This topic is all about the ups and downs of adjusting to life with a new stoma. The person sharing their experience is just ten days into this journey and has already encountered a couple of messy situations. One involved a nighttime leak after a BBQ meal, and another was a slip-and-slide incident in the dark. Despite these challenges, they haven't had any routine wafer leaks and feel that their body shape helps the wafer stick better. On the bright side, they are grateful for being alive, enjoying activities like riding a motorcycle, making new friends online, and spending time with grandchildren. They also encourage others to share their own stories.
Here are some helpful tips and insights shared in the discussion:
1. Controlling random pouch openings:
- Use a small black metal binder clip or a rubber band to secure Velcro-closure outlets and prevent accidental emptying.
- Always double-check that the outlet is fully sealed after emptying or changing, especially when tired.
2. Extra external support:
- Consider using NU-Hope Hernia Belts, standard ostomy belts, or Stealth Belts to reduce hernia risk and add security during active pursuits like water parks, roller coasters, or sports.
- If regular belts press on the pouch, try using suspenders or braces to remove abdominal pressure.
3. Clothes and pouch position:
- Rolling the waistband of trousers can help belts or binders fit better for shorter wearers.
- Pouch height varies by stoma placement; some people keep it above the belt line to avoid thigh pressure that can force the outlet open.
4. Preventing leaks while away from home:
- Carry spare rubber bands, clips, or plastic bags for emergencies.
- After high-fiber or high-gas meals, like beans or BBQ, consider extra emptying stops or wearing looser clothing to reduce pressure on a full pouch.
5. Managing gas and ballooning:
- Products like Beano (alpha-galactosidase) and Gas-X (simethicone) can help manage gas.
- Typical dosing is 1–2 Beano tablets or 1–2 Gas-X capsules with gas-producing meals, but avoid excessive use and follow package directions.
- Venting the pouch or using filtered pouches can also help, but remember to re-seal vents securely afterward.
6. General leak-prevention practices:
- Change wafers or pouches when fully awake and alert to avoid leaving outlets unlocked.
- Ensure skin-prep powders are completely covered with a liquid barrier to keep wafer edges adhered.
- Keep a change kit within reach at night to handle surprise blowouts quickly.
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