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Sep 10, 2023

Shy Stoma

This topic is about experiencing long quiet periods with an ileostomy after changing the pouch. The person who started the discussion notices that their ileostomy stops producing output for several hours after a pouch change, even though they eat a light breakfast soon after. They are curious if exposure to air or another factor might be causing this "shy" behavior.

Here are some insights and advice shared by others:

1. Normal Variation
- It's common for both colostomy and ileostomy users to experience long quiet spells after a pouch change, sometimes lasting from 12 hours to 2 days, while others have a constant flow.
- If the stoma remains red and shiny without pain or color change, it's usually not a blockage. Seek medical help if you notice pain, swelling, or color changes.

2. Diet, Volume, and Timing
- The volume of output is more related to how much you eat rather than what you eat. Eating more can lead to more output.
- Some people prefer to consume only liquids in the morning, like orange juice or coffee, to have several output-free hours.
- Sweets and simple sugars can increase output speed for some, while fiber can slow and thicken output, leading to longer quiet periods but a larger surge later.
- Avoiding late-night snacks can result in a quieter morning, making it easier to change the pouch.

3. Change-Time Strategies
- Many people change their pouch first thing in the morning before eating or drinking, or late at night after several hours without food.
- Preparing supplies in advance, cutting the barrier to size, and showering with the pouch off can help maximize the quiet window.
- Some people hope for a lull during the change, while others accept that occasional output during a change is unavoidable.

4. Product Experiences
- Users of 2-piece Hollister wafer/bag systems report changing wafers every 7 days and bags every 1-2 days, with no harm from multi-day no-output stretches.
- The Marlen MDW-210 heavy-vinyl pouch, which requires a separate mounting ring and O-ring, is praised for its durability and longer wear time compared to more modern pouches.

5. Lifestyle Adjustments
- When planning gym sessions or outings, some people limit their intake beforehand to keep the pouch empty.
- Frequent emptiers do so for comfort or to avoid bulging under clothes, while those with low output enjoy fewer bathroom trips.

Overall, unpredictable quiet periods are common with ileostomies. As long as the stoma looks healthy and you feel well, a "shy" period after changing is generally nothing to worry about.
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