This topic is about transitioning from a temporary to a permanent ileostomy due to ulcerative colitis. The person sharing their story had a temporary ileostomy created last year because of ulcerative colitis, but as the condition worsened, doctors recommended making it permanent. They are seeking advice and experiences from others who have faced a similar decision.

Here are some insights and advice shared by others:

- Many people who have opted for a permanent ileostomy report no regrets, as living without the pain and urgency of ulcerative colitis is a significant relief.
- While there might be occasional leaks and the need to change the appliance, most individuals find they can return to their normal activities with minimal restrictions.
- Getting the right fit for the skin barrier is essential. It often involves some trial and error, and requesting free samples can help in finding a reliable seal.
- There are support belts available that can help conceal the pouch, reduce the risk of hernias, and even allow for swimming. These might not always be mentioned by doctors or nurses, so it's worth asking suppliers directly.
- Some appliance tips include using a Coloplast 2-piece Click Concave system with half of a barrier ring, which has helped reduce leaks for those with a flush stoma. Changing the wafer about twice a week is manageable once the right products and techniques are found.
- Mentally, it's helpful to focus on the freedom from ulcerative colitis, such as no longer needing to constantly search for bathrooms, and the ability to live a fuller life after surgery.
- Long-term experiences can vary. Some people have had additional surgeries or developed Crohn’s disease later on, but they still appreciate the period of stability the ileostomy provided.
- It's important to stay positive, share updates, and lean on the community for ongoing support.