Switching from an incontinent urostomy, which involves using an external urine-collection bag, to a continent urostomy is a significant change. This procedure, often referred to as a "takedown," involves creating an internal reservoir from a section of the colon to act as a new bladder. The ureters are connected to this reservoir, and a small stoma, usually hidden near the navel, is used for catheterization every 4 to 7 hours to empty urine. This eliminates the need for an external pouch.
Here are some helpful insights and advice about this procedure:
1. The procedure involves transitioning from an incontinent to a continent urostomy, where a segment of the colon is used to create an artificial bladder. A small, almost invisible stoma is used for intermittent catheterization, so no external appliance is needed.
2. The surgery date mentioned is September 21.
3. It is suggested that pediatric urologists might have more experience with this type of surgery compared to adult urologists. For instance, the poster is using Dr. Nguyen from Pediatric Urology at Boston Children’s Hospital.
4. Some people were not aware that a continent option exists for urostomies. This discussion highlights that a takedown or reconstruction is possible.
5. The continent urostomy is similar to a continent ileostomy, like the K-pouch. One member mentioned the "Indiana Pouch" as a type of bladder pouch and provided a resource link for more information.
6. There is general encouragement and well-wishes from the community. While many urostomies are permanent, those interested in this conversion should consult a specialist, particularly pediatric urologists, to determine if they are eligible for the procedure.
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