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41,413 members
Mar 01, 2015

STOMA PROBLEMS

This topic is about how people with a stoma can cope with the challenges they face by using humor, building confidence, and sharing experiences with others. Here are some helpful insights and advice:

- It's common to encounter negative reactions or ignorance from others. Try not to let these affect you too much. Remember, you've been through a lot, and you are stronger than any comments or looks you might receive.

- Sometimes, things don't go as planned, like when an appliance fails. It can be embarrassing, but using humor can help diffuse awkward situations and make everyone, including yourself, feel more at ease.

- Education and confidence are key. By understanding your situation and being confident, you can help others understand too, making interactions smoother and more comfortable.

- For those with long-term experience, like over 50 years with an ileostomy, it's important to remember that things have improved significantly. Early appliances were much more cumbersome, but modern systems are easier to manage. Patience is important as supplies and techniques continue to improve over time.

- Some families managing multiple autoimmune diseases have found that switching to a whole-food, plant-based, or vegan diet has helped significantly. For example, it eliminated MS symptoms and allowed them to stop long-term medications for Crohn’s.

- Emotional health is crucial. New ostomates might feel isolated or depressed, but sharing stories in forums or blogs and supporting each other can help reduce loneliness and provide practical tips for coping.
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