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Feb 11, 2012

Post-Op Reversal Week One - A Week of Wonders and Challenges

This topic is about the experiences and challenges faced during the first week after a laparoscopic ileostomy reversal surgery. The person sharing their story is nine days post-surgery and provides insights into their recovery journey, including early successes and some difficulties they encountered.

Here are some key points and advice from their experience:

- They were discharged from the hospital two days earlier than expected and feel that their overall recovery is going better than anticipated.

- Initially, they experienced around 20 liquid bowel movements per day, including a few nighttime accidents. This has now reduced to 12-15 times a day with no nighttime accidents. Medications like Lomotil and Hydrocodone are helping to slow down the output. They plan to add psyllium husk to their routine once abdominal distention decreases.

- The surgical wounds, including the former stoma site and other small incisions, are healing well without visible sutures.

- Their diet consists of soft foods such as Greek yogurt, eggs, chicken, fish, bananas, brown rice, French toast, and frozen yogurt. They are mainly drinking water and avoiding caffeine and red meat, which has helped minimize gas.

- A major challenge has been severe postoperative low blood pressure, which was managed with large volumes of IV fluids, leading to significant water retention. They are seeking advice on over-the-counter diuretics or herbal remedies to relieve the swelling.

- They continue to experience phantom sensations from the stoma.

- Their first surgical follow-up is scheduled for February 20.

Additional updates and advice include:

- As of February 17, they are still retaining over 20 pounds of fluid. Their primary care physician has started them on Lasix and a topical steroid for skin splitting. The doctor suspects that transient adrenal suppression caused the low blood pressure, leading to excessive IV fluid administration.

- On February 18, they had their first restaurant outing, enjoying seafood-stuffed shrimp without any leaks or accidents.

- The swelling is slowly improving, but they remain frustrated that stress-dose steroids were not started post-surgery.

Advice and insights from others include:

1. For fluid overload and blood pressure issues, Lasix and topical steroids have been effective for others with similar postoperative edema. It's important to monitor urine and stoma output closely to avoid dehydration and electrolyte loss.

2. For incision and stoma-site care, colloidal silver spray can promote healing, but it's best to confirm with a surgeon, especially for those with diabetes.

3. Bowel function after reversal can vary depending on how much intestine remains. Some may experience prolonged liquid output, while others firm up quickly. Walking frequently and staying on clear liquids until gas or bowel movements occur can help. Persistent issues may require imaging or surgical correction.

4. Surgical approaches and hernia prevention suggest that some surgeons can perform the reversal through the stoma opening alone, while others may need to reopen the midline. A laparoscopic approach usually results in easier recovery and less scarring. After abdominal wall reconstruction or hernia repair, avoid lifting heavy objects for at least three months and consider using abdominal support garments.

5. Maintaining a positive mental attitude is emphasized. Visualizing the best outcome, staying engaged in normal activities, and using humor can help reduce anxiety. Being prepared to accept and live fully even if another stoma becomes necessary is important.

6. General postoperative tips include maintaining a protein-rich, low-residue diet initially and introducing fibrous foods slowly. Avoid heavy caffeine early on to reduce intestinal motility. Keep communicating with the care team and seek prompt evaluation for persistent swelling, pain, or lack of bowel function.
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