This topic is about the contrasting views on ostomy websites, where some find them to be a source of positive community support, while others, like certain healthcare professionals, are skeptical about their value. Here's a look at the experiences and advice shared by those who have been part of these communities:
- The poster attended an annual ostomy exhibition organized by local hospital stoma departments, stoma nurses, and suppliers. They go to these events to explore new innovations in support wear, underwear, and swimwear, and to collect free samples like deodorants, wipes, sprays, and wafer-reinforcing tape.
- During the event, they met their former stoma nurse, who complimented their appearance and invited them for a future appliance review. However, the nurse advised them to avoid ostomy websites, suggesting they could be depressing and filled with misinformation.
- Many community members highlight the value of online forums such as UOAA and Meetanostomate.com. These platforms offer emotional support, shared experiences, humor, and a sense of belonging, reminding people that they are not alone.
- To maintain a positive mindset, it's helpful to remember life before surgery to appreciate the relief from pain and the freedom from urgent bathroom needs. It's important to recognize that a stoma doesn't define who you are; your attitude plays a significant role in your quality of life.
- A practical tip shared is to add about 5 cc of ordinary vegetable oil to the pouch to help reduce pancaking, especially when commercial ostomy lubricants aren't available.
- Not all healthcare professionals view forums negatively. Some, like an ostomy nurse on the forum, recommend UOAA for educational purposes and MAO for peer support.
- Community members often share their personal progress, such as weight gain, returning to normal routines, and feeling "like a real person," to inspire and encourage newcomers.
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