Color Logo for MeetAnOstoMate
Sponsored by Hollister
Login   |  
Forgot password?
 
Forum
Videos
Reviews
About Us
Color Logo for MeetAnOstoMate
Where Everybody Understands You
41,442 members
Oct 17, 2011

Recovery Journey and Online Support Experiences

This topic is about finding community and gaining perspective during the recovery period after ostomy surgery. The author shares their personal journey of healing and connecting with others, offering insights and advice for those in similar situations.

In the early weeks after surgery, the author experienced:

- Daily visits from a district nurse to care for a slowly healing scar, even on holidays like Christmas.
- A lingering loss of appetite and the challenge of limited mobility, especially on icy streets when visiting the doctor.
- A period of withdrawal from communication, followed by exploring ostomy websites recommended by a stoma nurse.

While browsing these sites, the author encountered stories of emotional struggles and fear, but also reflected on their own resilience:

1. The surgery offered a chance to control long-standing health issues.
2. A lifetime of illness had already developed their coping skills.
3. Previous surgeries taught them that this was just another "bump in the road."

To connect with others, the author registered on more ostomy sites, volunteered with the Colostomy Association, and began chatting with fellow ostomates in online forums. This led to meaningful friendships and a sense of community.

Here are some helpful insights and advice:

- Maintaining a positive outlook, like remembering that "the sun is shining somewhere" even on cloudy days, can aid in recovery.
- For those with severe pre-surgery illnesses, accepting an ostomy might be easier, and many adjust well afterward, even if local support groups are unavailable.
- Online chat rooms and forums can provide support and shared experiences, filling the gap left by in-person groups.
- For travel, the Coloplast travel bag is highly recommended. Ordering directly from Coloplast is straightforward, though later shipments may arrive in plain envelopes.
- Volunteering with national associations, such as the Colostomy Association, can offer education, camaraderie, and a way to give back, especially for those with specific conditions like Crohn’s disease with an ileostomy.
See full discusison
Gray Logo for MeetAnOstoMate
MeetAnOstoMate.org

MeetAnOstoMate is a remarkable community of 41,442 members.

“Every morning with my coffee, I read here and feel wrapped in warmth - I hardly post, but it still feels like family.”

“Our oncologist literally wrote down the link; they said more patients need this website.”

“This place pulled me out of the dark. I went from lurking to living again.”

“At 3am, someone’s awake somewhere in the world. I’m never alone here.”

Join Free

Popular Topics

Finding My Rhythm
EVERYTHING OLD IS NEW AGAIN
Bowel Cancer
Antibiotics and Ostomies: Seeking Advice and Experiences
Friendship/relationship
So now I’m committed 😬
Issues with Hollister 8678 Pouch Leaking
Need Advice on Managing Odor from Dad's Colostomy Bag
Well hello!
Motorhome Off-Grid: Tips for Emptying Waste Pouches

New Topics

B. Withers - Be Kind 85
Hives & Allergy Cream & Wafers
Rerun: Bah !! Humbug !!
Looking for Daily Irrigation Pouch Alternatives
Happy Halloween 🎃
Anti-fungal Powders
Dietary Tips for Ileostomy: Success with Berries?
THINGS
Coloplast Sensura Mio Pouch Leaks
I'm Home from Surgery and Feeling Great, but My Mom's Reactions Are Tough
About us | Privacy policy | Terms of use | Ostomy Blogs | Ostomy Q&A | Guides | Contact Us
This site is protected by reCAPTCHA and Google Privacy Policy and Google Terms of Service apply.
Copyright (c) MeetAnOstoMate.org All Rights Reserved
Create Account
Login
↑