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41,452 members
Apr 15, 2012

Reflecting on My First Year with an Ileostomy

This topic is about celebrating the first year of living well with an ileostomy. The person who started the discussion shares their positive experiences and the changes they've noticed since their surgery. Here are some of the highlights and advice shared:

- They enjoy the freedom to walk anywhere without worrying about finding a toilet.
- They feel more socially confident and no longer fear accidents when out with friends.
- They have stopped taking a 22-tablet-per-day medication regimen.
- They use less toilet paper and can now watch a full TV episode without interruptions.
- They appreciate not needing colonoscopies anymore since their rectum has been sewn up.
- They have experienced minimal issues with their appliance, with only three leaks in a year, and their stoma, affectionately named "Bertie," behaves well.
- They credit the online ostomy community for providing invaluable support.

While some challenges remain, they feel that having a permanent "bag for life" was the right decision. Here are some additional insights and advice from others:

1. Long-term perspective: People who have had ileostomies for many years mention that while it's not always smooth sailing, issues like internal adhesions or occasional food-related blockages can occur but are manageable.

2. Stay proactive: When minor setbacks happen, it's important to keep "fighting the good fight." Remembering that others may face bigger challenges can help maintain perspective.

3. Community support: Engaging with fellow ostomates for practical help and morale is crucial. Direct contact through email or messages often provides personal guidance when navigating forums feels confusing.
See full discusison
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