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Apr 25, 2022

Seeking Support - Excessive Stoma Bleeding & TIPS Procedure Experiences

Facing a serious medical procedure like a Trans-jugular Intra-hepatic Portosystemic Shunt (TIPS) can be daunting, especially when it's done to manage severe bleeding from a stoma. This procedure helps by creating a bypass to relieve pressure in the portal vein, which can be life-saving. However, learning about survival statistics can understandably lead to anxiety and fear about the future. Here are some comforting thoughts and practical advice shared by others who have faced similar situations:

- Survival statistics are just numbers, not your destiny. Many people have shared stories of loved ones who have lived much longer than expected. Remember, these statistics are averages and not set in stone.

- It's important to seek out specialized support and reliable information. Joining a support group for people with cirrhosis or similar conditions can provide both practical advice and emotional support. Also, having open conversations with your hepatologist can give you a clearer understanding of your situation than what you might find online.

- Taking care of your emotional and psychological health is crucial. Professional counseling can be very helpful in managing anxiety and fear. Some find that writing, whether through journaling or poetry, can help process emotions and regain a sense of control.

- Focus on living rather than spending impulsively. Thoughtful financial planning can ensure that you and your loved ones are supported. Embrace the idea of living one day at a time and try to maintain positive thoughts, as they can have a powerful impact on your well-being.

- Practical steps can bring peace of mind. Make sure your legal and financial affairs are in order. This preparation can help you feel more organized and at ease.

- Remember, you are not alone. Many people offer spiritual and community support, reminding you that shared experiences can help lighten the burden of fear.
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