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Aug 31, 2010

Concerned about bleeding after urostomy - need advice!

This topic is about a person who has a urostomy and is experiencing some concerning symptoms, specifically bleeding and bloody mucus, which is causing them to worry about a possible recurrence of cancer. They are seeking advice and reassurance from others who might have had similar experiences. Here’s a summary of their situation and some advice they received:

- The urostomy was created two years ago, and until now, care has been routine with only minor bleeding during cleaning, which is considered normal.
- They use a night drainage setup with a pouch connected to long tubing and a large jug.
- On one occasion, they found thick, bloody mucus in the tubing and jug, but not in the pouch itself. This happened again the next day, although the urine appeared clear.
- They visited their doctor immediately, who found no blood, and a loopogram was scheduled and completed. They are now waiting for the results.
- The person had their bladder removed due to cancer, and they are anxious because previous tests missed a tumor several times.
- They are also dealing with emotional stress due to a friend’s terminal illness and are looking for reassurance or similar experiences from others with a urostomy.

Additional questions and information they are seeking include:

1. How to use marshmallows to slow urostomy output before changing the appliance, including timing and quantity.
2. Solutions for managing the side effects of the bag and tips for making pouch changes and daily life easier.

Advice and insights shared by others include:

- Recurrent infections can cause blood or blood-tinged mucus from a urostomy. One person had similar symptoms, which were resolved with low-dose, long-term antibiotics.
- Dietary suggestions for cancer prevention or management include eating asparagus daily or using asparagus capsules, as well as drinking Pau d’Arco tea for immune support.
- To slow stoma output before appliance changes, eating marshmallows shortly beforehand helped one person manage an active ileostomy, though specific timing and quantity were not detailed.
- For private communication on the forum, use the private chat function to share sensitive information.
- For U.S. users on disability and under 65, it might be worth checking if Medicaid offers better coverage for supplies and healthcare than Medicare.
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