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Nov 18, 2022

Struggling with Ileostomy Complications During Pregnancy

This topic is about a pregnant person who is experiencing significant challenges with their ileostomy. They had the surgery without knowing they were pregnant, and now they are facing issues like constant leaks, skin pain, and a worsening prolapse. Here are some helpful pieces of advice and insights shared by others who have faced similar situations:

1. Seek professional help immediately:
- Reach out to an ostomy nurse, your surgeon, or your OB-GYN/midwife. You can also go to the hospital where they can provide supplies and assess the situation.

2. Consider using convex appliances to reduce leaks:
- Many people have found success with convex barriers or bags. Some specific products mentioned include Marlen Deep Convex one-piece pouches and Hollister convex wafers and pouches.

3. Try different brands and request free samples:
- Order samples from as many companies as possible to find a seal that works with your changing body during pregnancy.

4. Build a multi-layer seal if needed:
- If the stoma is recessed or there are creases in the abdomen, you can create a layered seal using various products like cut-to-fit sheets, Stomahesive Strips, ostomy paste, and moldable rings.

5. Additional tips to prevent leaks:
- Use barrier rings directly on the skin around the stoma and reinforce the flange with waterproof surgical tape.

6. Soothe and protect injured skin:
- Use skin barrier wipes, barrier creams, Flamazine cream, or calamine lotion (make sure it dries before applying the pouch).

7. Manage prolapse pressure:
- Consider wearing a hernia or prolapse support belt designed for ostomies. Some have also used a gentle suction pump to keep output off the skin while treating burns.

8. Consider surgical revision after pregnancy:
- Some have had successful surgeries to remove a prolapsed stoma, resulting in a leak-free experience. Discuss this option with your doctor.

9. Seek community and moral support:
- Connect with others who have been pregnant with an ileostomy for advice and support.

10. Be persistent:
- If a system isn’t working, try different products or techniques. Be polite but persistent with healthcare providers until you find a solution.
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