Hernia with Colostomy, Ileostomy or Urostomy

hi everyone, I am hoping someone can help me.  On December 1st I will be having surgery for a hernia repair.  But this one is different from a normal hernia repair.  One year ago I had my hernia repaired  during emergency surgery because of a blockage.  I got very sick because of a bad infection in my wound which turned into sepsis.  It took months for me to heal.  Needless to say the...

Sorry I haven't been around much recently - here in the shadows, but have been having a very down time with loads of added stresses ...  anyway guys and gals ..... I need your help. Went for my pre op assessment today ..... (waste of time, but that's another story ....)

I have a HUGE hernia, which is to be repaired with mesh, with a probable resite of stoma - and possible hysterectomy due to...

Well friends once again I'm in need of information. A little background, two months ago I had to buy new jeans so I got them a couple of inches larger than normal, next I put on my braces to keep my pants from falling to my knees. As i sit here now, no braces, no belt, top button open. This started about two weeks ago after getting some sharp pains above and below the stoma and a circle about s...

Hi Everyone< > I would like to keep the conversation going on the topic of parastomal hernias and the repair/success of surgery. I am hoping to get more info from others and restart this important topic. I had my surgery in Hamilton in 2010. My bulge is complicating how well my flange stays attached to my skin, plus it exaggerates my belly. Is your stomach still flat? There have been many advan...

a melon sized hernia appeared overnight.. it is uncomfortable but im worred about a few things..
i want to have a hartmans reversal in 12 months and im worried if it will affect the reversal,.. they want to do the op at the time of reversal, but if it gets any bigger and  if they have to operate sooner, will that reduce chance of success?

Also im worried about bowel strangulation as i alrea...

Hi.  Has anyone had surgery to their hernia which involved them putting the mesh in and then allowing it to close itself as tissue grow over it??

I believe this is one technique they use .... how long does it take and  is it as successful as closure when in surgery?

Rach xx

 I have a parastomal hernia and have been told, by a surgeon, it is common with an ileostomy.  Two ostomy nurses measured and ordered a hernia belt for me.  It is a Nu-Hope belt supposedly fitted to accommodate my size hernia/stoma.  Problem is, whenever I wear it my stoma bulges out as though it might pop.  Not a pretty sight and not comfortable at all.  They tell me to try wearing it fo...

Hello everyone, well I received the verdict of the scan of my belly .... and indeed I have a hernia around my stoma ..... grrrrrrr ...

I am quite tired, after a ostomy, the year after an operation for a pilonidal sinus (it hurts like ....) and this year a Hernia .... will it ever end ???? ....

Well there, I let off steam ... thank you for reading me :) good.

Now I would like to have your exp...

So, I've had a hernia since September but it's grown and gets hard/soft for days at a time.  My ENT nurse and surgeon are referring me to a hernia specialist.  I've also just been diagnosed with a rare,, incurable vocal disorder (I haven't been able to talk for 9 months) so needless to say I'm pretty overwhelmed right now.

I just had a hernia operation a week ago. I irriagate and when I tried it wouldn't work. How much times does it take. Or shouldn't I be able to right away??

I had surgery in the Fall for a parastomal hernia. I've recently noticed another slight bulge(not as large as the original hernia) and have felt some pain, a kind of constant burning sensation. It's not debilitating, but I definitely feel discomfort. I've also noticed that I get a sharp pain right before there's a surge of effluence in my pouch.  This is very different from the way things wer...

So I have one!    How come I was never informed about it coming?   Could I have prevented it?  Now what do I need to know?
Will it get bigger and bigger?   Will I wind up in the hospital because of it eventually?  Will I sneeze one day and rupture it and make it bigger and cause an emergency?

These are all good questions and I have and no answers.    

Here is my short story about my lif...

i have had an ostomy for over 50 plus years and have slowly been developing a peristomal hernia.  has anyone else develped this issue, how and when have they dealt with the hernia. 

When and why do we have hernias fixed and they always seem to come back i have had a parastomal hernia (HUGE) had the mesh done and my old stoma site has more scar tissue so now i hear that the sparastomal hernia has come back really does my head in these operatrions never seem to work but saying that I have crohnic severe nerve damage folks please read storys as i would never have had 9 operat...

Hi all,  I was just wondering if anyone else out there has ever been given any guidance on swimming or doing Aquafit with a large  (well, the size of half a melon!) hernia?  I am desperately trying to lose weight and am now trying Slim Fast as I can't eat any green veg or normal diet foods, but I thought some exercise might help and as I am so restricted with that as well (bad heart means...

Has anyone who has a colostomy along with a hernia had surgery to repair the hernia? What is the recovery time, do you find it was worth to do the surgery?

Thanks

Diana

I'm going blind (and not finding what I know much be out there) looking at the websites -- so maybe someone can lead me in the right direction.

I'm interested in getting a support belt. Not one of the narrow ones that attaches to the pouch and just holds it down better against your body.

Something wider (hopefully not too cumbersome) that goes around the body, supports the abdominal area, a...

I have a question:  Has anyone had surgery on a hernia as the result of a colontomy?  I had a colostomy four years ago and since then I have developed a very large hernia.  I am considering having surgery, but I am afraid that it would pose more problems.

Seeing a lot of talk about hernia, and people who have had numerous surgical repairs.  I have had a hernia for 3 yrs now but aside from the unsightly bulge around my stoma, it causes me no discomfort or pain.  Do I need to have it looked at?  How bad do they get before surgery becomes an issue?

Tim

Was wondering if anyone developed a parastomal hernia after a colostomy surgery. Would really appreciate comments/answers to the following:

Were there any bothersome symptoms such as pain at the stoma, tightness and pressure around it, bloating and obstruction of stool or gas? Any serious complications for example strangulation? How did you deal with them? Did you need to have surgery to r...

Hi everyone.  It has been awhile since my last post.    I am at home recovering from hernia surgery.  I had 4 repaired.  one parastoma under my stoma,  and 3 incisional   I still have 2  one in each groin,  but because I was under for 5 1/2 hrs.   My surgeon saved those for another time.    He repaired the one  under my stoma and also made my stoma smaller   ( which is good ) ...

Hi, I have an extremely large, heavy & painful stoma hernia (2nd one in 2 yrs).  My GP contacted surgeon staying he advises urgent surgery. Surgeon says (without seeing me) I've to wait 12+ mths.  I almost have to "carry" my hernia around, suffer excruciating pain and constant leaks. I'm virtually housebound and desparate.  Can anyone advise me how to seek help/who to appeal to please? Thanks

I might be ovet analyzing but I think I have a hernia but every ct scan I have says it doesn't detect one. Ive had 3.... is it possible that the scan missed it? I have a slight bulge near my stoma and some discomfort especially when sitting. Please help... thanks

This is the first time I have posted on this site.  I've been reading it for a while and all of you have helped me feel less like a freak and given me hope.  I started with this whole thing last May with pain which I chose to ignore because I was afraid of cancer.  Many people in my family have had cancer and I was three weeks away from my son's wedding.

When it got bad and I went to a s...

I Have a huge hernia which has given me pain for the last 3 months . Today I seen my doctor  and she wants me to see my Gastroenterology ,to see if I have any infections like chrones . I was diagnose with UC . Has anyone had hernia repair and can you give me any info about it . Thank you .

Hi,

I am scheduled for colostomy reversal surgery and incisional hernia repair in 2 weeks.  Has anyone here had these procedures or know of anyone who has with a positive outcome? Everything I've read on line so far is making me want to back out!!

Hi everyone. I always said I was chicken shit to have the reversal done cause of pain. Now I have a hernia that can only be accessed by cutting me open. I've decided to go for the reconnection. Surgery is early Dec. I so wish it was behind me, no pun intended.

I really like this site, to know there are people going thru or already been through things that I knew nothing about when I first got ...

I have my first time Peristomal hernia surgery booked end of August but I’m nervous of re-occurrence and complications. Anyone that has had this procedure help shone some light on it for me and reassure me whether I should or should not go through with it?  Thanks 

Has anyone had a stoma prolapse and had to have their ileostomy moved to the other side of their abdomen along with an abdominal hernia?

Ugh! Dr office never got back to me.. but I coughed funny today and my stomach on right side was highly protruding out! I have been having internL issues that feel like my colon is in spasms! ( I have a urostomy)! 
I put in two hernia belts today and tried staying busy because I am scared to death over this small hernia I have. I called dr office today, told me if I have intense pain, vomiting ...

Hello fellow Ostomy Persons



Can you help with this dilemna, I've only been an ostomer since, May

frustrating sometimes, Best bag for hernia or bulge mine keep breaking off Hollister Bag and tape

thank you for your response

Hi Everyone!

I'm hoping someone knows what to wear for a hernia that's under the left side of my stoma. In April 2009 I had to have my bowel, anus and back wall of my vagina removed due to cancer. I've made a miraculous recovery, so the Doctors say.  I was expected to die beings I was in the high 3 stage they said.  Seeing my Surgeon a few weeks ago I showed her the large lump under my st...

Hello all. My husband had a colostomy at the beginning of December 2021 to remove the primary tumour of his stage 4 bowel cancer. He had had ulcerative colitis for years.

Despite our best efforts to avoid it, he has already developed a large parastomal hernia. It is perfectly symmetrical and makes him look like an upside down breakfast bowl has been pushed under his skin with the stoma in the ...

Hi everybody. Very sure that I have a peristomal hernia.  Is it dangerous wth an illiostomy?

I've had my stoma for many years now,and it has changed my  life for the better as not having to rush to the toilet and having accidents,which were extremely embarrising, i feel more in control and the crohn's is undercontol. The only problem i've had is reacurring hernias around the stoma site. I've had three repair opperations but a couple of months later their back and get very large,to th...

I have a large pararstomal hernia with my intestine involved. I have been told that it could cause need for emergency surgery. I wear an ostomy belt made specifically for me to support the hernia. Does anyone have any thoughts on this? My first thought was I wish I had known about how valuable it is to support the abdominal wall. If I had known this three years ago, I wouldn't be in the fix I a...

(Ileo Dec 09 with no hernia to this point)

Was out in the garden today doing some stuff ... this evening I have a pain very close to my stoma. It's not constant, but when it comes it's a fairly sharp pain -- is this a hernia pain

Sigh - You want to the know what makes me want to put my head through a wall ... I just got a hernia support belt. While I was in the yard, it was in it's box on t...

I  have been living with horrendous complications from my August 2017 colostomy. I’ve had to deal with leakage problems due to my numerous hernias. I have tried every company out there to no avail!  No one could seem to help me. I was so desperate, I called the Ostomy Association for assistance. They referred me to a top notch ostomy nurse at Scarborough Centenary hospital, Toronto. Immedia...

Hello,

I had surgery in February and in April I got a cold that had me coughing for weeks.  I started having some discomfort close to my Ostomy when I coughed. My Ostomy provider thinks that I may have a hernia and she has ordered a belt for me. I’m still waiting for it to arrive. 
I understand that this is pretty common, but I’m wondering if people just live with them for long periods of...

Photo attached. Since last night I've had liquid output. I can hear gurgling. No pain, no fever. I changed my bag because it leaked from the diarrhea and my stoma has a little purple around the middle of the column part. Is that normal? It also seems that the skin on my belly around it is a little raised, but in not sure if it has always been slightly raised and I never noticed. As my stoma is ...

I saw,some reading how Ostomy folks are more likely to get a hernia, than most non osties. Well..how do you know this? Pain? Bulging at the site? I do have something resembling a boob, growing at the site. The right side is much larger than left. Its not tender nor giving me pain but damn is gunna happen? As a mechanic, I dont even think about hurting myself but am getting older,and perhaps rec...

Hi,

Am brand new on here but not to health problems. What I am stuck with is this. 3 months ago my surgeon told me I needed a hernia repair around my stoma as I had a large mound under and around stoma. On the day of the operation they changed their mind and said as my condition had become much worse and I had just undergone surgery on my right leg, which I lost all use of due to blood clots, ...

Hi everyone!  I hope you are all doing well or better.  I would like to return to irrigating, but I have developed a hernia around my stoma which is rather large.  I plan to look into a repair in '15.  Anyway, I'd like to know if it is okay to irrigate with a hernia around the stoma.  Does anyone have experience with this you'd like to share?  Thanks bunches! XO!

I had a parastomal hernia repair 10-30-13. Released 11-03-13. The wafer and pouch applied after surgery stayed in place until 11-04-13. Upon removing surgical equipment, I noticed stoma was flat with skin and stool was oozing between skin and wafer. Question...how long will that remain? Is that normal? What to use on skin during this time to alleviate excoriated skin. I see my doc and surgeons ...

I have ostomy on my left lower abdomen. For the last year I have been experiencing a burning sensation from left hip bone to left edge of ostomy. No pain but the burning at times is very uncomfortable. I have a nice size raised area underneath the sticky portion of my wafer hence making the wafer on the left side pull away from my skin and having to change it. I seem to be changing it every day...

Today I saw my surgeon (after not having to see him for 4 years!) and he told me my colostomy and very large hernia are here to stay. My insides are too messed up for him to try any more surgeries on my abdomen. He did tell me though, that I need to wear a binder for the hernia with a hole cut out for the colostomy. He said there are some out there that can be made specifically for your needs. ...

I am wearing a hernia belt 24/7 for a peristomal hernia.  The skin underneath is severely irritated. red and itchy.  Driving me crazy.  Want to rip the thing off.  Any suggestions?

I would like to know what excises or yoga can I do that will not hurt my hernia?

Hi i am a new member here but i wanted to ask if someone else might have ended up with a peristomal hernia after receiving a colostomy, i had surgery in 2021 in august and have developed a hernia right behind the ostomy, i have had to make a belt to help relieve some of the pain im experiencing and was wondering if anyone else might be having the same problem. if so i have written up an ideal o...

I think I have a hernia near my stoma. I just noticed a small bulge on the right side of my stoma. I just got home from a 4 day inpatient hospital stay. I was dehydrated from increased out put and pain. I had no other classic symptoms of stomach flu or flare like symptoms. I got a CT scan, X- ray in hospital.

How did we miss this hernia? should I get an ultrasound? 

Also my stoma has looked ...

Hello everyone,  does anyone have any info regarding urostomy hernias?  Do they get worse as we age?  Is surgery an option, etc.....Thank you for your time.

Eileen, ( Love this site)  

This may sound silly considering the size of some members hernias, but how big should one let them go before having them repaired. Ed

I irrigate everyday and was always successful with it. I now have three large hernias and find it impossible to clean out my colon all the way, being blocked somewhat with the hernias.  Usually an hour or two the remaining works its way out then. I tried less and more water but still the same results.    Anyone else have this problem with hernias and irrigating?

Hi I have had a stoma for six years now following colorectal cancer.I developed a parastomal hernia about  a year ago. I recently stupidly moved a washing machine now I have slight pain if a stool  is touching the stoma or when it moves just before it passes through the stoma. Also I wear Corsinell support boxers which unfortunately tend to promote pancaking. Can anyone help please.

I am concerned about a parastomal hernia that I was just recently told that I have. The surgeons offered me the option to have it repaired. It is fairly small at this point however, it is causing me some pain and is protruding enough that it is visible under clothing and is causing some difficulty with keeping my appliance on for very long. 

I was wondering if anyone has had this issue and di...

I Recently developed a parastomal hernia. Months prior to that, I was starting to work out more and more. I still walk daily, but, I would still like to do some strength training. Specifically, my arms. Are there any exercises I can do to strengthen my arms without putting any strain on my abdomen? I tried doing some, but, I can't help but feel there is some strain on my abdomen still. Thanks.

The 28th I go for a  consultation don't know what to expect, I have developed a hernia where my Stoma is and the hernia is large and I'm due for a  reversal. Can anyone tell me what might happen, will they do both at once?  I'm so afraid 

My reversal and hernia surgery is tomorrow, Feb 3rd!  I've been on the clear liquid diet since yesterday at 4:00 so I'm feeling quite hungry about now.  It's funny how food looks and smells so great when you can't have it.  I'm nervous and anxious for tomorrow to come.  I pray all will go well and all of you on this site have helped me with all of your encouragement and information.  ...

4 months from ileostomy surgery for Bowel Cancer. I have developed a hernia under the stoma. I ordered a hernia belt to wear for physical work. It is a bit uncomfortable at times but is bearable. At the end of the day, I noticed my stoma protrudes almost an inch and actually hangs down into the bag a bit. Seems to go back when I lay down and/or change the bag along with the hernia. We use a con...

I just spent forever typing a message an lost it..ugh..wow an I was on a roll..ok I'm gonna try one more time..now..I have a colostomy had rectal/anus cancer..since then had surgeries for hernias...obstrutions...all in all I have been hospilitized at least 7 times after my cancer surgery...had surgeries for hernias an obstructions..last time was a big mess..had hernia repair..had more small int...

I'm over 2 years down the line from my stoma, and still hate "Colin" with a vengence, still smelly, painful and a nuisance, but a few months ago after getting  a bad cold, I sneezed and had terrible pain, but that's sort of normal for me, as I'm a paraplegic, however , since then "Harold" appeared, and now sticks out about 5 inches on top of my horrible fat tummy.  When I eventually showed ...

Hello,

happy 2022! I've got a new issue.. I'm used to lifting weights, lifting heavy stuff in general, I'm always moving furniture working on my truck and most recently with one other person moved a heavy STOTTS Pilates machine. Not long after that while doing Pilates and just everything... my tummy hurt all the time and my right side by my stoma was bulging out. Ok, doctor said I did have the...

Hi Guys and Gals ....

It seems just recently that people have been saying that hernia repairs using mesh have caused problems.

I would be very interested in anyones stories as it looks like my surgeon will be repairing my huge hernia in that way ...

Good and bad stories please so that I can make an informed decision!

Rach xxx

Hi,I'm once again suffering from a parastomal hernia,biggest problem apart form the discomfort is the bag becomes more noticable :( I've tried various belts but i find them very cumbersome,Anyone any ideas. 

I just came from the surgeons office. I have 2 hernias,one on my left side near my ostomy and one on my right side. I saw the surgeon in Aug. 2016. He said he would recomend me losing 35lb if I could. Well I lost 41lb. and he said he can fix them now.  I'm scared to death because he may have to move my ostomy site. I asked him where he would move it to, He said a little higher or possibly to t...

Ok, I talked about this before... it was confirmed last week that I do have one... it's small but to me of course feels big.

I need to hear feedback how one deals with this?

I was doing my Monday shower and pouch change this morning and my hernia was out and about. After I shower, and prepped my Ostomy which was kind of hard today due to my hernia... I massaged the area and when I put in my p...

Does anyone else have pain with their Parastomal Hernia !?  !! And if so, What helps with the pain !?

HI IS THERE A FELLOW OSTOMATE OUT THERE THAT KNOW'S MUCH ABOUT PARASTOMAL-HERNIAS?? 4 MONTHS AGO I HAD SURGERY FOR A HERNIA AND AT THE SAME TIME THE SURGEON RE-FASHIONED MY STOMA, THEN AFTER I HAD BEEN HOME FOR 4 DAY'S I GOT AN ABCESS AND ENDED UP WITH PERITONITIS AND HAD EMERGENCY SURGERY. ANYWAY 4 MTHS LATER MY HERNIA HAS COME BACK?? IS THIS NORMAL AND WHAT IS THE SUCESS RATE WITH A HERNIA R...

Hi Everyone, 

I was reading some older posts on hernia belts. Is it a good idea to wear one from the start? Will it prevent one from happening? I had my surgery March 2020 and my stoma nurse never mentioned it. But it sounds like it is the worse to get a hernia. 

Thanks

Hi, 

As part of my last operation, I had an abdominal reconstruction. My surgeon said that I have a 1 in 4 chance of getting a hernia and advised me to not lift anything heavy too strenuous etc. 

I am 43 years of age and feel very frustrated as I would at least like to build up my strength in the gym. I am paranoid about every twinge I feel in my stomach. I would just like to do some light ...

I am having considerable discomfort  with my hernia although I seem to have read somewhere that they seldom hurt mine does - do any other members suffer this?  Also how big is "big" with regard to this kind of hernia, I have to lie back on the bed for a while before I can change the bag (which makes going out for a day difficult) - anyone found an answer for this? I mention member lottagela...

HELLO TO ALL. IS THERE ANYONE OUT THERE IN CYBER-LAND KNOW ANYTHING ABOUT PERISTOMAL HERNIA'S?? I'VE HAD MY HERNIA FOR BOUT 18MTHS NOW BUT THE LAST COUPLE OF MONTH'S THE HERNIA IS TWICE AS BIG,MY STOMA IS RETRACTING INSIDEME,I'M BLEEDING ALL THE TIME, THE PAIN IS UNBEARABLE, ALSO THE STOMA KEEP'S TURNING AN OFF WHITE COLOR?? COULD ANYONE GIVE ME SOME ADVISE ABOUT WHAT I SHOULD DO. THANKYOU VE...

I have a Parasomal hernia. I was never told about this happening.

I understand it is quite common and mine is small by some standards I am sure.

I suspect, but I wonder how large it could get.  I ware a belt every day but take it off at bed time as Gravity is less.  It recesses when I have the belt on. I'm a heathy and very active 74 year old and was operated on 4 years ago.  The hernia ap...

Hi, I have just joined the site and looking for anyone who has had a Hartmann's reversal and abdominal hernia repair done at the same time. I had emergency surgery in April and nearly died due to infection and my wound didn't heal for about 2 months I cannot have the hernia repaired without having a reversal and Iam really scared as I had no intention of having a reversal for a while as I feel ...

living with a, parastomal hernia, as anyone had treatment if what was the outcome

     This is a letter sent to my Doctor from my Surgeon, has anybody been through the same procedure?. I wonder what you feel my chances of sucess are?.

     " Further to my last letter on Mr Hughes, his contrast imaging does confirm he has a very short rectal stump, probably only 8cm in length. He does appear to have a reasonable amount of left colon which, if fully mobilised would...

got another hernia!!already had 2 fixed but this time its not an emergency  was wondering how much discomfort is normal??

For 6 years, I lived with a large softball-size hernia around my right-side ileostomy. Abscesses developed around the stoma, while my doctors just "watched it." For several years the abscesses had to be lanced and packed with moist gauze. I recently underwent my 5th revision, during a 12-hour marathon surgery. I now have a very nice "tummy tuck." Post-surgery, I began experiencing 3 leaks per d...

  I am wondering if anyone else has this problem,  I have a colostomy, 2 and 1/2 years ago.

  6 hernias,  and  just about every other day I wake up with nausea,   then after up and about it go's away,   is this normal   it dosen't happen every day  maybe 2 or 3 times a week.

 

Folks,

Suggestions please.  I've developed a para-stomal hernia.  Any suggestions on a hernia belt would be much appreciated.  I wear the convatec 1 1/4 inch surfit flexible product.  Saw a surgeon yesterday, he's not inclined to do surgery and I'd like to keep it that way.  Thanx in advance.

Mike Q

Hello! I had my iliostomy since may 2018. Developed parastomal hernia in July and seems to get larger and larger throughout the day.  I have terrible back pain pretty much constant when I'm on my feet too long. Does anyone else have this problem and if so, what do you do for relief? Thanks! 

How do you know if you have a parastomal hernia?  Is it painful?  I realize there is supposed to be a 'bump', but I've gained 20 lbs. since surgery (sigh...........) so can't go by that.

My main question is what could cause pain around the stoma area - like deep inside pain, not skin surface pain.  Could that be a hernia?  It isn't a blockage because I have output - actually yesterday was ...

Had my colostomy almost a year ago (abcessed diverticuli).  Have since developed a hernia under the stoma and wear a NuHope hernia belt all the time except for sleep and showering.  My problem is the stoma now sticks out so far (was once a cute button) that it lays flush against my pouch.  Any output at all sticks to the bag, gumming up and creating a real mess.  My insurance will only cove...

I have had illeostomy for 35 years. Over the last ten years I have struggled with a large hernia at the stoma site and over the last 2 years multiple hospitalizations for obstructions. I had a hernia repair at the stoma site (fot a much smaller hernia) quite some time ago. The last time I was hospitalized the surgeons and gi folks said if the obstruction occurs again I should have surgery. They...