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Where Everybody Understands You
41,467 members
Jun 30, 2013

One of Those Days

This topic is about someone who recently underwent surgery due to Gardner’s Syndrome and now has a permanent ostomy. They are adjusting to life with their stoma, which they have named "Steve," and are dealing with the emotional and physical challenges that come with it. Here are some pieces of advice and insights shared by others who understand what they're going through:

1. Many people feel "too young" for an ostomy, and it's perfectly normal to feel this way. It's important to acknowledge these feelings and recognize your own strength and resilience.

2. Staying connected with supportive communities, like forums, can be incredibly helpful. Sharing your experiences and hearing from others can provide comfort and mutual support during tough times.

3. It's okay to vent and express your frustrations. Doing so can help prevent feelings of depression from deepening. Consider talking to someone who listens well or taking a short break to do something you enjoy, like a fishing trip.

4. Try to focus on daily positives. Write down one good thing each day, whether it's something small like enjoying a meal with a friend or something relaxing like stargazing. This can help maintain a positive perspective and ensure that your illness doesn't define your life.

5. Remember that medical advancements are continually being made. While conditions like Gardner’s Syndrome, FAP, and polycystic kidneys are serious, new treatments and technologies are improving prospects. Keep hope alive and stay strong.
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