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Jul 12, 2021

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This topic is about the early challenges faced after ostomy surgery, including dealing with blowouts, pain, weakness, and the fear of not succeeding in managing the new situation. The person sharing their experience is just a few days out of the hospital and is struggling with several issues, both physical and emotional. Here are some helpful pieces of advice and insights for anyone going through a similar experience:

1. If you experience blowouts, reach out to your surgeon or ostomy nurse immediately. They can help you with fitting, managing output volume, and choosing the right appliance.

2. Check out resources like "Ostomy Tips – Blowout Help" for detailed methods to prevent leaks.

3. Remember, leaks are common in the beginning. It's not your fault, and your skills will improve with time and practice.

4. For those using two-piece systems, ensure the pouch is securely attached by pressing it all around the flange and listening for the "clicks."

5. Be prepared for changes in your body and stoma shape as you heal. You might need to try different types of wafers and barrier rings.

6. Use a hair-dryer to warm the adhesive barrier for better sticking power, a tip that can be useful for many types of adhesives.

7. Keep moving, even if it's just a little. Gentle stretching can help prevent scar tissue from tightening and reduce discomfort.

8. If your pain medication isn't working well, talk to your doctor. Managing pain is important for your mobility, rest, and mental health.

9. Focus on small, frequent meals and staying hydrated to build strength and manage high-flow output. Don't stress about calories right now; every bite counts.

10. It's okay to express your emotions, whether it's venting, crying, or feeling angry. Acknowledging how you feel is part of the healing process.

11. Try not to focus on your weight or appearance for now. Concentrate on small functional improvements, like taking one step at a time.

12. While some people have their ostomy reversed in 3 to 6 months, others may need more time. Stay hopeful but realistic about the timeline.

13. If you're too weak to stand or see your stoma clearly, YouTube videos and forum archives can offer step-by-step guidance for changing your ostomy.

14. Remember, you're not alone. Many in the community have faced similar fears and challenges. Sharing experiences, support, and even humor can make the journey a bit easier.
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