This topic is all about the sense of community and support found within an online group for people with ostomies. The original poster is celebrating their fourth year as a member and has renewed their lifetime membership, reflecting on how much the community has grown and how valuable it has been to them. They express concern about losing this resource, especially since another similar forum, Ostomyland, is undergoing changes.
Here are some helpful insights and advice shared by the community:
1. Regular chat gatherings are a great way to connect. These used to be on Fridays at 11 p.m. EST but have now moved to Thursdays at 10 p.m. EST. These sessions are lively, with points awarded for witty comments.
2. Newcomers are warmly invited to join the "General Chat" to meet experienced members and feel more at home.
3. If you ever feel like your voice isn't being heard, consider starting a personal blog or searching through archived topics for answers to your questions.
4. The original poster shares a personal story about meeting another member through the site, highlighting the real-life connections and ongoing support, such as sharing travel plans post-COVID.
5. The community is valued for providing friendship, practical help, and emotional support, which is especially crucial when adjusting to life with an ostomy.
6. To get the most out of the community, join the scheduled chat sessions. Humor is encouraged and helps everyone feel more comfortable.
7. If you have trouble accessing chat features, check your membership status, as some features might require a paid membership.
8. If you feel like you're not getting enough support, try browsing through archived discussions or starting your own blog thread to engage others.
9. Long-time members encourage new members to keep asking questions and to give the site another chance if they haven't found what they need yet.
10. A member expressed gratitude to Coloplast for their support in keeping the platform running.
11. Lastly, there's a note about Ostomyland, which was reported to be closing but might continue under new management.
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