This topic is about someone who has been living with an ileostomy for nearly three years and is facing challenges like depression, leaks, and a painful parastomal hernia. The person is unable to afford a reversal surgery and has been struggling with work due to the pandemic and stoma-related issues, which has affected their finances and mood. Despite these difficulties, they find strength in their pets, family, and faith. Here are some helpful tips and advice shared by others:
1. Product and Supplier Help
- Reach out to Coloplast for samples and guidance at www.coloplast.us or by calling 1-800-533-0464.
- Hollister also offers samples; you can contact them at 1-888-808-7456.
- The Coloplast SenSura Mio Convex Flip, a star-shaped wafer designed for parastomal hernias, might improve the fit. Some users find it very comfortable, though experiences can vary.
- Consider using independent ostomy supply companies that offer multiple brands and have Enterostomal Therapy nurses who can help find a good seal.
2. Practical Leak-Prevention Tips
- Apply ostomy paste in a full ring around the flange before attaching it, similar to squeezing toothpaste, and hold it for 2-3 minutes to ensure a tight seal.
- Use outer extender tapes or highly-adhesive tapes like Confix-style for extra security.
- Regularly consult a Wound, Ostomy & Continence Nurse (WOCN) for personalized fitting adjustments, especially if you have a parastomal hernia.
3. Financial Assistance
- Major manufacturers offer patient-assistance programs. You can find a consolidated list at https://www.ostomy211.org/resources/assistance-programs/.
- Check if you are eligible for insurance or Medicare coverage for ostomy supplies.
4. Emotional Support Strategies
- Understand that depression is common with life changes related to a stoma. Sharing your feelings and engaging in creative outlets like writing poetry can be helpful.
- Seek support through prayer, peer discussion forums, counseling, or support groups to reduce feelings of isolation.
5. General Encouragement
- Leakage times can vary, with 3–5 days being common. Continual product trials and reassessing your body shape are important.
- Many people empathize with your situation and offer ongoing prayers and check-ins. You are not alone in managing both the physical and emotional challenges.
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