Ostomy and Pain

I have been seeing a lot of comments these days about living in the moment and I think that I finally get it!

There have been times when I am in pain. But, OH how great I feel when the pain is gone and I realize that I am not in pain anymore.

It's easy to know when I am in pain or discomfort from my ostomy. But when the pain and discomfort is gone, I don't always notice that. So, I have s...

Hi, this is my first time here, thank you all for sharing, this forum has been a partner since i got my surgery. This is my story: 

10 weeks ago I had a hemicolectomy after an intestinal invagination and a tumor removed, in total they removed about 20 cm, the surgery went well but after a few days the suture failed and they had to operate again, putting me an ileostomy to take care of the hea...

I've had my stoma for about 10 months now. Over the months I have had some issues with skin irritation right at the edge of the stoma, but for the last month or so the skin at the bottom of the stoma has been extremely irritated and painful. Every time I change my pouch I put Neosporin on the area. When I empty my bag I clean it with soap and I add foaming Neosporin and rub it around the affect...

Has anyone out there who has a permanent ileostomy and you get so much pressure and a pain shooting up your rectum while just standing there where it literally makes you drop and brings tears to your eyes??

I have been getting these shooting pains one once a week  or once every two weeks     It puts me in a sweat and it only lasts from a moment to maybe three, but there is such pressure...

I don't have a clue because I've really had no one tell me how a stoma is supposed to feel. Mine has always been painful. I've told my dr for a year now when I visit. Is it almost always painful with an ileostomy?  I had my husband take a photo today of it clean after bag change. Is mine supposed to look like this? I don't know if I'm supposed to add a photo of it here directly  or not? For s...

Hi all,

About 8 months ago, I (ilostomy '09, proctectomy '11) started hgaving some intermittent, occasional pain to the right of my ostomy (about 1 to 1.5 inches from the stoma).

Saw GP who seemed to ask the right questions and said it was probably muscle related (ostomy working fine). I had had a particularly active few months ... so with my poor abdominal strength/muscles, his diagnosis s...

  Hi everyone, 

How many of us have or still have pain and or cramps after surgery?

It's been over a year since my colorectal surgery. The lower portion across my lower stomach and on the outer side around my stoma (not next to it) I have intermittent pains or cramps. I was wondering is this normal? Do any of you experience anything like that, and does it go away? Usually it happens when li...

Hi All
Some of you might be knowing that I am a colorectal cancer survivor and I am almost 7 years past my treatment. For the last 4 weeks, I have been having this pain in my butt. I consulted my doctors and they gave me antibiotics and penicillin shots. However, there is no discharge, swelling or foul smell from the back. The pain is mostly felt when I sit and my job is such that I have to sit ...

 I woke up this morning with Pain on the right side of my ostomy  ( left sided Ostomy ) with some swelling, low output , very little and in a streem looking stool  could I be constipated or  maybe something else going on  I have never had this problem before.  I did have quit a bit of Pasta salad yesterday  could this cause the problem.  .

 

Ok guys I literally have no idea what is going on and it doesn't make sense.. help.

I have having intestinal pain and have for 2 days now but I drink water all day and have a drip drop. I have having output that is normal .

Any ideas ? 

Hi All,

i have an ileostomy and for a week now I’ve been having pain in my abdomen mostly on the right side. The pain is now travelling about and the area around and behind my stoma is swollen.  I’m very aware after I’ve eaten of the food moving through my intestines which I’ve never felt before and I’m feeling a lot of pressure as if my insides are about to burst!  I’ve had two ...

I have had my ileostomy since the end of last year and started back to work in february on modified duties. My employer is going against what the doctor has recommended and is trying to get me to lift 25kg, I tried some stuff thursday and friday of last week and this whole weekend I have been having pain around the stoma as well as some throbbing pain on the stoma (feels like it anyway). Could ...

Had my colostomy done 3 weeks ago and still recovering.  Been having very bad, acute pain episodes, generally after eating something but not always.  Pain can go on for 4 to 8 hours and sleep, if I can manage it, is the best cure.  I've been attributing these to gas which gets trapped.  Is this what you call blockage?  I've tried all sorts of precautions and remedies. Tried Gas-Ex, he...

So, I posted once before about the constant back pain I now have since surgery. Well, at my second follow-up I brought it up to my doctor who "assured" me that he's never heard of such a thing.  Am I just crazy or aren't there plenty of you out there who now suffer with back pain.  I should mention I have an ileostomy.  Needless to say, Christmas shopping has been just about impossible be...

hi ya all well ive had my (eric) stoma had a full one with a stump left if you get what i mean since feb last year its been a real tough year and this year ive had 2 blockages in less then 2 months
i mean i eat all the right stuff and drink plenty i had real bad pain the othe day for 24 hours i was sick and the pain got real great i went to the hospital to be told by the xray dept dcs that no ...

HI ThERE I JUST HAD AN END ILEOSTOMY DONE ON 7TH SEPT 2010 HAD EVERYTHING TAKEN AWAY PLEASE CAN SOMEONE HELP ME MY BAG KEEPS LEAKING AND WHEN STOMA MOVES I GET PAIN BEHIND IT THAMKS ANY HELP WOULD BE APPRECIATED

It has been 2 1/2 years since my first surgery and 1 1/2 years since my permanent ileoscomy. The problem I'm having is the constant feeling that I have to crap.. I had this feeling initially but it passed in about 6 months. Now it's back and I get no relief no matter what I do. I've tried ice, heat, and (a little kinky) used a massager.
  Don't get me wrong the massager has four little feet ...

Hello all. I am just under three years past surgery where I went from a j-pouch to ileostomy and Barbie butt. Just two days ago woke up having major pain. Probably could be phantom rectum but also get pain in the lower back and some lower abdomen burning. I have had no issues here since 3 months after surgery where I became septic due to a hair in the closure causing a tiny hole.  It hurts to ...

Hi does anyone of you guys get cramps in the back of legs any suggestion greatly helped as keeping me up at night

I have never suffered from back pain until now.  I am now 4 weeks post op and find the littlest amount of walking and/or standing causes me terrible back pain. Even when I'm sitting down I must prop pillows behind my back to avoid the pain and discomfort. I'm wondering if anyone else had this problem post-op.  I'm hoping this is maybe because I had a large incision cut down my belly.  Any...

Has anyone developed pain in their joints since having their ostomy,s.I have very bad shoulder pain,as has a friend of mine.But only since our sergery.

I don't exactly know how to approach this problem so I'm asking for advice. Just had a rectal removal and suffering pain whether I sit or lay down. My surgeon gave me vicodin which really doesn't help that much. This is a weird drug cause if I take it I cant sleep and to be honest just doesn't help at all. Is there anything I can do to get a different type of med and what did you do to control ...

Me again!

 

i was just wondering what kind of pain is normal after 7 weeks from surgery?

 

My scar is still very itchy to start with. I get sharp pains at times in my sides, abdomen and chest, especially when I am trying to get to sleep. I get pain in my back too. Nothing unbearable, just uncomfortable most of the time. I also get burning pains in my abdomen too. I only take paracetamol, ...

Been lurking for a month and want to give Kudos to all for sharing their knowledge and experience.

Back in the first week of May I had bleeding diverticulosis and after the first surgery there was a leak that caused (for the life of me I can't think of the word) an infection which required a second operation to drain the area that resulted in the Ileostomy.

So last week I met with the surgeon...

Hello 

I have incredible pain around stomacon skin. They determined it’s nerve pain. The skin is hard and raised and inflamed. Nothing works for any relief. I’ve tried every bag, cream etc even had two nerve blocks. I’m doing scar massage as they did say it’s dermal scaring . Last resort is a steroid shot next week. Has anyone had anything like this?

I had my Colostomy in 2007 and it herniated so I had to have a repair done for a Paristoma Hernia along with a Ventral Hernia, Is it normal for my stoma to still hurt? and have a rash around it all the time?

Hi! 
I made my first post a few days ago with my story and some questions but it was very long but I have one question I wondered if anyone knew what this pain could be. 



I’ve had my ileostomy since December 6th 2021. I had 11 surgeries in 11 weeks. 
A few months ago I started getting this stabbing pain to the right of my stoma about an inch away. 
It was a very minor pain before so I didnâ...

It's been 10 days since my ileostomy reversal - thirteen months after cancer surgery. I'm in the throes of agony dealing with ULARS  (ultra low anterior resection syndrome) which I hadn't heard of until last week. Not one person in my medical team ever mentioned there would be anything more than some incontinence, frequency and urgency issues - all of which go away. I've learned differently. E...

Hello everyone!!

Even though my pain I am about to speak of doesn't stem from my ostomy or Crohn's I feel I must share with you how I have finally found relief.

I have suffered from lower back and neck pain from a car accident in 2003  since it happened. Living with the pain from Crohn's and this pain has not been fun at all. There are days I really wish someone would just kill me. I have ...

hi everone can anyone give some real advise about scar tissue pain??? I have had 8 abdominal surgery's the last being 2008 i have got unbearable abdominal pain i have been on high pain reief but have had enough i am going to pain management they are going to try muscle stimulation with electrodes i have no feeling on my scars the first few layers skin .I have been told i have refered pain as i...

i am waiting for a date to have my rectum removed after lots of surgery that started with the old piles that didnt go to plan.had to have a colostomy now having chronic peri-rectal pain so no other answer for it.not looking forward to it as this will be my ninth visit to theater in 18months.any one else had this problem

It's been five weeks since my UC got the better of me and I had to have a permanent ileostomy. Really been doing well but three days ago I started having stabbing, burning pain at the stoma site. Doctor today tells me it could (probably is) nerve related. Means it too is likely PERMANENT? OMG. What now? This pain is significant and comes with no warning. I'm not sure I can handle it. Does...

hey you guys i have hd the right hand side of ileostomy 8 weeks things seem to be going alright but i am waking 4 times a night to empty bag anyone have this trouble

Hi all, as you can see from my profile im new to all of this, since my surgery 8 weeks ago everything has just got better ever day up until two days ago, ive started to get a pain around my stoma, it feels like its coming from inside it,maybe a patch of around 2 inchs, (like something is twisted) . Its not blocked and the stoma itself seems fine, really hurts when i stand up

Anybody have any ...

Does anyone have suggestions I could request from my doctor to control intestinal pain? seems everything that passes my lips causes pain, even water. I have taken my percocets but even they are not working, they seem to be more of a muscle, joint pain reliever.

I am just wondering what people do now a days for pain management??? I was on pain management for many years.....weaned myself off because felt I didn't need it every day. Now I have a partial bowel obstruction and am told to go home and take Tylenol????? Really??? If Tylenol was working for me I wouldn't come to the ER!!!!!! I am a 16 year survivor of stage 3 colon cancer and have been on and ...

Hi everyone. I am having temporary ostomy surgery on 6/6 and am very nervous about a lot of things. The two things I worry about the most are what will the pain level be when I wake up from surgery and for the first couple weeks. Also I am very nervous about just getting used to the visuals of the stoma. I have a very weak stomach and usually get very nauseous and have passed out many times in ...

(Ileo Dec 09 with no hernia to this point)

Was out in the garden today doing some stuff ... this evening I have a pain very close to my stoma. It's not constant, but when it comes it's a fairly sharp pain -- is this a hernia pain

Sigh - You want to the know what makes me want to put my head through a wall ... I just got a hernia support belt. While I was in the yard, it was in it's box on t...

So, I foolishly wrote that once I started taking stool softeners the rectal pain and pressure had subsided.  Well the honeymoon is over.  I had relief for a total of 2 days and WHAM it has hit me again with a vengeance.  I'm miserable.  I literally had to spend the entire afternoon in bed the other day so I could lie on the heating pad against my rear.  Does anyone have a recommendati...

Hi, posting again. 
Having a few issues with Stanley the stoma tonight. 
Changed my bag this evening and had runny dark brown shiny output literally pour out for about 10 minutes before I managed to get a bag on. 
Got a bag on 4 hours ago and since then I’ve had a very small amount of runny dark brown output which came out straight away and nothing since. 
Had a wave of nausea and thought I w...

Hiya I had a emergancy colectomy last year due to UC, I decided to go for a jpouch and had my rectum removed & jpouch formed 3 weeks ago (ill have take down surgery in afew months) I'm recovering very well no problems at all apart from really awful pain in my bladder when I go to the toilet. I've been on anti biotics incase I had a water infection from the catheter but still no better! Did anyo...

I had a total proctolectomy less than a month ago so my body is indeed still healing.

 

However, every night when I lay down, I get stabbing pains in my gut. The pains move and hours later I wake with either a bag full of gas or liquid output. The pains are no fun. If I massage my belly, gas is let out into my bag. Therefore I am quite sure they're gas pains...But why? And why did I never ha...

I am trying to gather as much information as possible in regard to my pain in my Anus. Its very specific and on the right side. My surgeon felt it was nerve damage. I begin to read about the pneudual (sp?) nerve that goes to the rectum and during pelvic surgery it can be damaged. After 8 months of excruciating pain, not wanting to take pain medications, he sent me to a anestisiologist (sp?) to ...

When did you start to feel better? I’m almost 3 weeks out of surgery and they placed an ileostomy. Diverticulitis with major complications. Ended up being 8 hour surgery to remove all infection and abscesses. And had to take ovary and Fallopian tube. I also 4 months ago had double knee replacements not knowing I’d be dealing with recent surgery. I’m struggling with mild abdominal pain and...

Hi Folks

I have had an ilieostomy for almost 50 years as a result of Chrohns. My large intestine and rectum were removed. Everything has been going pretty well but... I have been having lower pelvic pain on the side of my stoma that also transfers into my lower back. I have had the pain for almost 3 years. It is not constant. Several days ago, the pain was more concentrated closer around the s...

I had a temp ileo in 2011 for 11mons due to a Carcinoid tumor in my rectum. I had a Lower Anterior Resection with Meso Excision (lymph nodes removed). I have been reconnected for 5 mons and overall things are doing well.
I would like to hear from others who have had this type of surgery and still have your rectum and colon. I have pain sometimes and pressure like the feeling of something down ...

hello, I was wondering if anyone else has experienced the discomfort I have had ever since my colostomy following the discovery of rectum cancer 12 weeks ago,  

I am unable to get comfortable sat upright as it feels everything is all being squashed inside. I sometimes also get a tugging feeling at the bottom of my stoma,  

Above my stoma is swollen and it feels like I have to hold myself as...

Crohn's Disease w/ ileostomy, 48 yo woman. Having constant upper back/abdominal pain, which used to happen only with a blockage, but now occurs every time I eat. Have had small gut dilated twice in last three months, but no relief. Doctors want to do surgery and cut out 10 cm below my 'willy' (stoma), then start remicade or humira. Don't want to do either. Anybody out there with similar experie...

hi has anyone got crohns disease i suffer painful joints in my feet and lower back 18 years living with crohn's but i have had different x-rays and nothing shows up    can whoa give me any clues or is it i'm getting older 41years old anyone info would be appreciative thanx mooza         

Hey all, I had my Barbie butt months ago but I still notice that I have bladder pain/discomfort. Has anyone else experienced this, especially other men? What should I do?

I have been an ostomate since 1971-age 21 with Crohns being the cause. As with many ostomate said, I have had several resections, 2 hernia repairs, revisions...you name it, I've been thru a lot! I am presently experiencing sharp pains right above my ileostomy stoma...in the area that would be 1:00 if you were looking at a clock. I had surgery in July 2014 for hernia repair and a revision of ost...

Hi everyone, I am looking to see if anyone out there has had numerous surgeries due to continuous infections. I have been off work now for 3 years battling this issue. I have had surgeries after surgery and always  told this will be the last. I now have 2 pockets of infection; 1 in my rectum and 1 tucked up behind my uterus that is the size of a soft ball.

Does anyone else get these issues ...

I saw my surgeon on Tuesday of this week.  He stated that my CAT scan showed some inflammation around the stoma area and there is no stones in my Gaul bladder.  He stated that what I may be feeling is the inflammation or trapped gas.  He said there is not much he can do for the pain.  He doesn't want to go back in as it is too soon. He said that there is a possibility that later on I can be...

Just wondering if anyone suffers with excessive mucus from rectum, I've had my colostomy for 3 years and just yesterday I had really bad pain in rectum, I passed loads of mucus but still had pain like a hot poker up my bottom, I then passed a really hard solid lump of grey mucus, is this normal , what do I do , uncomforatable when standing, can't see stoma nurse til Monday, any tips?

Does anybody have severe pain and blood/plasma leaking from their stoma? 

At age 37, Linda Brashier battled Stage 4 cervical cancer, undergoing grueling rounds of chemo and radiation. Slowly, she beat back the cancer and recovered, but realized she would probably never have sexual intercourse again. The scar tissue inside her vagina (caused by radiation), made intercourse too painful and made it impossible for her to have intercourse without pain. Doctors prescribed ...

Hello Everyone< >  < > Not sure if this is the right place to get an answer but I am hoping to get a feedback. For the past two weeks I have been having a bad upper right adominal pain. It is just below where the chest cavity ends. I had scans and xrays and there are so signs of a hernia or anything major except for gaseous bowels. It causes me a lot of discomfort especially when I sit. I also hav...

I'm newbie ilio 7 weeks ago rectum removed sutures were removed  no drainage but still experiencing sharp pain having problem sitting or lying down.  Is this normal and will go away or will I have to sleep in recliner the rest of my life.  Also stoma which I lovingly refer as Ripley[Alien] has developed an additional discharge opening at skin level. stoma is no longer nice oval but oval w...

I don't know if anyone else has had this problem but... after trying beta blockers and calcium blockers which just made my slow heartrate slower, the cardiologist advised me to take a potassium pill every day and I have been for more than a year now.  Sometimes I just get tired of taking pills, mainly vitamins, so about a month ago I started slacking off and the last couple of weeks my feet h...

hi would anybody ever come across a pain in rectum simlar to pile type pain? have had colostomy for 5years with this unexplained pain for 18mths any ideas would help

I am pretty sure there are many of you who have had problems with gas (or wind, as my Europeian friends call it).  I am having a horrible time with this and need suggestions.  Gasex and peppermint tea are not helping and my normal medication regime that I have set up for this is also not working.  I know that I am not blocked as my stoma is releasing fluid but it seems like the horrible gas ...

It has been 5 months since my ileostomy and I am now having abdominal pain just above my belly button.  It really hurts when I cough.  I first thought maybe a pulled muscle but now the pain is getting worse without coughing.  Has anyone had this problem?

I have been having fairly constant semi-sharp pain below my stoma for a few weeks. I am not sure what's causing it but I'm not obstructed. I think it might be gas pain but why does it feel stuck in that area and never leaving?

Since my surgery for an ileo in mid march I have had 2 blockages..The first on was 2wks after the surgery but it was only partial..cleared itself out after I drank the ct scan prep..I was sent home..May 20th was the killer..Full fledged blockage..never felt it coming on at all..Had nothing to do with anything I ate..I was loaded with adhesions..was gutted like a fish from top to bottom..They we...

About a week ago I sneezed and felt like I pulled something on my left side next to Sophie(stoma), the next day I could not walk unless I held Sophie in my hands and luckily I had the
weekend to recuperate.  But on and off since then I get some bad pain/cramps I don't know what to call it but it hurts and sends chills all thru my body and I get very nauseated and try to throw up.  I tried ...

Does anyone else have pain with their Parastomal Hernia !?  !! And if so, What helps with the pain !?

I have a colostomy, I don't know if that makes a difference in the color of you stool.  But usually the senna I take makes mine bright yellow.  For 3 wks. now I have stomach pain and dark green stool, haven't changed diet or drank anything with dye.  Any suggestions, pain feels like burning ulcer?

I need to know if, as a resident in Spain and being 72 years of age, will I get free prescriptions for all my medication and stoma appliances.

Pleas can anyone reply to my question

Does anyone have any suggestions for pain management such as creams that could be applied to the bum area? Had my colon removed over a month ago and the only thing that gives me any pain is that area. It is almost unbearable. 

I had my colostomy on 07/23/21. I was in the hospital until 08/04. I'm 60 lbs down and had nothing but ice chips for a week before and week plus after surgery. Now that I'm up and moving again, my calves and shins are aches and on fire. I've voluntarily put the compression stocking back on. Did anyone else experience this? Does it go away?

I wanted to know if anyone has their gut hurting after operation, not right after but as time went on....It has been 2017 for my operation and still feel things in my gut...everyday it reminds me...maybe I am still healing after all this time....hard to say the time limit on it....anyone care to tell me your experience...I have no idea if this is normal to go on this long.....and feeling like t...

It has been 5 months now since bladder removal surgery...had a CT scan yesterday and urine collected through stoma catheterization.   Everything good news.  Now today I'm having pain in and above my belly button.  My cancer center is 4 hours from me...as well as my urologist, surgeon and oncologist.  What could this be????

I just returned from the hospital where I was treated for a nasty infection around the stoma amongst other medical issues.  Some areas around the ostomy were so broken down that tried and true remedies (nystatin, skin barrier wipes, etc) were not working and I could not get a bag to stick.  The pain was so unbearable I was treated with morphine and hydrocodone throughout my stay.  Fortunatel...

I have had a complete colostomy completed in April of 2010.  Since than I have been taking dilodid to help aleviate the pain that I feel in my abdomin.  My gastro says it is because of the Cohrones and when it acts up, it decreases the size of my small intestine to pass anything.  I know that dilodid doesn't hurt any organs, but it is a pain in the ass to take it all the time.  Does any...

Does anyone have problems with bloating with gas pain post- op colostomy. It’s been 1 days after surgery. Need suggestions so I’ feel better during recuperation 

Hello! I had my iliostomy since may 2018. Developed parastomal hernia in July and seems to get larger and larger throughout the day.  I have terrible back pain pretty much constant when I'm on my feet too long. Does anyone else have this problem and if so, what do you do for relief? Thanks! 

I had the last bit of my bowel removed 3 weeks ago and have been closed up and healing well. Today I have a really nasty pain where the wound is on my bottom, it is gradually getting worse and even hurts to walk, I don't understand how or why this has come on so suddenly, I'm worried something has gone wrong

If anyone has had this procedure and has any answers or advice I would really appreci...

I like to read the comments and questions. It helps to not feel alone and know that I can be comfortable asking awkward questions. So here goes another awkward question. I struggle to keep the out put from my colostomy soft. I take stool softener and fiber, that definately helps. However, now and then the stool hardens, which is normal for me. Then when it passes it is too large and hard and st...

Hello

 

I had the Ileostomy operation 3 weeks ago and have had my waste diverted to my small intestine via stomac bag which will be reversed in a few months time.

I keep on feeling to go to the toilet and passed some fluid a few times but nothing major.

I keep on having sharp pains at the rectum especailly when i sit for long periods. Rectum feels dry and tight.

Is this normal and has any...

Hi,

This is my first post and hoping that someone might be able to help.

I have had an ileostomy for 42 yrs (was 10 weeks old when I had my surgery due to UC) Had my rectum and anus removed at age 7.

Thankfully I have been relatively problem free, through the years, but recently I have been experiencing pain around the left side of my stoma, it's a rather sharp pain that feels tender to t...

Hi can anyone help me .i had anterior resection of rectum last march ......I'm in so much pain I can't sit on my bum ....I'm bleeding and pass loads of mucus .

On the 1st of march I had to have a permanent colostomy with and APR due to rectum cancer.
Since then I have had so much pain in my anus/tailbone area. I can only seem to stand and sit for about 20 min at a time before I have to lay down because of the pain. The other thing is I also seem to have pain in my man jewels...sorry for that but I need the help. Is this normal and when should I be get...