This topic is about navigating the world of intimacy and attraction while living with an ostomy. It addresses common questions and concerns people might have about how an ostomy affects one's sex life and relationships. Here are some helpful insights and advice shared by others who have been through similar experiences:
1. Handling nosy or rude questions:
- You can tell people it's personal or suggest they look it up online; most won't bother.
- Use humor or a counter-question like, "Is that how you'd feel?" or "What sort of person would let that affect them?"
- Try witty responses such as, "My penis still works," "Since surgery, I have 45-minute orgasms," or "If socks don’t ruin sex, why would a pouch?"
- Politely remind them that what happens in your bedroom is private.
2. Partner reactions and dating:
- Many find that spouses or new partners quickly accept the pouch, with several people getting engaged or starting relationships after surgery.
- Some have faced rejection or distancing, but this often reflects the partner's limitations, not yours.
- A common dating strategy is to build rapport first and then disclose, while others wait until intimacy is imminent. Confidence and openness are key.
3. Practical tips for intimacy:
- Keep the appliance out of the way using:
- Custom ostomy belts.
- Stretch-fabric pouch/ostomy wraps and decorative covers.
- Large band-aids or briefly removing the pouch (some couples do this).
- Empty the pouch beforehand, use deodorizing drops, and consider smaller or mini pouches if desired.
4. Appliance choices and leak prevention:
- Reliable brands for active or intimate settings include Convatec, Hollister, Nu-Hope, and Marlen.
- For challenging stoma placements or dips, use convex pre-cut flanges with ostomy paste and "bean seals" (breathable, bean-shaped tape strips).
- Clean skin with plain water, dry thoroughly, and add waterproof tape for confidence in the pool or shower.
5. Body image and emotional health:
- Don't let the pouch define you; your attitude greatly influences how others react.
- Focus on gratitude for being alive and seek support from forums or local ostomy groups.
- Sexual desire is unchanged for most; counseling or hormone testing (bio-identical hormones are recommended over synthetic) may help if surgery or radiation affected function.
6. Reading and resources:
- "It’s in the Bag, and Under the Covers" offers real-life ostomate sex stories and technical tips.
- Convatec and Hollister websites list pouch covers, belts, and intimate-wear accessories.
7. Swimming and other activities:
- With a well-sealed pouch and waterproof tape, pools are safe, and leakage risk is minimal if the appliance is secure.
8. Medical considerations:
- If the stoma location makes intimacy or clothing difficult, consult a surgeon about relocation or reversal.
- Radiation can cause erectile or vaginal narrowing issues; consult specialists early.
9. Encouragement:
- Many people, whether single, married, straight, gay, young, or older, affirm that satisfying sex is entirely possible with an ostomy. The key themes are preparation, the right equipment, self-confidence, and choosing partners who value you, not your pouch.
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