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40,881 members
Jun 01, 2023

Advice Needed - Ileostomy Reversal and Dilated Intestine Options

Topic Explanation
The forum discussion centers around a user named Lando who is considering an ileostomy reversal. Lando's doctors have identified a dilated part in his intestine or colon and have presented three options: keeping the ileostomy, changing to a colostomy, or cutting out the dilated part and reconnecting to the colon. Each option carries different risks and potential complications, and Lando is seeking advice from others who may have had similar experiences.

Advice and Insights

- General Advice on Decision Making:
- No one can make the decision for you; it's a personal choice.
- Take the time to get informed about your condition and the options available.
- Seek second and third opinions from other medical professionals.
- Understand the long-term prognosis and implications of each option.
- Do thorough research and ask lots of questions to make an informed decision.

- Experiences with Ileostomy and Colostomy:
- Some users prefer colostomy over ileostomy due to more controlled stool consistency.
- Watching YouTube videos and doing research can help understand the differences between ileostomy and colostomy.
- Personal experiences vary; what works for one person may not work for another.

- Considerations for Reversal and Surgery:
- The more bowel you have functioning, the more normal your life may be.
- Weigh the risks of surgery, such as potential nerve damage and resulting complications like diarrhea.
- Understand that underlying conditions can affect the outcome and quality of life post-surgery.
- Some users have opted for permanent solutions like total proctocolectomy with end ileostomy due to severe pre-existing conditions.

- Personal Stories and Outcomes:
- Some users have had successful outcomes with ileostomy and prefer not to reverse it due to the stability it provides.
- Others have experienced complications with colostomy and found ileostomy to be a better solution.
- Personal satisfaction with the decision varies, and some users are content with their current state and prefer not to undergo additional surgeries.

- Medical Terminology and Diagnosis:
- Be aware of terms like "Disorder of Brain/Gut Interaction" which may be used in medical diagnoses.
- Understanding the specific medical terminology can help in making informed decisions.

- Medication and Its Effects:
- Some users have had their conditions attributed to medications that affected their colon.
See full discusison
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