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Aug 09, 2017

My Decision: Sticking with Uni and Managing Two Bags

This topic is about a student who is trying to decide whether to stay in university while managing an ileostomy and a mucous-fistula wound bag, or to take a break for surgery and recovery. The student has been weighing the pros and cons of each option and has decided to remain on campus until the planned surgery in November. Here are some key points and advice that have influenced this decision:

- The student previously experienced isolation and boredom during a four-month recovery at home after the first surgery. Staying busy at university helps distract from worries about leaks, ballooning, and the need to change bags twice daily.

- There are concerns about social disclosure, as only close family and friends are aware of the situation. The student is unsure about when or how to tell others.

- Managing the ileostomy and wound bag involves a learning curve, including night-time emptying at 3 a.m., scheduling daytime changes, and the fear of a first public leak. There is also uncertainty about whether an ordinary toilet cubicle is sufficient for emergency changes.

- The student believes that staying active at university will support better mental health, despite the logistical challenges.

Here are some pieces of advice and insights for anyone in a similar situation:

1. Keep a written record or journal of your experiences. This can help clarify your thoughts and may become a valuable resource for coping with chronic conditions.

2. Take your time with major medical or academic decisions. Avoid rushing, as careful pacing can reduce the risk of larger problems later on.

3. Once you choose a path, commit to it wholeheartedly. Avoid second-guessing and focus on building a routine so that stoma care becomes less burdensome.

4. Engage with professors early if your studies become overwhelming. Most will offer accommodations or advice when they understand your situation.

5. Don’t stress too much about revealing your ileostomy. Most people will not know unless you tell them, and reactions are usually brief and accepting.
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