j-pouch discussions

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Danno

J-Pouch Success: Worth the Temporary Good Times?

Apr 27, 2023 - May 17, 2023

Hey!
Just curious... For those on here that have had a good experience with an ileostomy but decided to go forward with the J-pouch surgery anyways.
My question to you is:
Did you regret the pouch even though the good times only lasted for a few years/many years?
If you had good times beyond the "norm" but still ended up back with a stoma, would you do it all over again? Or stick with a stoma? ...

22 replies | 927 views

Franicaa

Sex after J-Pouch surgery: Experiences and advice?

Jul 20, 2010 - Oct 15, 2012

This Friday I'm due to get a J-Pouch which I am both excited and nervous about!!
It says in the books I've read that sex can feel different and painful after having your rectum removed and I was just hoping to hear from some people, preferably girls, about how they felt after having a J-Pouch.
I'm a little anxious because I've been with my boyfriend for over 2 years now and I don't want every ...

20 replies | 44494 views

Read Our Tips For Exercising After Ostomy Surgery.

Hollister

As you recover from surgery, you may feel tired and not interested in exercising much, if at all. But it's important for your health and well-being to start moving around.

Blake9t1

J-Pouch Failure & Fear of Isolation: Gay Man's Dilemma

Jul 15, 2015 - Sep 06, 2018

Hi
I'm 24 and have been fighting this decision since I was 16. I'm really scared. I never thought I would have this type of life and it's hard enough being gay.
But now they are telling me this might be my only choice and if that's the case, what's the point really? Gay men are fickle, I know I'll never find someone who truly loves me if I go through with this. All gay men are supposed to have ...

18 replies | 9519 views

Danno

Comparing J-Pouch and Ileostomy Experiences

May 18, 2023 - May 19, 2023

Hey all,
For those of you who tried a J-pouch and went back to a permanent ileostomy, what was your experience with the quality of the second in comparison to the first?
I understand you lose all the intestines used to create the pouch but I'm curious if it's a completely new learning experience or if there were similarities.
Deciding to get the J-pouch is a tough choice, but I would feel 100 ...

14 replies | 463 views

Exercise, Diet, And Hydration: Do's And Don'ts

Hollister

Once you recover from ostomy surgery and settle into a routine, you'll learn what kind of diet works best for you.
Here are a few dos and don'ts to keep you healthy and active.

Franicaa

Feeling Lost and Confused with My J-Pouch Journey

Jul 28, 2011 - Sep 27, 2011

On the 10th July 2011, my stoma turned 2! Ahh, that fateful day when I was rushed into the operating theatre instead of onto a plane for my summer holiday! But looking back on it, I'm quite glad it happened because had it not happened then, I'd have ended up with a burst colon and septicemia, not something that would have been much better to be honest! So I wished my little friend a very happy ...

11 replies | 957 views

vasile

Discharging from belly wound after J-pouch surgery: Normal or surgical error?

Mar 19, 2014 - Mar 26, 2014

After 12 years of suffering with UC, I've decided to go for a J-pouch 3-step surgery.
Dr. Luca Stocchi @ Cleveland Clinic did my first surgery 2-3 weeks ago. I stayed in the hospital for 2.5 days, then had a 9-hour ride back home. I had a colectomy and was left with a short stump from the anus to the open wound on my belly. I believe he said that he had stapled this end inside my tummy. A week ...

11 replies | 4980 views

waynelewis86

Chronic Fatigue After J-Pouch Failure: Seeking Advice

Mar 02, 2021 - Mar 10, 2021

As I am new here, I would like to explain my issue in detail. I inherited F.A.Ps and had my large intestine removed 26 years ago. Six years ago, I was advised by my surgeon that a bunch of polyps were impeding on the cancerous side. This entailed the J-Pouch procedure, which I had for 8 months until the J-Pouch was connected. Life was normal as possible under the circumstances until 5 weeks la ...

9 replies | 2078 views

pixiebell

Seeking Advice: J-Pouch Surgery for FAP - Weight Concerns & Surgeon Issues

Nov 29, 2011 - Jan 18, 2012

Hey all!
I am about at my wits' end right now and I thought I would reach out and see if anyone can help me out. You see...to make a long LONG story a bit shorter...I suffer from a genetic disease called FAP. After having a colectomy done in 2007, it was found that I was still growing way too many polyps in what is left of my intestine. So...at the suggestion of my wonderful gastroenterologist ...

9 replies | 6102 views

rachel_louise

Bladder pain after J-Pouch surgery - seeking advice

May 22, 2013 - Oct 10, 2018

Hiya, I had an emergency colectomy last year due to UC. I decided to go for a J-pouch and had my rectum removed. The J-pouch was formed 3 weeks ago (I'll have takedown surgery in a few months). I'm recovering very well, no problems at all apart from really awful pain in my bladder when I go to the toilet. I've been on antibiotics in case I had a water infection from the catheter, but still no ...

8 replies | 8180 views

HungryHamster

Looking for Active J-pouchers on this Site

Dec 22, 2017 - Dec 29, 2017

Good evening,
As some of you know, I had my J-pouch surgery late last month (23/11/17, to be exact). Whilst everything is going quite well thus far, aside from a rather large and unexpected abdominal wound that had to be opened to let an infection heal, I feel as though I've lost part of my support network with this surgery. As the name of this site suggests, this is a site for ostomates. Simp ...

6 replies | 2895 views

HungryHamster

Successful J Pouch Formation and Ileostomy Reversal in One Step

Dec 01, 2017 - Jul 29, 2021

Hi,
I had my J pouch formation and ileostomy reversal done all in one step last Thursday (23/11) and I can proudly say that, after a particularly straining 8 months, luck has finally come my way. I was extremely concerned that a two-step J pouch wouldn't work because the method my surgeon uses is nowhere to be seen when scouring the internet for stories. Rather than removing the colon and form ...

6 replies | 4610 views

ManderPanderz

Seeking advice for jpouch surgery recovery and flare-ups

Nov 24, 2013 - Sep 20, 2014

Hi everyone! I've had a membership to this website for a while... but I haven't actually been on it until now. I had jpouch surgery about a year ago, and I got to say, it has not been an easy ride. I am in a constant flare-up, and it seems like no doctor can help. It affects my entire life. I have to force myself to eat; I have absolutely no appetite. I'm always so tired and weak that I have t ...

6 replies | 5315 views

rmgilby

J-Pouch weight struggles and fatigue - seeking advice

Oct 01, 2013 - Jul 15, 2015

Greetings,
I'll start out by stating that I'll try to keep this message sensitive, but will be totally honest. Weight is hard for anyone to talk about, but with our diseases, it appears that there isn't a happy medium - we're either trying to gain or lose weight. I've had a J-Pouch that has been functional since 2010. I gained a lot of weight between surgeries (3) but was able to lose it all - ...

5 replies | 16213 views

AndrewD

Seeking Advice: Removing Disconnected J-Pouch - Worried About Scar Tissue

Feb 15, 2021 - Feb 17, 2021

Does anyone here have a disconnected J-pouch that just sits in their pelvis? I want this pouch removed but scared to death to go through another major surgery due to scar tissue issues from past surgeries.

4 replies | 1788 views

susanmiller129

Reversing Ileostomy: Personal Choice or Medical Necessity?

Sep 29, 2010 - Jan 01, 2022

I recently had an ileostomy in February. Unfortunately, I had a doctor who completely misled myself and my mother into believing that I wouldn't need a bag and he could reconnect my colon. He completely betrayed my trust and needless to say, I won't be going back to him again. I've only recently decided to find a new gastroenterologist since I was so betrayed by my previous doctor. Anyways, I ...

35 replies | 28255 views

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