This topic is about a young woman, just 23 years old, who, along with her twin sister, decided to undergo a preventive surgery due to a genetic condition called familial adenomatous polyposis (FAP). This condition significantly increases the risk of developing colorectal cancer, which is why they chose to have a total colectomy with ileostomy and the creation of a restorative pouch. Their decision was influenced by their father's experience, who sadly passed away at 45 after his colorectal cancer spread to other parts of his body.

Here are some key points and advice shared in the discussion:

- The day of the surgery was emotionally challenging, filled with a mix of fear, calmness, and tears before going under anesthesia.

- The surgery itself was complicated. It lasted six hours and during the procedure, a benign ovarian cyst was discovered, which added to the complexity.

- After the surgery, she faced several complications, including a high fever and an infection. A week later, a CT scan revealed fluid build-up, another infection, and a tear in the newly formed pouch.

- A second surgery was necessary, which resulted in an open abdominal wound and the need to live with two stoma bags.

- She spent two weeks in the hospital and is still in recovery more than two months later. The experience was so traumatic that she is hesitant to return for a pouch reversal, fearing pressure and "cheap talk about health risks."

- The forum community is a valuable resource, offering reliable information, shared experiences, and ongoing support. They encourage her to reach out whenever she needs help.

- Her decision to have the surgery is seen as brave and potentially life-saving. The community urges her to continue trusting her instincts when it comes to future medical decisions.

- Emotional support is crucial. She and her sister can be a strong source of comfort for their mother, who has also been through a lot of stress.