This topic is about preparing for ileostomy and rectum removal surgery, specifically what to expect before and after the operation. The person sharing their experience has been living with Crohn’s disease since they were 18 and is now 47. After many surgeries over the years, they are now scheduled for this significant procedure. Here’s what they and others have shared about the preparation and recovery process:

- Pre-operative bowel preparation can vary:
- Some people only need to follow simple instructions like not eating or drinking after midnight and taking an antiseptic shower.
- Others might have to go through a full bowel clean-out, which can be uncomfortable but is a standard procedure. This might involve using products like Miralax mixed with Gatorade or taking oral laxatives like Senokot.
- Trust your surgical team to decide the best preparation for you, as they tailor it to individual needs. Some hospitals handle bowel cleansing during the surgery if necessary.

- Meeting the stoma care team before surgery can be very helpful:
- They can show you different pouch systems, provide information, and answer any questions you might have.
- They can also mark the best spot for your stoma a day or two before surgery to ensure it’s placed correctly.

- Recovery experiences vary, but here are some common points:
- It’s normal to feel sore initially, but this usually improves quickly. Many people return to work and their usual activities within a few weeks.
- A lot of people experience a significant improvement in their quality of life and find that their Crohn’s symptoms go into long-term remission after the surgery.
- While the hospital stay might be longer if complications arise, the relief from pre-surgery symptoms often makes the early recovery days worthwhile.

- Tips for skin care and managing your appliance:
- Consider laser hair removal around the stoma site before surgery to avoid issues with shaving, itching, or accidental cuts later on. If you miss this step, it can still be done afterward.
- Changing your appliance becomes easier when your skin is smooth and free from irritation.

- Emotional support is important:
- Keeping a positive attitude can make a big difference. Many people find that life can be as fulfilling as they want it to be after surgery.
- Humor, prayer, and staying connected with supportive communities can help you adjust to the changes.