I had the reversal in April 2011, they also repa...

Views: 5150 Replies: 7

Illeal Conduit, Colostomy, Quadriplegic.

posted by Anonymous

Anyone here have an Illeal conduit? Colostomy?The love of my life broke his neck in 1992. So, 22yrs+ post injury. C5/6 incomplete. He used a condom catheter until 2006. Indwelling catheter placed during emergency surgery to remove kidney stone s...

Views: 3401 Replies: 7

Colostomy Irrigation And Ostomy Plug

posted by Oscar@ carmel

does anyone know how I can order Iry Pump and Iryfix (by Braun) online from other countries? i believe these products are not available in the US (which is a shame). I am a new ostomate and started irrigating about 3 months ago and it i...

Views: 266 Replies: 7

Reversal Back To Colostomy

posted by outsider221

My wife has had a reversal but has been finding that even after 4 years she still has to constantly visit the loo , making her very sore , we are unable to go for a walk any distance unless there are public toilets nearby , we cannot go to the t...

Views: 10618 Replies: 6

New Colostomy From Endometriosis

posted by Rabbit

Thank you to everyone who has already to responded to posts. They have already been a huge help in understanding the differences and what I'm experiencing is normal. My situation was suppose to be a simple non-cancerous mass removal and recon...

Views: 6003 Replies: 6

Colostomy

posted by davers

is colostomy the same as ostomy?

Views: 4968 Replies: 6

Colostomy Reversal

posted by Primadonna

My surgeon tells me you can't get a reversal after four years. Anyone know how long you can wait, i didn't know there was a limit. Mine was done it Dec 2005, he said i'm at a high risk and i have three large hernias too fro...

Views: 5874 Replies: 6

Successful Colostomy Reconnect

posted by BobbyG

Had my colostomy reconnected 6 weeks ago after having a bag for 5 months. Everything is close to back to normal. I am so grateful for all of the concerns and prayers.

Views: 6813 Replies: 6

Do You Need To Follow A Certain Diet After A Colostomy?

posted by Ushant

Hi Everyone, I am one of the silent followers on the site and it is so great to read everyone's blogs even if we don't ever answer. One thing that has been concerning me for a while is that lots of folks talk about eating or not eatin...

Views: 6731 Replies: 6

Colostomy Reversal With Hernia Repair Surgery

posted by MJMuraco

My reversal and hernia surgery is tomorrow, Feb 3rd! I've been on the clear liquid diet since yesterday at 4:00 so I'm feeling quite hungry about now. It's funny how food looks and smells so great when you can't have it.&nb...

Views: 5523 Replies: 6

Harold The Hernia On Top Of Colin The Colostomy

posted by MeiMeerkat

I'm over 2 years down the line from my stoma, and still hate "Colin" with a vengence, still smelly, painful and a nuisance, but a few months ago after getting a bad cold, I sneezed and had terrible pain, but that's sort of n...

Views: 5053 Replies: 6

New Colostomy Patient With Eroded And Blistered Skin

posted by catttters

hello, i was after some advice. im a new patient who had surgery about 3 weeks ago. all was going ok until about a week ago. my skin under the flange/bag is eroded, red raw and blistered. im using mercurachrome to try and hasten the healing proc...

Views: 3597 Replies: 6

Colostomy And Urostomy

posted by Amblessed_0402

Hi all, This is my first post and a bit nervous. I have a colostomy and urostomy cause of cancer. I'm sure there are others like me and was w...

Views: 2767 Replies: 6

Large Colostomy Bags

posted by Rook

Hello, I am new here and was wondering about flying. I am a paraplegic and have a colostomy. I have traveled before and every time I have this huge fear of my bag filling up and popping open in flight. I have checked with the airlines and they ...

Views: 2461 Replies: 6

Colostomy Total

posted by dughot

May sound stupid, but I also had to have my rectum removed/ sewn up. NOTHING there. Is this normal? Further limits the amorous activities of a gay male.

Views: 1100 Replies: 6

Thank You For The Support Regarding My New Colostomy; Update

posted by Emra

June 6th was a terrible day - I was in a depression that was just horrible. I came here and asked about having a new colostomy and asked how you all coped. Your responses helped me tremendously. Our cases are different but my t...

Views: 778 Replies: 6

Left Over Colostomy Supplies For Sale

posted by ycats

I have quite a collection of hollister supplies that are new and unused. If interested please send a cell # so I can send photo of products available. Stacy (ycats)

Views: 289 Replies: 6

Reconnect My Colostomy

posted by DonBrown1943

Just left my surgeon's office. He said my emergency colostomy was due to diverticulitis, not Ulcerative Colitis or Cancer, and it should be safe to reconnect me. I have already had an EKG by my primary care physician and it was clear. However, D...

Views: 156 Replies: 6

Colostomy

posted by susieq

I also live alone but I keep busy by playing bridge with some wonderful friends. I have had a colostomy for a year and a half. I am now going in to have a morphine pump implanted in my back for three herniated disc. I keep busy and live in a co...

Views: 3982 Replies: 5

Colostomy-what To Eat Before/ During A Flight

posted by shakysgirl

Hi Everyone, me and my husband are going on holiday on saturday, our last flight was very embarassing, my hubby had a full english breakfast before the flight and all the way home the smell was really bad, a lot of the passengers was complaining...

Views: 4884 Replies: 5

Urine Problems After Colostomy?

posted by supernan

Hi, does anyone out ther have any experience of urine problems after a colostomy. I had a bladder fistula removed at the same time and just wondered if anybody also had problems in this.? The main problem is tha...

Views: 8277 Replies: 5

Bowel Movement After Colostomy

posted by hawk

I had a colonostmy done in last Sept. but in the last week I have been having bowel movements though the rectum. Being new to this I am wondering if this sometimes happens. Thanks, Hawk

Views: 3399 Replies: 5

Irrigation For Slow Inertia Colostomy

posted by Sunny1978

Anyone have to do that? I just started last week and so far, I hate it. It's not difficult to do, I just am grossed out by it and feel dirty during and after doing it. Any thoughts? Does it get better? Anyone feel that way too? &...

Views: 938 Replies: 5

How Do You Handle Having A Colostomy?

posted by VIK

Hi There I am a 36 year old female married to a 39 year old man who has a colostomy after being diagnosed with colon cancer 5 years ago. Our lives are pretty normal and we go about things the best we can but once in a while the situation gets to...

Views: 5904 Replies: 4

Looking For Children With Colostomy

posted by markndeb20

Hi, friends. I have been enjoying the updated topics and reading through your posts and stories. Though... I'm still looking for another family (families???) who have a boy born needing a permanent colostomy; or an adult ma...

Views: 3882 Replies: 4

Colostomy Reversal, Hernia Repair And New Ileostomy

posted by warmknight

I need some advice on what to expect and encouragement. I have crohns disease which was very active in the decending colon and rectum. I had a permanent colostomy formed and my decending colon and rectum removed with the hope that it ...

Views: 6763 Replies: 4

Recovery Time For Sex After Colostomy Reversal

posted by Morgan bond

I had my reversal 2 weeks ago and am wondering how long I should wait to have sex any information appreciated. Thanx

Views: 11438 Replies: 4

Colostomy Irrigation

posted by Megan

I just had to share this. I just started colostomy irrigation. I was always getting fecal impactions that were very painful. By irrigating I don't get the impactions. I used to take MiraLax, which woul...

Views: 3673 Replies: 4

Colostomy Reversal

posted by BobbyG

Have not been on this site for awhile. Had a successful reversal surgery over a year ago. All went well and am back to normal. Thanks to all for the prayers and support. Robert from OC CA.

Views: 3336 Replies: 4

Open Colostomy Reversal And New Temporary Ileostomy

posted by CelticTee

Long story short: On April 20, 2013 my colon perforated due to diverticulitis. I arrived by ambulance to the hospital already in full blown septic shock. I was in the operating room for 5 h...

Views: 5125 Replies: 4

Having Colostomy Reversal Thursday October 2 2014

posted by SigmoidFreud

Almost 4 years to the day when my colon perforated from diverticulitis, walked into a E.R. and had emergency surgery within 5 hours. It was a Sunday around midnight when they began. Honestly I did not think I was going to make it. Thereafter, I ...

Views: 4126 Replies: 4

Colostomy And Ilestomy

posted by Lesley

I've had an ileostomy for about 3 yrs. Unfortunately it has changed my life soo much that I hardly even go out unless it's for appts. When I had my first surgery done I ended up with a fistula which the doctor fixed. I have a hernia and another ...

Views: 2175 Replies: 4

Reversal Of Colostomy

posted by Gsunshyne

Hi All, Im due to have my colostomy reversed in August & I'm getting nervous. Has anyone had theirs reversed & if so how was your recuperation? Any complications? Signed Gsunshyne ...

Views: 816 Replies: 4

Question Regarding Health & QOL W/ Colostomy Vs. Ileosto

posted by rewinj

I'll give much more detail about my situation soon, but I have a nagging and very important question to help me sort through things here. I had a botched resection/rectopexy that has left me with a very poorly-functional colorectal area. I've b...

Views: 732 Replies: 4

5 Months Baby Colostomy & Jejunostomy

posted by Radhakanth

Hello All, Sorry for the long story, couldn’t keep it any short. My 5 month old daughter (twin) was initially (August 2016) undergone colostomy surgery due to colon perforation. Her bowel movements were all well until she developed a sever...

Views: 520 Replies: 4

Colostomy Gas Ballooning Of The Bag

posted by myron

I would like to know if anyone have problems with ballooning of the colostomy bag and if so could you please email me and tell me about your problems and if you have a cure for it? Thanks Myron

Views: 707 Replies: 4

Colostomy

posted by Malamid

I have a temperory colostomy following removal of an early rectal cancer. T1-T2 i had a few surgery related challenges but I am now home and getting better. Coping with colostomy but look forward to reversal one day . i a...

Views: 201 Replies: 4

Colostomy Verses Ileostomy?

posted by Maryland Gal

Hi, I am new to the site and had a few questions. I had to have a colostomy just over a year ago due to a doctor screwing up my back. I have cauda equine syndrome ( No bladder function and my nerves to my rectum...

Views: 3699 Replies: 3

Colostomy

posted by gorgiepuss

Hi is there any one out there who has both a colostomy and a urostomy? I am a 40 yr old female and have a permanent colostomy and am maybe needing surgery to have a urostomy also...Any thoughts would be appreciated............

Views: 3099 Replies: 3

Does Anyone Get Abdominal Blockages With A Colostomy

posted by VIK

Hi There I am a 36 year old female married to a 39 year old man who has a colostomy after being diagnosed with colon cancer 5 years ago. Since he has had the colostomy he has ended up in the hospital with an abdominal blockage every year, 7-10 t...

Views: 4130 Replies: 3

Having Surgery To Convert Colostomy To Ileostomy. Have ?'s

posted by Maryland Gal

Hi all, I have posted before and I have to have the rest of my large bowel removed due to a severe stricture along with severe motility issues which have caused me to be on TPN and do not allow my colon to work. I know I ha...

Views: 5750 Replies: 3

Colostomy Emergency Kit Contents?

posted by dlgates

I am just reaching the point where I am able to go out socially for brief periods of time and would like within another month or six weeks to be able to get through a six-hour plane trip. I'd like to hear what people carry in their "emergen...

Views: 7797 Replies: 3

Colostomy Irritation

posted by cajunmaiden

I named my colostomy Lulu which arrived this past April. I use the pre cut one piece colostomy bags without any difficulty until lately. Now, I have a stinging or burning sensation when I touch or manipulate the appliance. Anyone have a similar ...

Views: 3245 Replies: 3

End Colostomy

posted by Yayamei

Hi I am 42 years old I have a supra pubic catheter and have been told by my colorectal surgeon that I need a end colostomy for nerve damage to bladder and bowel. At the moment I have to manually evacuate my bowel which is horrendous a have three...

Views: 5701 Replies: 3

Prednisolone And Colostomy.

posted by jandap

Hello all, & nbsp; I have a permanent colostomy since 1983 due to rectal cancer (just starting to get used to it!!!) Seriously it does not give me much trouble, skin problems some...

Views: 3043 Replies: 3

Help With Advice If I Should Consider Having A Colostomy Bag

posted by sssasps

Please can someone give me some advise on an embarrassing problem. I'm a paralytic and keep having accidents concerning my bowel movements. I feel for my husband who has to strip the bed an help clean me and feel this would essen the ...

Views: 2228 Replies: 3

Having A Colostomy On Monday The 12/08/2013

posted by shrek74

hi everyone I'm due to have my colostomy op on the 12th I would like to try to find out what to expect before and after my op any tips or hints to make coping with life and it better

Views: 2020 Replies: 3

Colostomy

posted by Anonymous

Is there a store where I can buy supplies ( walk -in )? Not online ?

Views: 2039 Replies: 3

Colostomy Reversal

posted by sunbeam42

hi im nadine i had my colostomy done just over 12 months ago reason for it my coil/iud i had fitted perforated it so got rushed in and woke up in icu with this on me id just had a baby girl few months b4 and my li...

Views: 2256 Replies: 3

Colostomy

posted by Aileen green

Thanks Wildlife, the things you said to avoid eating are all my favorite things, LOL .I am willing to put those foods aside that's for sure. As far as milking the stoma, when it had my surgery in 07 the surgeon thought I would prefer a flat stom...

Views: 1664 Replies: 3

Colostomy Due To Birth Problems

posted by emeny1

Hello, I just wondered if any other members have had a colostomy after giving birth due to bad tearing, etc? My midwife completely missed I had a 4th degree tear and have now ended up with a colostomy prior to repair surgery and hopefully ...

Views: 904 Replies: 3

Colostomy Bags For People With MCS (Multiple Chemical Sensit

posted by octobersunrise

Does anyone have experience with the best bag to use if you are sensitive to chemicals?

Views: 758 Replies: 3

Questions To Ask Surgeon Re: Colostomy & Ileostomy Rever

posted by Erinbeth

Hello forum readers. I had a colostomy last August due to complications from colorectal cancer. My tumor was at the junction of the colon & rectum, so some of each was removed. It's a long sordid story, but end result is th...

Views: 700 Replies: 3

Colostomy Mucus Amount?

posted by Rosherau

Can someone please tell me how much mucus build up there is from a colostomy, end colostomy? i have an illieostomy and cant manage with the amount and size with my current issues. I am after how frequent you have to go and pass a mucus ...

Views: 241 Replies: 3

Colostomy Reversal Experiences

posted by k.carl

Hi. Two weeks ago I had my colostomy reversal surgery and wonder if others out there would be willing to share their experiences with me on pain, any issues after surgery (what I should look out for) and any long-term issues as a ...

Views: 415 Replies: 3

Just Had Colostomy Converted To Ileostomy

posted by Maryland Gal

Hey, it's Maryland Gal. I had my surgery July 13th. Surgery went well. Took 6 hours because I had so many adhesions. My surgeon was able to bring the small bowel through the same hole. I had many other complications that ke...

Views: 3432 Replies: 2

Pain In Stomach Area With A Colostomy HELP!

posted by Anonymous

Hi friends, I need some help. I have had a colostomy since Nov. 09' and a few weeks ago I started having a "KNOT IN MY STOMACH" feeling especially when I stand up, it's better when I am sitting. Just wondering if ...

Views: 10303 Replies: 2

Colostomia- Colostomy /ileostomia - Ileostomy

posted by GACWOCN

This video will help explain colostomy and ileostomy surgery. Joy Hooper, RN, CWOCN & Italo Santana explain the surgery in English and Spanish. If you have any questions concerning the information in this video, please contact me ...

Views: 3716 Replies: 2

My Colostomy Shrunk Down To Almost Nothing! Do I Need A Doct

posted by Bobo

I went running and my colostomy almost disapeared, it shrunk down to almost nothing. I feel discomfort but no pain. Is this dangerous?? Do I need to see a doctor?

Views: 6483 Replies: 2

Recent Colostomy And Cerebral Palsy

posted by jeff

I've recently had a colostomy, and I'm having trouble with the bag leaking all the time. I have cerebral palsy and don't think that the doctors and nurses are really taking into account that my lifestyle is ver different because of this. Is ther...

Views: 4800 Replies: 2

Colostomy And Constipation

posted by Anonymous

Apologies if I do this incorrectly-- I am not an expert at posting. I am the daughter of a woman who will be 100 (one hundred) years old next week, and has had a colostomy for 9 years. She has never had formed stools since the colosto...

Views: 10049 Replies: 2

Medication And Colostomy

posted by Anonymous

Good morning all. Need some feedback please. I will be commencing my one year anniversary the end of the month with my colostomy. Ended up in the hospital due to an allergic reaction last week. Proble...

Views: 2835 Replies: 2

Advice On Colostomy Reverse Procedure

posted by Anonymous

I have a friend who had a very serious case of colorectal cancer. Much of his tissue was removed leaving him with a colostomy. Are there any clinical trials that use stem cells to grow new organs in that area? Wh...

Views: 2987 Replies: 2

Insuarance Coverage Colostomy Reversal

posted by ze1dude

I am 12 months post colostomy and soon seeking a reversal. Has anyone had trouble with insurance covering reversal. Thanks !

Views: 3169 Replies: 2

Colostomy And Spinal Cord Injury

posted by hopeful 1

Does anyone have a SCI and a colostomy? I have had a C5-6 SCI for 26 yrs and and after 10 yrs of slow eliminating foods from my diet because of intestinal pain. The pain got so bad Id go without eating hardly anything for days. I had been diagno...

Views: 4577 Replies: 2

Bi Curious & Colostomy Pouches

posted by hockey

To answer the question about swingers & the bi-curious I am a bi-curious male it is very hard to find bi-curious males who have a colostomy so i just wear a longer "T" shirt & a small colostomy ...

Views: 2962 Replies: 2

Regular Bowel Movement W/colostomy?

posted by Anonymous

About few months ago I had a prolapsed and herniated intestine which ended up with emergency surgery and 18" less of intestine. I'm having the same symptoms again, except this time I also had the urge to "push". Later that day I e...

Views: 2176 Replies: 2

Colostomy Question

posted by peacenlove

Hello all, Had a question bothering my family and I thought I will bring up here to see if I get some feedback. My mom did her colostomy 2 yrs back and she is doing ok. Coping with her new lifestyle. She is a strong lady & a fighter & ...

Views: 2032 Replies: 2

Considering Colostomy/Liftoff!

posted by jillian

I was on here in June saying I was considering a colostomy. My husband wasn't up for the idea, well we've come a long way since then, now he's on board. I'm scheduled for the laproscopic colostomy surgery Tues. Sept 9th. After peviously not talk...

Views: 2199 Replies: 2

Ilesotomy Acting As A Colostomy !!!

posted by darious

Hi everybody Have been prescribed some pills by the rheumatology, which can cause constipation as well as IBD and IBS. Don’t know how on earth were prescribed something that can cause IBD and IBS while I already had the ileostomy be...

Views: 1770 Replies: 2

Colostomy Reversal, Error In Procedure

posted by Anonymous

i'm a newby so please make allowances. Last August I had my reversal. Went home after a few days. The aperture (I call it my shrapnel wound) was left open so that it healed from the inside. After about four weeks I went back to the surgeon and ...

Views: 855 Replies: 2

Colostomy Reversal

posted by Anonymous

Just wanted to know if it is normal for me to be having abdominal pain and discomfort 1 week and 2 days after my reversal surgery? Also I have been having a burning and stinging sensation down low on my left side but way down below my inc...

Views: 611 Replies: 2

Leakage Solved For An Innie Stoma, Post Sigmoid Colostomy

posted by Emra

After finally finding a flange that worked (convex) - I was still having leakage problems. My nurse started using paste (I call it caulk) - she placed it around the stoma, flattening it out before she applied the flange. That leaked ...

Views: 846 Replies: 2

Ileostomy Vs Colostomy

posted by Sunnyone

Hello, I am looking for information from anyone who has had a ileostomy and then had a colostomy. How do you feel about the difference beteen the two? If you had the ileostomy and now have a colostomy are you happy with the chan...

Views: 502 Replies: 2

Colostomy Reversal/Takedown

posted by arielrodriguez

Hi , i am 18 years old and i had an emergency colostomy done after a gun shot wound to the belly im march. i am having the reversal done on 8/11/10 and totally dont know what to expect . i was in coma while the colostomy healed so i really wish ...

Views: 3199 Replies: 1

Odor Problems After Sigmoid Colostomy: From Rectum

posted by dlgates

I had a sigmoid colostomy on July 31st and am currently home after skilled nursing care and am having home health care (under managed Medicare). During the first three weeks, I had a small amount of mucous discharge from the "inactive"...

Views: 4681 Replies: 1

Colostomy And Also Bladder Problems

posted by jenniwren

hi my name is jenni and i am 30 years old. i have had my colostomy since last august. It was last resort after having surgery to try to correct a prolapsed rectum. My surgeon said that the sphincter muscles had gone competely. Anyway ...

Views: 4810 Replies: 1

Colostomy Reversal & Hernia Repair

posted by Anonymous

Hi all, I need some advice I had a colostomy reversal & hernia repair 9 weeks ago and all seems to be settling down one or two small issues but generally all seems to be ok. My question is do I or should I use anything to hopefully stop a re...

Views: 3643 Replies: 1

Newbie Colostomy Query

posted by saffa77

Hi all I am new to this board and colostomy etc. I had an operation to remove my endometriosis which went wrong and they perforated my bowel and now I have a temporary colostomy until May. It has just gone 8 weeks since I ...

Views: 2589 Replies: 1

Anyone Had Nissen Funduplication Surgery And Colostomy?

posted by Anonymous

If so, I'd sure like to hear from you!

Views: 2437 Replies: 1

Colostomy / Ostomy Reversal

posted by BobbyG

Had my colostomy reversed as well as a colostomy hernia repaired a few months ago after having it for around six months. Re connect surgery was successful and I am feeling pretty normal. A very bad case of diverticulitis brought it all on. I ign...

Views: 5839 Replies: 1

Living With Colostomy And Ileostomy, Some Physical Limitatio

posted by Aileen green

Hi there!! If you read my profile you'll know I'm dealing with a lot. Would love to talk with people who have similar issues. :) :)

Views: 1506 Replies: 1

Colostomy Reversal Guidance Needed

posted by VeganMidiMan

Had a colostomy 5 months ago due to grade 3 sigmoidocele causing complete elimination obstruction. Sigmoid was removed, but the rest of the colon remains. Resection was not done at the time due to severe malnutrition. I have had ZERO...

Views: 679 Replies: 1

Colostomy

posted by Breezy59oscer

Does anyone know is it ok to cut spout off ostomy bag n use clip til normal bags come?

Views: 578 Replies: 1

Colostomy

posted by Breezy59oscer

Can anyone see my question?

Views: 480 Replies: 1

Colostomy Irrigation

posted by honestabe

If your colostomy is emptying the same time everyday, why irrigate? Steve

Views: 185 Replies: 1

Colostomy And Normal Life

posted by Anonymous

Dear friends: I had surgery for colorectal cancer on Aug 22 and have been recovering nicely since then. Since the tumor in my descending colon was too close to my rectum, the surgeon decided to remove my rectum and replace it with a colostomy....

Views: 2086 Replies: 0

Girls Aloud Star In Colostomy Call

posted by mark

Interesting! There is a lot of publicity nowadays ... Girls Aloud star Nadine Coyle has said she wants to help "smash the taboo" that surrounds people who have to wear colostomy bags. The singer, who is launching a solo career later...

Views: 3752 Replies: 0

Colostomy Reversal

posted by demons

hi everybody!! i am just wondering if any one has had a colostomy reversal and is willing to share any information that may help! Thankyou

Views: 3090 Replies: 0

Urge Incontinence And Colostomy Surgery

posted by Anonymous

Hello I�m Richard. I am a relatively new member, but also new to using this message board. I really need some help please. I�ve had my colostomy a long time and am used to living with it now. However, I suffer from Urge Incontinence, which was ...

Views: 2807 Replies: 0

The Anatomical Apron By Joy - Colostomy Demonstration

posted by administrator

We are proud to present Joy Hooper's video on 'What is colostomy?' From Joy: As a Certified Wound, Ostomy & Continence nurse, I feel that I have been given a very unique calling and duty to provide care and education to patients and their ...

Views: 5369 Replies: 0

The End Of The Colostomy? I Am Looking For More Informaiton.

posted by noona

Happy New Year to everyone last week I saw this Article and I just wana see how many other people heared of it.?? http://ostomyland.com/mainsite/2011/12/the-end-of -the-colostomy-it-appears-to-be-true/

Views: 2652 Replies: 0

Colostomy Reversal (VATER SYNDROME)

posted by Sweete07

Hello everyone, I had a question about reversal of a colostomy. I have had my colostomy since I was born and had it reversed just a year into life. Then after another year or so things were not working and I was getting enemas and rashes so the...

Views: 2823 Replies: 0

Pending Colostomy For FI And Surgery For Prolapse Bladder

posted by bobcat

Hi Peeps I hope someone can put me straight on this topic. I will at some stage have to have a colostomy for enduring FI following multiple surgeries on rectum for disease and recurrant fistula. I have now been told I have bladder and bowel (no ...

Views: 1755 Replies: 0