This topic is about someone who woke up from a coma in July 2021 to find out that they had undergone surgery to create an ileostomy, a procedure necessary to save their life. The recovery was long and painful, with complications related to the stoma, and involved many months in the hospital and rehabilitation. During this challenging time, they also suffered a stroke, which left them unable to walk. The combination of dealing with a stroke-related disability, managing ostomy care, and coping with the emotional impact of these sudden changes has made daily life feel overwhelming. Normally a determined problem-solver, they are now seeking ideas, resources, and encouragement from others who have faced similar challenges.

Here are some pieces of advice and insights shared by others:

1. Community & emotional support
- This forum is a welcoming space to express feelings, ask questions, and receive understanding and non-judgmental support from people who truly get the physical and emotional challenges of living with an ostomy.
- Hearing about others' experiences with trauma, PTSD, despair, and recovery can be a comforting reminder that you are not alone.

2. Mind-body coping strategies
- Create daily moments of joy with activities like listening to favorite music, podcasts, talk-radio, painting, drawing, or watching short humorous videos.
- Laughter and positive distractions are seen as important contributors to healing.
- A recommended book is “Kitchen Table Wisdom” by Rachel Naomi Remen, M.D., which offers reflections on faith and healing.

3. Practical ostomy resources
- Changing or replacing an ileostomy appliance will become second nature; do it as often as needed and feel free to ask specific questions whenever issues arise.
- For those with limited use of one hand after a stroke, ostomy nurses can provide instructional videos for one-handed pouch changes. These techniques have been beneficial for others in similar situations.
- The TikTok handle “Mr. ColitisCrohns” offers upbeat content and demonstrations on changing an ostomy bag, which can be both instructional and motivational.

4. Staying connected & encouraged
- Members encourage staying in touch, whether privately or publicly, for ongoing support, prayer, and sharing of ideas. Consistent engagement with supportive peers is highlighted as crucial for long-term adjustment and resilience.