This topic is about understanding and managing odor issues related to having an ileostomy. An ileostomy is a surgical opening created to allow waste to exit the body after part of the intestines has been removed. Here are some insights and advice shared by someone who has been living with an ileostomy since January 2023:

- The person notices odor only during appliance changes, not when emptying the pouch.
- They rinse the pouch twice with 120 ml of water each time after emptying.
- Despite eating many odor-producing foods like beans, eggs, fish, garlic, onions, peanut butter, and cheese, they experience minimal odor.
- They wonder if they might be "nose-blind" or if others with ileostomies have different experiences, as they recall stronger stool odors before surgery.

Additional information includes:

- They do not use any deodorizing products, relying solely on the double-water rinse.
- Minor leaks have produced only a mild "sickly-sweet" smell.
- They and their spouse use separate bathrooms, and they regularly disinfect with bleach due to a past C. difficile infection. They also avoid flushing with the seat up to prevent bacteria from spreading.
- They have not yet emptied the pouch away from home but plan to carry air freshener for such occasions.
- Concerned with water conservation, they usually flush once after emptying while seated.

Here are some tips and advice for managing odor:

1. Consider adding an in-pouch deodorizer:
- Use plain baking soda by dipping a small amount into the pouch at each emptying.
- Try Hollister M9 Odor Eliminator Drops, using one squirt after emptying.
- Use Safe n’ Simple odor drops if M9 is unavailable.
- Some people find peppermint Life Savers or Tic Tacs helpful when dropped into the pouch.

2. Use air fresheners for the room:
- Hollister M9 spray is designed for the air, not the pouch.
- Carry a travel-size spray for use in public or friends’ bathrooms.

3. Emptying technique to minimize odor:
- Add water to the pouch, swish, and begin emptying as the toilet is flushing to carry the odor away.
- Flush again after wiping the tail if needed; an exhaust fan can further help.
- Some prefer sitting while others stand, but prompt flushing is emphasized.

4. Leak detection: Any odor while wearing the appliance usually signals a seal failure and should be addressed immediately.

5. Rinsing/Wash-out methods:
- Use refillable enema or squeeze bottles for a gentle "pressure-wash" inside the pouch, reducing residue and smell.

6. Products/appliances mentioned:
- Hollister one-piece pouches.
- Swiffer floor tool and Clorox toilet-bowl cleaner for easy bathroom clean-up after emptying.

7. Diet notes: Strong-smelling foods like pizza, garlic, cruciferous vegetables, and beans can increase odor for some users. Adjusting intake can help if odor becomes problematic.

The general consensus is that with an ileostomy, constant odor is uncommon. An effective seal, prompt flushing, occasional use of deodorizer, and good hygiene can keep smells under control.