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41,403 members
Feb 25, 2013

From Toilet to Traveler: My Journey as a Wandering Ostomate

This topic is about a person who has undergone a significant life transformation after ostomy surgery. Previously, they were confined to their home due to severe bowel issues, making up to 33 trips to the toilet each day. An emergency diagnosis of Familial Adenomatous Polyposis (FAP) led to the surgery, which has since opened up a world of possibilities for them. Now, they are embracing life with newfound freedom, traveling the globe, and enjoying activities they once thought impossible.

Here are some insights and advice shared in the discussion:

1. After the surgery, the person has been able to enjoy simple pleasures like spending time at coffee shops, going clubbing, swimming all day, and traveling to places like Mexico, South America, and Belize. They are planning to scuba-dive the Blue Hole and have future travel goals that include visiting European castles, Pompeii, the Blue Mosque in Turkey, and the Parthenon.

2. Despite needing to return for six-monthly check-ups for duodenal polyps, they feel liberated and excited about life.

3. In Belize, they plan to visit the Belize Zoo, Cockscomb Jaguar Preserve, and try activities like zip-lining and parasailing.

4. They have shared that their standard ostomy appliance stays secure for about three days, even after swimming all day, without needing extra tapes or barrier strips.

5. A word of caution: they caught paratyphoid fever from Guatemalan street food, which led to a brief return to the U.S. They plan to travel to Belgium in June with a two-month Eurail pass.

6. Currently, they are unable to tolerate solid food due to chest pain and tachycardia, so they rely on liquid nutrition. They have bought a boat to store supplies and have sailed along the U.S. East Coast and Florida Gulf. They are now docked in Marathon, FL, awaiting duodenal resection surgery, with hopes to resume island-hopping by November.

Advice and encouragement from others include:

- Recommended places to visit in Belize: Lamanai Mayan ruins, Cockscomb Basin Jaguar Preserve (with guide "Basilio" via Maya Beach Hotel), and the Belize Zoo.

- Adventure ideas: Try parasailing and consider watching or participating in round-canopy military-style parachuting in Holland.

- For ostomy appliance security while swimming or traveling, some members suggest using "Opposite tape" around the flange or Coloplast Barrier Strips for extra edge protection.

- Many members express admiration and encouragement, urging the person to continue living adventurously and praising their courage and zest for life as an ostomate.
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