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Jul 25, 2022

Reversing Colostomy - Experiences with Ileostomy and Success Rate?

This topic is about the experiences and practical aspects of reversing a colostomy with a temporary ileostomy, as well as the success rates of this procedure. The process involves initially diverting stool with a temporary ileostomy to allow the colon to heal, with the aim of eventually closing the ileostomy and leaving the patient without an ostomy.

Here are some insights and advice shared by others:

1. Purpose of a Temporary Ileostomy
- It helps the lower bowel or colon heal by diverting waste, preventing internal leaks, and is often used before the final reconnection.

2. Key Differences Between Colostomy and Ileostomy
- Ileostomy output is typically more liquid or pudding-like and more frequent because the large intestine, which removes water, is bypassed.
- You may need to empty the pouch more often, ranging from 1-3 times during a work shift to 9 times a day, depending on diet, hydration, and personal comfort.
- The stoma size is usually smaller with an ileostomy, which might require different pouching supplies.

3. Success Rates and Timing for Reversal
- Many people successfully achieve a full reversal, but it depends on the underlying condition, healing, and nutritional status.
- Timelines for reversal vary: some have success after 6 weeks, while others may need 3-4 months or longer if malnutrition or low body weight is a factor.
- It's advisable to seek a second opinion if the proposed timing seems too quick based on individual healing factors.

4. Living with an Ileostomy Day-to-Day
- Stay hydrated, as the risk of dehydration is higher; drink electrolyte solutions and monitor urine color and volume.
- To thicken output, consider medications like loperamide, higher-fiber or starchy foods, and avoid high-sugar drinks.
- Rapid weight loss can occur, so frequent, calorie-dense meals and support from a dietitian can be helpful.

5. Managing an Ileostomy During Long Work Shifts
- Be mindful of food and fluid intake during work hours; avoid carbonation and foods that increase output volume or gas.
- Empty the pouch whenever possible, even if it's only 1/3 full, to prevent unexpected fullness.
- Some people manage to go 6-8 hours without emptying when output is low, but most report needing to empty 1-3 times in a 10-hour shift with managed intake.
- Drastically cutting intake is not recommended long-term; plan balanced hydration and nutrition around work breaks.

6. Overall Considerations Before Deciding
- Extra surgery means additional recovery and potential complications, so weigh this against the possibility of living without an ostomy.
- Discuss your goals, expected output volume, lifestyle, and supply needs with an ostomy nurse before proceeding.
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