This topic is about a person who has been living with a colostomy since January 2009 and faced numerous challenges over the years. They experienced issues like leakage, short wear-times for their pouches, and social embarrassment due to odor and blow-outs. After a significant bleeding episode in 2015, they sought help at a VA Hospital, where they discussed their options and decided on a stoma revision surgery. Here are some key points and advice from their experience:

- The original stoma setup was problematic, with a 4-inch wafer/pouch that had to be cut in an unusual shape, and a stoma that protruded 7 inches, making it difficult to maintain a seal.
- The person experienced frequent blow-outs and odor, which was particularly embarrassing during outdoor activities.
- A significant bleeding incident occurred in December 2015, leading to a hospital stay, but the tear self-sealed after two days.
- During a consultation, the option of a reversal or reconnection was considered but rejected due to the presence of Hirschsprung’s disease and the associated risks of incontinence.
- The patient opted for a smaller, re-sited stoma to allow for the use of smaller wafers and pouches, providing more product options.
- Surgery in May 2016 resulted in a "small butt" stoma, which now allows for a 2-3 day wear-time, with greatly reduced leakage, odor, and blow-outs.
- The person can now enjoy outdoor activities without delays or embarrassment but must be cautious with weight-lifting to avoid hernias.
- Overall, their quality of life has significantly improved, and they feel ready to resume social activities.

Additional insights include:

- An acquaintance who chose a J-pouch regrets it due to ongoing issues like pouchitis, dehydration risk, and low energy, highlighting the importance of thorough personal research.
- Fellow community members emphasize the importance of open communication with surgeons to find individualized solutions.
- There is encouragement to invite others, such as the dissatisfied J-pouch patient, to join ostomy support forums for information and peer support.