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Jan 24, 2020

What to Expect After Ileoscopy/Proctolectomy Surgery?

The topic is about what to expect after undergoing ileostomy and proctolectomy surgery, particularly for someone who has been dealing with ulcerative colitis for many years. This person is preparing for surgery after other treatments have not been successful. Here are some helpful insights and advice for anyone in a similar situation:

- **Recovery Timeline**: While a general guideline suggests about four weeks for recovery, experiences can vary. Some people feel relatively normal after three weeks, but fatigue might persist. The first few days post-surgery can be the most challenging, with various medical devices in place. It's a good idea to discuss with your surgeon what to expect.

- **Showering**: Most people can shower once staples or dressings are removed, usually around two weeks post-surgery. Some prefer to shower with the appliance uncovered and use a hair-dryer to dry the skin.

- **Pouch Emptying**: Initially, you might need to empty your pouch every 1-2 hours, but this often settles over time. Larger night-time pouches are available to reduce the need for frequent emptying at night. Setting an alarm or adjusting late-night eating habits can also help.

- **Diet and Hydration**: It's important to experiment with your diet and consult an IBD dietitian. Initially, avoid foods like corn and popcorn, and chew thoroughly to prevent blockages. Stay hydrated, as ileostomates can lose more fluids and electrolytes.

- **Stoma Placement**: Work with a stoma nurse to mark potential sites for your stoma, considering your usual clothing and lifestyle. Avoid natural waist creases and think about the pros and cons of different placements.

- **Clothing and Accessories**: Consider clothing options like high- or low-rise trousers, suspenders, and ostomy wraps for comfort and concealment. Some people choose larger shirts to hide the bulge.

- **Supplies**: Before and after surgery, request free samples from suppliers and stock up on necessary items like wafers and pouches. Try different systems and accessories to find what works best for you.

- **Practice and Leak Management**: Leaks are common in the first year as you learn what works best for you. Practicing with a demo pouch before surgery can help, and keeping extra supplies handy is wise.

- **Support and Education**: Joining support groups or online forums can provide valuable advice and camaraderie. Having family and friends around during recovery can also be a great help.

- **Psychological Adjustment**: Adapting to the appearance of a stoma can be challenging, but many people find that focusing on the improved quality of life helps them adjust over time.
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