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Nov 10, 2022

Stoma Retraction Experience - Anyone Else?

This topic is about the experience of having a stoma that has detached from the abdominal wall, creating a gap or "hole" around it. The person experiencing this is feeling constant discomfort and describes a sensation of the stoma pulling back into the body. They are reaching out to see if others have felt something similar.

Here are some shared experiences and advice from others:

1. One person remembered having a temporary stoma over 20 years ago that completely separated from the skin, forming what they described as a "moat." Although it was very painful, they did not feel the specific pulling-back sensation. They reassured that the wound eventually healed.

2. Another individual, who has had a stoma since they were 4 years old and is now in their 20s, shared that their stoma has also separated all the way around. They are experiencing granulomas forming in the gap and feel a retraction sensation. They are considering getting a second surgical opinion for a possible stoma refashioning, thinking it might be the only long-term solution.
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