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Feb 06, 2011

Seeking Advice: Dealing with Pouch Failure and Abscess Post-Reversal Surgery

This topic is about someone who has been living with an ileostomy bag for two years and recently underwent the first stage of reversal surgery, which involved creating a pouch. Unfortunately, they have been experiencing a persistent abscess in the pouch, leading to multiple painful procedures. The person is seeking advice and experiences from others who might have faced similar challenges.

Here are some insights and advice that might be helpful:

1. Some surgeons believe that J-pouches can be high-risk for individuals with Crohn’s disease. Recurring abscesses and ulcers are common issues, and in some cases, a permanent ileostomy might be considered a safer long-term solution.

2. Seeking support from peers can be incredibly beneficial. Connecting with other ostomates, whether through nurses or local support groups, can provide practical tips, emotional encouragement, and the opportunity to share experiences in person.
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