This topic is about managing fluid loss from a disconnected J-pouch, which is a concern for someone experiencing this issue. They are losing about 500 ml of liquid each day and are curious if others have faced similar situations. Here are some helpful pieces of advice and insights shared by others:
1. It's crucial to seek immediate professional evaluation. Visiting a gastrointestinal surgeon or heading straight to the emergency room can help rule out any complications.
2. Clarifying what is meant by "disconnected" and providing details about any procedures already performed can help others, including healthcare professionals, offer more precise guidance.
3. One person with a deactivated J-pouch, due to a temporary loop ileostomy, shares that daily mucus output is common. Their output ranges from a couple of teaspoons to about a quarter of a pint, with the consistency varying from thick and sticky to watery. Their gastro surgeon considers this normal for an inactive pouch.