Color Logo for MeetAnOstoMate
Sponsored by Hollister
Login   |  
Forgot password?
 
Forum
Videos
Reviews
About Us
Color Logo for MeetAnOstoMate
Where Everybody Understands You
41,403 members
Jan 16, 2021

Scary Recovery After Ileostomy Takedown - Seeking Support & Advice

This topic is about a person who is experiencing severe abdominal distention eight days after having an ileostomy reversal surgery. This surgery was done following a procedure related to a C. difficile infection. The person is concerned about whether this is a normal part of recovery or if it indicates a dangerous complication. Here are some key points and advice shared in the discussion:

- The person is experiencing extreme abdominal bloating, to the point where their abdomen looks as if they are nine months pregnant. The staples from the surgery are pulling apart, and the midline incision is leaking.
- There is very little stool or gas output, which is unusual.
- Despite these symptoms, the person's vital signs and lab results are normal, and they do not have a fever.
- They are on a liquid diet and had a nasogastric tube in place for several days, which was removed after some success.
- The person is trying to stay active by walking in the hallway, doing light squats, marching in place, and practicing gentle yoga.
- They spent four days in the ICU and are now on a regular hospital floor.
- An abdominal X-ray was done and reported as normal.
- Current treatments include an IV magnesium drip and subcutaneous Relistor (methylnaltrexone).
- The surgeon believes the bowels are still "asleep," a condition known as post-operative ileus, and suggests waiting.
- The patient is feeling fatigued and isolated due to COVID-19 visitor restrictions, which is affecting their mental health.
- The person who posted this feels that something isn't right and is looking for experiences, support, and practical suggestions.

Advice and insights from the discussion include:

1. Eight days of severe distention is not typical. While a prolonged ileus is possible, other issues like an obstruction, twist or kink, hernia, or an anastomotic stricture should be ruled out quickly to prevent serious complications like perforation or leakage.
2. Further evaluation is necessary:
- A CT scan or MRI with contrast should be ordered, as a plain X-ray might miss obstructions.
- Endoscopic assessment or scopes may be needed if a stricture is suspected.
3. It's important to escalate care by insisting that the primary surgeon reassess the situation personally. If needed, request second and third opinions from other surgical or gastrointestinal specialists.
4. Be assertive in seeking care. If the patient is too weak to advocate for themselves, friends or family should step in to help.
5. Generally, 3 to 4 days without bowel function post-surgery can be normal, but 8 days with increasing distention is excessive and requires urgent attention.
See full discusison
Gray Logo for MeetAnOstoMate
MeetAnOstoMate.org

MeetAnOstoMate is a remarkable community of 41,403 members.

“Every morning with my coffee, I read here and feel wrapped in warmth - I hardly post, but it still feels like family.”

“Our oncologist literally wrote down the link; they said more patients need this website.”

“This place pulled me out of the dark. I went from lurking to living again.”

“At 3am, someone’s awake somewhere in the world. I’m never alone here.”

Join Free

Popular Topics

Hello from Georgia
Affordable Alternatives to Deodorant for Pouches
Not Exactly an Introduction
Seeking Support for First Family Gathering Post-Surgery
Dealing with Body Odor: Tips and Solutions
Seeking Alternatives to Adhesive Ostomy Bags
Irritated Skin Around Stoma
Medication Absorption Tips for Ileostomy Patients
Black Polyp on Stoma: Seeking Advice and Experiences
Close Call

New Topics

Finding My Rhythm
Rings
Important information regarding proposed changes to how Medicare/Medicaid will treat ostomy supplies.
What do you call it?
David Letterman's Top 10
Other Autoimmune Issues
Heaviness and Pressure Near Anal Stump After Surgery
Radiation and Chemo Effects on Colostomy
Bicycle or Moped for Post-Surgery Transport and Exercise Advice
Best Electric Body Hair Shavers for Stoma Care
About us | Privacy policy | Terms of use | Ostomy Blogs | Ostomy Q&A | Guides | Contact Us
This site is protected by reCAPTCHA and Google Privacy Policy and Google Terms of Service apply.
Copyright (c) MeetAnOstoMate.org All Rights Reserved
Create Account
Login
↑