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Jun 06, 2023

Finding Clothing Solutions Post-Ileostomy - My Experience with StomaDome

This topic is about finding comfortable clothing solutions for someone with an ileostomy, specifically when dealing with suspenders, belts, and a stoma guard called the StomaDome. The person sharing their experience is 75 years old and has faced challenges in keeping their pants comfortably positioned over their stoma, which is located about an inch above the navel. Here are some insights and advice shared:

- The person has experienced significant weight changes, leading to a wardrobe filled with both larger elastic-waist pants and smaller jeans.
- Larger pants only stay up with suspenders, but these can complicate frequent pouch changes, which occur 5 to 6 times a day.
- Wearing elastic pants or sweatpants above the stoma feels awkward.
- To avoid using suspenders, they purchased a StomaDome stoma guard, which allows them to wear most shorts and larger pants without suspenders. However, the dome's shape can cause belts to slide off or dig in, and tight belts can put pressure on the stoma.
- The goal is to find a temporary, cost-effective solution while waiting for a planned reversal surgery in October.

Additional details include:

- The stoma is located on the right side, about an inch above the navel.
- They wear boxer-briefs and use long T-shirts for added support over the pouch.
- The pouch is emptied frequently, and the Velcro tail is folded and clipped to reduce weight and prevent accidental openings.
- Web-style stretch belts have been tried but tend to slip off the dome.
- They prefer not to buy more clothes, as they already have enough in various sizes.

Advice and insights from others include:

- The StomaDome can help protect the pouch under jeans and from a car seatbelt, but it may pull the pouch downward if there isn't enough support from underwear. A tight T-shirt or supportive undergarment can help reduce this drag.
- Consider trying a Lizard Tail belt, which is made from adjustable climbing rope. It allows for fine-tuning of tightness and is narrower than typical leather belts.
- Simply purchasing pants that sit higher or fit current measurements might eliminate the need for suspenders or guards, which could be the simplest solution.
- General tips include keeping the pouch light by emptying it often and maintaining a positive attitude and flexibility with clothing choices to make daily life easier while living with or preparing to reverse a stoma.
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