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40,819 members
Jun 24, 2023

The same, but different

Topic Explanation
The forum discussion revolves around a user's upcoming three-step reversal surgery, which includes the creation of a loop ileostomy, followed by stoma closure, and ultimately achieving a functioning butt. The user expresses concerns and seeks advice from others who have undergone similar procedures, particularly regarding the loop ileostomy phase, which is often considered challenging.

Advice and Insights

- Loop Ileostomy Experience:
- Some users have had positive experiences with loop ileostomies, finding them functional and manageable.
- One user mentioned that their loop ileostomy worked so well that they decided to keep it instead of switching to an end ileostomy.

- Stoma Placement:
- Proper placement of the stoma is crucial. Consulting with multiple ostomy nurses for the best spot can be beneficial.
- A well-placed stoma can continue to function well even with changes in body weight.

- Surgical Concerns:
- Concerns about increased hernia risk due to multiple surgeries were mentioned, but scar tissue was highlighted as a more significant issue.
- It's advisable to discuss potential scar tissue problems with the surgeon.

- General Tips:
- Users shared that they could eat whatever they wanted and had good wear time with their pouches.
- It's important to ask questions and stay informed about the procedure and potential complications.

- Emotional Support:
- Encouragement and well-wishes were shared, emphasizing the importance of a positive outlook and support from others who have undergone similar experiences.
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