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Jun 24, 2023

The same, but different

The topic is about preparing for the loop ileostomy phase and future reversal in a 3-step J-pouch surgery. This involves creating a J-pouch and temporarily living with a loop ileostomy before eventually closing the stoma to restore normal bowel function. Here are some helpful insights and advice for navigating this journey:

1. The person undergoing surgery is optimistic, viewing the loop ileostomy as a temporary step toward long-term health improvement. Having previously lived with an ileostomy, they feel more confident this time around.

2. They hope the surgeon can use the same stoma site chosen by the ostomy nurse, which has been trouble-free despite some weight gain.

3. They are curious about how having slightly less small intestine after surgery might affect their output.

4. There is a concern about the risk of hernia formation due to multiple abdominal surgeries.

Here are some pieces of advice and insights shared by others:

- Stoma site selection is important:
- It's beneficial to have the stoma site re-marked by an ostomy nurse. A well-chosen spot can minimize issues, especially as the body changes after surgery.

- Loop ileostomies can function well:
- Many people report good experiences with loop ileostomies, including normal diets and long wear times.
- Some have kept their original loop when the colon was removed, avoiding additional surgery.

- Pouching system tips:
- A one-piece Hollister pouching system has been noted for its reliability, with some users experiencing wear times of about six days.

- Risks to discuss with your surgeon:
- Scar tissue (adhesions) from multiple surgeries can be more problematic than hernia risks. It's important to discuss how adhesions will be managed.
- If the colon is removed through the stoma site, it may cause extra scarring. Ask if an alternative extraction site is possible.

- General encouragement:
- Many emphasize that a loop ileostomy is not necessarily worse and that positive outcomes are possible.
- Staying active, as much as possible, can support recovery and help with stoma management.
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