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41,468 members
Nov 11, 2013

Being Blessed

This topic is about a journey through cancer, surgeries, and living with an ileostomy. It shares the experiences of someone who faced cancer while serving in the U.S. Army, underwent multiple surgeries, and eventually found a new lease on life with an ostomy. Here are some insights and advice from this journey:

- In January 2009, while on active duty, a colonoscopy revealed cancer.
- By March 2009, surgery had removed 34 lymph nodes, with one testing positive, leading to a stage III-B cancer diagnosis. An unexpected ileostomy was created.
- The treatment included a month of combined radiation and chemotherapy, followed by a break, and then more chemotherapy. Additional surgeries were needed due to blockages.
- The ileostomy was reversed, but life with the reconnected bowel was challenging, involving incontinence, constant bathroom planning, severe fatigue, pain, dietary restrictions, and reliance on medications like Imodium.
- In 2011, a scope showed radiation damage and a very thin colon, leading to more surgery, but issues persisted.
- In September 2013, a scope caused respiratory distress, and imaging showed free air throughout the body. Emergency surgery revealed a perforated section of the colon, which was removed, and a new ileostomy was created.
- Waking up in the ICU with the second ileostomy brought relief. The person feels better than in years, enjoys unrestricted eating, fewer bathroom issues, and more outings with family, and has no plans for another reversal.

Advice and insights from this experience include:

1. Perspective and Gratitude
- Surviving cancer and surgical complications offers a valuable perspective. Life should be lived fully and appreciatively.
- Recognizing how quickly circumstances can change helps prevent taking everyday life for granted.

2. Acceptance of the Ostomy
- Initial anger or denial toward "the bag" is common, but over time it becomes an ally that removes pain and restores freedom.
- Living with an ostomy can allow for a normal diet and avoidance of previous bowel-related pain.

3. Emotional and Family Support
- Children, grandchildren, and friends can draw inspiration from resilience, and their understanding and participation improve overall quality of life.
- Peer support, such as talking with others who have ostomies or cancer histories, helps on difficult days.

4. Long-Term Outlook
- Daily acknowledgment of survival keeps spirits high.
- Even with ongoing issues like hernias or other health concerns, many prefer life with an ostomy to the alternative when cancer is involved.
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