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May 05, 2011

Gathering My Medical Records for a Second Opinion

This topic is about gathering medical records and understanding a CT report to seek a second opinion. The person involved is collecting all relevant medical documents from the past six months to provide a new medical team with a comprehensive view without needing to repeat tests. She shares a detailed CT-enterography report, hoping that others with similar experiences might help her understand it better.

Here are some key points from her situation and the advice she received:

1. The CT report mentions a prior total colectomy with a terminal ileostomy and possibly a distal-ileal resection. It also notes multiple abnormal small-bowel loops with dilated segments and narrowed, thick-walled strictures, particularly in the duodenum and proximal jejunum. These findings are typical of Crohn’s disease, although no mesenteric disease, abscess, fistula, free fluid, or organ abnormalities were found.

2. She wishes doctors would explain medical jargon in plain language and provide clear treatment steps.

3. She is curious about why hospital staff administer Lovenox injections in the abdomen, while she receives other injections in different areas.

Advice and insights shared with her include:

- Medical reports are often written for healthcare professionals. It's important to ask doctors to explain findings in simple terms and outline a specific treatment plan. Patients should also educate themselves using reliable sources.

- Always obtain copies of your medical images and reports, check the dates, and review them for accuracy. Be proactive in understanding your health records.

- When consulting new specialists, ask for clear explanations about what the findings mean for you and whether further tests, surgery, or medications are needed.

- If you experience severe or recurrent blockages, it might be time to consult an experienced colorectal or small-bowel surgeon.

- If prescribed Lovenox, ensure the correct subcutaneous injection technique is used. Speak up if you feel the staff is inexperienced or rushed, as errors can be dangerous.

- Advocate for yourself by asking questions, challenging vague answers, and considering changing doctors if communication is poor.

- If you have unresolved symptoms like leg pain or breathlessness, pursue alternate diagnoses or medication trials. Persistence can prevent years of mismanagement.

- The medications and products mentioned include Humira (adalimumab auto-injection), Infliximab/Remicade infusion, Lovenox (enoxaparin), and vitamin B-12 injections.
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