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Jul 24, 2022

Recovery Progress - When did you start feeling better?

This topic is about the recovery journey after a complex ileostomy surgery. The person sharing their experience is about three weeks into their recovery from an emergency surgery that lasted eight hours. This surgery was necessary due to severe diverticulitis and involved removing an abscess, an ovary, and a fallopian tube, as well as creating an ileostomy. Just four months before this, they also had double knee replacements. They are currently dealing with mild abdominal and back pain and are concerned about the pace of their healing.

Here are some helpful pieces of advice and insights for anyone going through a similar experience:

1. Undergoing major abdominal surgery and getting an ileostomy is a significant trauma. Many people notice improvement around the 4- to 6-week mark, but healing times can vary widely.

2. It's normal to feel occasional abdominal twinges or "stitches" for several months as your internal tissues heal and strengthen.

3. Make sure to take your prescribed pain medication on schedule to manage pain effectively. Gradually reduce the medication as you become more mobile.

4. Rest is crucial. Avoid overexertion to prevent disrupting sutures or causing internal tears. Gentle daily movement is encouraged, but always listen to your body.

5. A useful bathroom tip is to empty your pouch each time you urinate. This helps keep it light and reduces the risk of leakage.

6. Be aware that drinks like coffee and soda, or certain foods, can make your ileostomy output more liquid. The thickness of the output usually changes with your diet.

7. For appliance care, one person shared that they remove the bag once a week for a full shower and change. Normal daily showers and tub soaks are fine with the pouch on.

8. If you're looking to gain weight after an ileostomy, try eating 4–5 small, high-calorie, starchy meals or snacks per day, such as potatoes without skins, rice, pasta, and other refined or high-calorie foods. Salt your food liberally to make up for sodium loss. Track your weight every two weeks; slow gains are common.

9. Maintaining a positive mindset can be very helpful. Accept the stoma as a different but manageable way of living, and don't let it stop you from enjoying activities you love.
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