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Jul 20, 2021

Managing Ileostomy - Ballooning, Weight Gain, Food, Exercise

This topic is about managing life with an ileostomy, specifically focusing on controlling ballooning of the pouch, gaining weight safely, understanding which foods to avoid, and knowing which exercises are suitable. Here are some helpful tips and insights:

- To prevent or minimize ballooning of the pouch:
- Be aware that foods like dairy and broccoli, or any that ferment easily, can cause ballooning.
- Eat slowly, chew your food thoroughly, and try to limit the amount of air you swallow.
- Identify which foods make you gassy through trial and error, as everyone is different.
- Consider using a pouch with an integrated vent to help release gas automatically.

- For gaining weight without increasing the frequency of emptying:
- Focus on calorie-dense, low-residue foods such as refined starches, oils, simple sugars (for short-term use), and finely milled nuts like pulverized pecans.
- Reduce high-fiber foods as they add bulk and can speed up output.
- Be mindful that liquids from protein or nutrition drinks might increase output, even if the protein is absorbed, due to the absence of the colon.
- Understand that a caloric surplus will naturally increase output to some extent, so finding the right balance is key.

- Foods to approach cautiously or avoid:
- Commonly problematic foods include beans, lentils, whole nuts, skins, and raw fibrous vegetables.
- Some foods are safer when modified, such as chopped lettuce, peeled and seeded tomatoes, processed cucumbers, and finely ground nuts.
- Some people find they can tolerate a wide range of foods, including nuts, seeds, skins, and all fruits and vegetables, if they eat slowly, chew well, and drink plenty of fluids.
- Introduce new foods in small amounts and gradually increase as tolerated.

- Regarding exercise and sports:
- Activities like walking, swimming, cycling, gym workouts, sit-ups, planks, leg lifts, and abdominal exercises are generally possible.
- Start with gentle, ostomy-specific core exercises, which can be found through ostomy nurses or online videos, and progress gradually.
- Strengthening your core slowly can help prevent a parastomal hernia.
- No sports are automatically off-limits; just build up intensity gradually and keep an eye on your weight-gain goals, as you may need a higher calorie intake if training hard.

- General principles:
- Remember that each person's tolerance is unique, so use shared food lists as guidance rather than strict rules.
- Keep a diary of the foods you eat, the timing, and your output to discover your personal patterns.
- Look up "low-residue diet" resources online for more meal ideas.
- When in doubt, consult with stoma or ostomy clinicians for personalized dietary and exercise plans.
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